22 Articles
Professional Development
Open Access | May 06, 2020
Professional education among haemophilia nurses: a survey of current practices
Simon Fletcher
Oxford Haemophilia and Thrombosis Centre, Oxford University HospitalsOxford,
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, , Cathy Harrison
Sheffield Haemophilia and Thrombosis Centre, Sheffield Teaching HospitalsSheffield,
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, and Open Access | Oct 17, 2020
Pain management in bleeding disorders care: perspectives of Canadian Social Workers in Hemophilia Care
Jennifer King
Health Sciences, College of Medicine, University of Saskatchewan, Saskatchewan Health AuthoritySaskatoon, Canada
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, Kara Fletcher
Faculty of Social Work, University of ReginaSaskatoon, Canada
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, , Kelsey Brose
College of Medicine, University of Saskatchewan, Saskatchewan Cancer AgencySaskatoon, Canada
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and Donna Goodridge
College of Medicine, University of SaskatchewanSaskatoon, Canada
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Case Study
Open Access | May 06, 2020
Fiona’s FVII footprint
Greta Mulders
Department of Hematology, Erasmus University Medical CenterRotterdam, Netherlands
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and Clinical Practice
Open Access | Jun 08, 2020
Development and clinical feasibility testing of the Pain Treatment Planning Questionnaire
Susan M Tupper
Strategy Consultant for Pain Quality Improvement and Research, Saskatchewan Health AuthorityCanada
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, , , Pamela Downe
Medical Anthropologist, University of SaskatchewanCanada
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, , and Open Access | Jun 08, 2020
Outcome of a combined physiotherapy and podiatry haemophilia clinic: patient perceptions and the effect on ankle bleeds and joint health
Charlene Dodd
Clinical Specialist Physiotherapist, Haemophilia and Thrombosis Centre, East Kent Hospitals University NHS Foundation Trust
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, Alis Trivelli
Clinical Lead Podiatrist for Children, MSK Specialist Podiatrist, Queen Victoria Memorial Hospital, Kent Community Health NHS Foundation Trust
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, David Stephensen
Physiotherapist, Haemophilia and Thrombosis Centre, East Kent Hospitals University NHS Foundation Trust
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, and Open Access | Jun 17, 2020
Switching factor products: nurses’ experience with NovoEight
Debra Pollard
Katharine Dormandy Haemophilia & Thrombosis Centre, Royal Free HospitalLondon,
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, and Open Access | Jun 17, 2020
Experience of switching to NovoEight: views of people with haemophilia
Debra Pollard
Katharine Dormandy Haemophilia & Thrombosis Centre, Royal Free HospitalLondon,
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, and Open Access | Oct 17, 2020
Knowledge, attitude and practice of health care providers toward prescribing factor replacement at federally funded haemophilia treatment centres in the United States
M. Bloomberg
University of Miami Haemophilia Treatment CenterMiami, US
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, K. Sargenton
University of Miami Haemophilia Treatment CenterMiami, US
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, K. Gattamorta
University of Miami School of Nursing & Health StudiesMiami, US
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and D. Anglade
University of Miami School of Nursing & Health StudiesMiami, US
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Open Access | Nov 19, 2020
Do nurses have the switch factor?
Greta Mulders
Advanced Nurse Practitioner, Haemophilia Treatment Center, Erasmus University Medical CentreRotterdam, The Netherlands
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, Nanda Uitslager
Advanced Nurse Practitioner, Van Creveldkliniek, University Medical Center UtrechtUtrecht, The Netherlands
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, , , Kathi Stein Oldenburg
Department of Paediatrics, Division of Oncology and Haematology, Charité Universitätsmedizin BerlinGermany
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and Clinical Research
Open Access | Jun 17, 2020
Clinical profile of children with haemophilia at the University Hospital of Brazzaville
FO Galiba Atipo Tsiba
Haematology Department, University Hospital of Brazzaville, Faculty of Health Sciences, Marien Ngouabi University of BrazzavilleCongo
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, OL Ngolet
Haematology Department, University Hospital of Brazzaville, Faculty of Health Sciences, Marien Ngouabi University of BrazzavilleCongo
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, , , and Open Access | Jun 17, 2020
Haemostatic action of a topical foam-based patch (VELSEAL-T) in haemophiliac patients with external bleeding
Anupam Dutta
Department of Medicine, Assam Medical College and HospitalDibrugarh, India
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, Taniya Sarkar Dutta
Department of Paediatrics, Assam Medical College and HospitalDibrugarh, India
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, Anup Kumar Das
Department of Medicine, Assam Medical College and HospitalDibrugarh, India
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and Pranoy Dey
Department of Paediatrics, Assam Medical College and HospitalDibrugarh, India
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Open Access | Jul 25, 2020
Predictors of treatment adherence in patients with chronic disease using the Multidimensional Adherence Model: unique considerations for patients with haemophilia
Karen Strike
School of Rehabilitation Science, Faculty of Health Science, McMaster UniversityHamilton, Canada
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, Anthony Chan
Department of Pediatrics, McMaster UniversityHamilton, Canada
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, Alfonso Iorio
Department of Health Research Methods, Evidence, and Impact (HEI), McMaster UniversityHamilton, Canada
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, Monica R. Maly
School of Rehabilitation Science, Faculty of Health Science, McMaster University, Department of Kenesiology, Faculty of Applied Health Sciences, University of WaterlooHamilton, Canada
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, Paul W. Stratford
School of Rehabilitation Science, Faculty of Health Science, McMaster UniversityHamilton, Canada
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and Patricia Solomon
School of Rehabilitation Science, Faculty of Health Science, McMaster UniversityHamilton, Canada
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Open Access | Aug 15, 2020
The impact of factor infusion frequency on health-related quality of life in people with haemophilia
, , Kate Khair
Centre for Outcomes and Experience Research in Children's Health Illness and Disability (ORCHID), Great Ormond Street HospitalLondon,
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, , , Jamie O’Hara
Faculty of Health and Social Care, University of Chester
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and Open Access | Nov 19, 2020
Improvement in school absence after factor replacement in students with haemophilia in Upper Assam, India
Anupam Dutta
Department of Medicine, Assam Medical College and HospitalDibrugarh, India
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, Dipjyoti Boruah
Department of Medicine, Assam Medical College and HospitalDibrugarh, India
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, Taniya Sarkar Dutta
Department of Paediatrics, Assam Medical College and HospitalDibrugarh, India
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, Angshuman Boruah
Department of Medicine, Assam Medical College and HospitalDibrugarh, India
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and Bhabani Shankar Dhal
Department of Medicine, Assam Medical College and HospitalDibrugarh, India
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Open Access | Dec 17, 2020
A multi-country snapshot study of pain in people with haemophilia
Greta Mulders
Haemophilia Treatment Centre, Erasmus University Medical CentreRotterdam, The Netherlands
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, , and Community Focus
Open Access | Jun 08, 2020
“What more can we ask for?”: an ethnographic study of challenges and possibilities for people living with haemophilia
, , , , , Ana Torres-Ortuño
Department of Psychiatry and Social Psychology, University of MurciaSpain
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, and John Stevens
Swedish Orphan Biovitrum AB (Sobi)Stockholm, Sweden
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Open Access | Jun 08, 2020
Improving haemophilia diagnosis in developing countries: the Malian experience
, A Poudiougo
Laboratory Department, Gabriel Touré University HospitalBamako, Mali
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, , AS Traore
Department of Medicine, Hôpital Somino DoloSevare, Mali
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, Y Cissoko
Department of Tropical Infectious Diseases, Point G Teaching HospitalBamako, Mali
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, , , Z Sountoura
Department of Medicine, Hôpital du MaliBamako, Mali
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, AA Diakite
Department of Paediatrics, Gabriel Touré University HospitalBamako, Mali
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, and JF Schved
Haemophilia Treatment Centre, University HospitalMontpellier, France
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Open Access | Jul 25, 2020
Perceptions and attitudes towards gym use and physical activity in young men with haemophilia
and Open Access | Dec 17, 2020
“He's a normal kid now”: an ethnographic study of challenges and possibilities in a new era of haemophilia care
, , , , , , and John Stevens
Swedish Orphan Biovitrum AB (Sobi)Stockholm, Sweden
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Open Access | Dec 17, 2020
Navigating uncertainty: an examination of how people with haemophilia understand and cope with uncertainty in protection in an ethnographic study
, , , , , , and John Stevens
Swedish Orphan Biovitrum AB (Sobi)Stockholm, Sweden
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Open Access | Dec 17, 2020
Treating for stability: an ethnographic study of aspirations and limitations in haemophilia treatment in Europe
, , , , , , and John Stevens
Swedish Orphan Biovitrum AB (Sobi)Stockholm, Sweden
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Open Access | Dec 17, 2020
Uncertainty to normality using ethnographic and qualitative research: a personal view
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