23 Articles
System Change
Open Access | Feb 23, 2023
Short- and longer-term goals for change – A report from the 2nd workshops of the EHC Think Tank Workstreams on Registries, the Hub and Spoke Model and Patient Agency
, and Naja Skouw-Rasmussen
European Haemophilia ConsortiumBrussels, Belgium
Orcid profileSearch for this author on
Open Access | Jul 17, 2023
Access equity: key questions and challenges - A report from the 1st workshop of the European Haemophilia Consortium (EHC) Think Tank Workstream on Access Equity
Naja Skouw-Rasmussen
European Haemophilia ConsortiumBrussels, Belgium
Orcid profileSearch for this author on
and Open Access | Aug 09, 2023
Future Care Pathways – A report from the 1st workshop of the EHC Think Tank Workstream on Future Care Pathways
Naja Skouw-Rasmussen
European Haemophilia ConsortiumBrussels, Belgium
Orcid profileSearch for this author on
and Open Access | Dec 29, 2023
Short- and longer-term goals for change – A report from the 2nd workshops of the EHC Think Tank Workstreams on Access Equity and Future Care Pathways
, Naja Skouw-Rasmussen
European Haemophilia ConsortiumBrussels, Belgium
Orcid profileSearch for this author on
, , and Dalma Hosszú
- Syreon Research InstituteBudapest, Hungary
- European Haemophilia ConsortiumBrussels, Belgium
Orcid profileSearch for this author on
Clinical Research
Open Access | Feb 23, 2023
Clinical and radiological assessment of joints in people with haemophilia in Assam, Northeast India: a cross-sectional study
Bhabani Sankar Dhal
Dept of Medicine, Assam Medical CollegeDibrugarh, India
Orcid profileSearch for this author on
, Anupam Dutta
Dept of Medicine, Assam Medical CollegeDibrugarh, India
Orcid profileSearch for this author on
, , , and Open Access | Jul 17, 2023
Pain assessment and management in the Moroccan haemophilia population: a prospective descriptive study
Sofia Sraidi
Hematology and Pediatric Oncology, University Hospital Ibn RochdCasablanca, Morocco
Orcid profileSearch for this author on
, Sara Naim
Hematology and Pediatric Oncology, University Hospital Ibn RochdCasablanca, Morocco
Orcid profileSearch for this author on
, Mouna Lamchahab
Hematology and Pediatric Oncology, University Hospital Ibn RochdCasablanca, Morocco
Orcid profileSearch for this author on
, Siham Cherkaoui
Hematology and Pediatric Oncology, University Hospital Ibn RochdCasablanca, Morocco
Orcid profileSearch for this author on
, Meryem Qachouh
Hematology and Pediatric Oncology, University Hospital Ibn RochdCasablanca, Morocco
Orcid profileSearch for this author on
, , and Nissrine Khoubila
Hematology and Pediatric Oncology, University Hospital Ibn RochdCasablanca, Morocco
Orcid profileSearch for this author on
Open Access | Oct 31, 2023
Psychological experiences of mothers of children with severe haemophilia in Iranian culture: A phenomenological study
Fatemeh Feizi
Department of Psychology, Faculty of Psychology and Education, University of TehranTehran, Iran
Orcid profileSearch for this author on
, Ali Eshghi
Pediatric Congenital Hematologic Disorders Research Center, Research Institute for Children’s Health, Shahid Beheshti University of Medical SciencesTehran, Iran
Orcid profileSearch for this author on
, Manijeh Firoozi
Department of Psychology, Faculty of Psychology and Education, University of TehranTehran, Iran
Orcid profileSearch for this author on
, Zeinab Shormeij
Pediatric Congenital Hematologic Disorders Research Center, Research Institute for Children’s Health, Shahid Beheshti University of Medical SciencesTehran, Iran
Orcid profileSearch for this author on
, , Peyman Eshghi
Pediatric Congenital Hematologic Disorders Research Center, Research Institute for Children’s Health, Shahid Beheshti University of Medical SciencesTehran, Iran
Orcid profileSearch for this author on
and Javad Alaghband Rad
Department of Psychiatry, Tehran University of Medical SciencesTehran, Iran
Orcid profileSearch for this author on
Open Access | Dec 17, 2023
Factors associated with delays in seeking treatment for acute bleeding among persons living with haemophilia in Uganda: a cross-sectional mixed methods study
, Orcid profile, , , , Orcid profile, Orcid profile and Orcid profile
Phillip Gitah Kasirye
- Mulago National Referral HospialKampala, Uganda
- Haemophilia Foundation of UgandaUganda
Orcid profileSearch for this author on
, , , , Grace Ndeezi
- Makerere University College of Health SciencesKampala, Uganda
- Haemophilia Foundation of UgandaUganda
Orcid profileSearch for this author on
, Adoke Yeka
Makerere University College of Health SciencesKampala, Uganda
Orcid profileSearch for this author on
and Horatiu Vultur
Carol Davila University of Medicine and PharmacyBucarest, Romania
Orcid profileSearch for this author on
Community Focus
Open Access | Apr 21, 2023
The impact of the Contaminated Blood Scandal on the next generation: the state of the evidence
Sally-Anne Wherry
School of Health and Social Care, University of GloucestershireGloucester, UK
Orcid profileSearch for this author on
, Liz Berragan
School of Health and Social Care, University of GloucestershireGloucester, UK
Orcid profileSearch for this author on
and Ros Jennings
School of Health and Social Care, University of GloucestershireGloucester, UK
Orcid profileSearch for this author on
Open Access | May 18, 2023
The strategies of parents who tell their daughters about the possibility of being a haemophilia carrier
Keiko Nozaki
Department of Clinical Education, Ashiya UniversityHyogo, Japan
Orcid profileSearch for this author on
and Akemi Yamazaki
Division of Health Sciences, Graduate School of Medicine at Osaka UniversityOsaka, Japan
Orcid profileSearch for this author on
Nurse Focus
Open Access | May 05, 2023
Editorial – Living, Caring, Learning: How patients shape the specialist haemophilia nurse
Open Access | May 05, 2023
Living, Caring, Learning – Reflections on the therapeutic relationship in haemophilia care
Open Access | May 05, 2023
Living, Caring, Learning – The treatment centre as family for a woman with severe haemophilia
Open Access | May 05, 2023
Living, Caring, Learning – Early education, active lives and tailored treatment in haemophilia care
Open Access | Dec 17, 2023
Living, Caring, Learning – Addressing challenges in the transition to adult care
Greta Mulders
haemophilia nurse specialist at Erasmus University Medical CentreRotterdam, The Netherlands
Orcid profileSearch for this author on
Open Access | Dec 17, 2023
Living, Caring, Learning – Trust and teamwork in patient care
Marcela Ganzella Sisdelli
Nurse Team Leader at the Blood Center Foundation of Ribeirão PretoSão Paulo, Brazil
Orcid profileSearch for this author on
Clinical Practice
Open Access | Dec 20, 2023
Recognising the importance of the research nurse and study coordinators in enhancing retention of people with haemophilia in clinical trials
, , Tami Barazani-Brutman
Sheba Medical Center, Tel HashomerTel Aviv, Israel
Orcid profileSearch for this author on
, , , , , Pakawan Wongwerawattanakoon
Mahidol UniversityBangkok, Thailand
Orcid profileSearch for this author on
, and Greta Mulders
Erasmus University Medical CenterRotterdam, Netherlands
Orcid profileSearch for this author on
Open Access | Dec 29, 2023
A multidisciplinary approach to optimising the virtual management of haemophilia: a roundtable meeting of UK experts
Gary Benson
Northern Ireland Haemophilia Comprehensive Care Centre, Belfast City HospitalBelfast, Northern Ireland
Orcid profileSearch for this author on
, , , , David Stephensen
Kent Haemophilia and Thrombosis Centre, East Kent Hospitals University NHS Foundation TrustKent, UK
Orcid profileSearch for this author on
, and Sarah Mangles
Haemophilia, Haemostasis and Thrombosis Centre, Basingstoke and North Hampshire HospitalBasingstoke, UK
Orcid profileSearch for this author on
Case Study
Open Access | Aug 09, 2023
Management of a patient with factor X deficiency with FEIBA: a case report
Luish Borboruah
Assam Medical College and HospitalDibrugarh, India
Orcid profileSearch for this author on
and Anupam Dutta
Assam Medical College and HospitalDibrugarh, India
Orcid profileSearch for this author on
Open Access | Oct 19, 2023
A creative approach to managing a case of haemophilia A with inhibitors in a low-resource country: case report
Simran Bhatia
Kasturba Medical College, Manipal Academy of Higher EducationManipal, India
Orcid profileSearch for this author on
, M V Archana
Division of Pediatric Hematology and Oncology, Kasturba Medical College, Manipal Academy of Higher EducationManipal, India
Orcid profileSearch for this author on
, Vasudeva Bhat
Division of Pediatric Hematology and Oncology, Kasturba Medical College, Manipal Academy of Higher EducationManipal, India
Orcid profileSearch for this author on
, Ganesh M Balthillya
Department of Physiotherapy, Manipal College of Health Professions, Manipal Academy of Higher EducationManipal, India
Orcid profileSearch for this author on
and Sulochana Badagabettu
Department of Fundamentals of Nursing, Manipal College of Nursing, Manipal Academy of Higher EducationManipal, India
Orcid profileSearch for this author on
Open Access | Oct 19, 2023
The first reported case of factor X deficiency in a Filipino child – case study
Kristian Dorell Masacupan
St Luke’s Medical CenterQuezon City, Philippines
Orcid profileSearch for this author on
, , and Commentary
Open Access | Dec 17, 2023
Factor X deficiency: a comment on two recent case studies
Brian Branchford
Versiti Medical Sciences InstituteMilwaukee, Wisconsin, United States
Orcid profileSearch for this author on
Search
All Volumes and Issues in this Journal
Volume 12 (2025)
Volume 11 (2024)
Volume 10 (2023)
Volume 9 (2022)
Volume 8 (2021)
Volume 7 (2020)
Volume 6 (2019)
Volume 5 (2018)
Volume 4 (2017)
Volume 3 (2016)
Volume 2 (2015)
Volume 1 (2014)
Volume 1 (2013)