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Journaux
The Journal of Haemophilia Practice
Volume 10 (2023): Issue 1 (January 2023)
Accès libre
The Journal of Haemophilia Practice
Volume 10 (2023): Issue 1 (January 2023)
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23 Articles
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System Change
Accès libre | 23 févr. 2023
Short- and longer-term goals for change – A report from the 2nd workshops of the EHC Think Tank Workstreams on Registries, the Hub and Spoke Model and Patient Agency
Amanda Bok
Amanda Bok
,
Declan Noone
Declan Noone
et
Naja Skouw-Rasmussen
Naja Skouw-Rasmussen
Accès libre | 17 juil. 2023
Access equity: key questions and challenges - A report from the 1st workshop of the European Haemophilia Consortium (EHC) Think Tank Workstream on Access Equity
Naja Skouw-Rasmussen
Naja Skouw-Rasmussen
et
Laura Savini
Laura Savini
Accès libre | 09 août 2023
Future Care Pathways – A report from the 1st workshop of the EHC Think Tank Workstream on Future Care Pathways
Naja Skouw-Rasmussen
Naja Skouw-Rasmussen
et
Laura Savini
Laura Savini
Accès libre | 29 déc. 2023
Short- and longer-term goals for change – A report from the 2nd workshops of the EHC Think Tank Workstreams on Access Equity and Future Care Pathways
Zita Gacser
Zita Gacser
,
Naja Skouw-Rasmussen
Naja Skouw-Rasmussen
,
Steven Bourke
Steven Bourke
,
Renske ten Ham
Renske ten Ham
et
Dalma Hosszú
Dalma Hosszú
Clinical Research
Accès libre | 23 févr. 2023
Clinical and radiological assessment of joints in people with haemophilia in Assam, Northeast India: a cross-sectional study
Bhabani Sankar Dhal
Bhabani Sankar Dhal
,
Anupam Dutta
Anupam Dutta
,
Arijit Das
Arijit Das
,
Dhrubajyoti Borpatragohain
Dhrubajyoti Borpatragohain
,
Adity Sharma
Adity Sharma
et
Arnav Kashyap
Arnav Kashyap
Accès libre | 17 juil. 2023
Pain assessment and management in the Moroccan haemophilia population: a prospective descriptive study
Sofia Sraidi
Sofia Sraidi
,
Sara Naim
Sara Naim
,
Mouna Lamchahab
Mouna Lamchahab
,
Siham Cherkaoui
Siham Cherkaoui
,
Meryem Qachouh
Meryem Qachouh
,
Mohamed Rachid
Mohamed Rachid
,
Abdellah Madani
Abdellah Madani
et
Nissrine Khoubila
Nissrine Khoubila
Accès libre | 31 oct. 2023
Psychological experiences of mothers of children with severe haemophilia in Iranian culture: A phenomenological study
Fatemeh Feizi
Fatemeh Feizi
,
Ali Eshghi
Ali Eshghi
,
Manijeh Firoozi
Manijeh Firoozi
,
Zeinab Shormeij
Zeinab Shormeij
,
Behnaz Habib Panah
Behnaz Habib Panah
,
Peyman Eshghi
Peyman Eshghi
et
Javad Alaghband Rad
Javad Alaghband Rad
Accès libre | 17 déc. 2023
Factors associated with delays in seeking treatment for acute bleeding among persons living with haemophilia in Uganda: a cross-sectional mixed methods study
Agnes Kisakye
Agnes Kisakye
,
Phillip Gitah Kasirye
Phillip Gitah Kasirye
,
Dan Muramuzi
Dan Muramuzi
,
Daniel Opuch
Daniel Opuch
,
Joan Nampiima
Joan Nampiima
,
Grace Ndeezi
Grace Ndeezi
,
Adoke Yeka
Adoke Yeka
et
Horatiu Vultur
Horatiu Vultur
Community Focus
Accès libre | 21 avr. 2023
The impact of the Contaminated Blood Scandal on the next generation: the state of the evidence
Sally-Anne Wherry
Sally-Anne Wherry
,
Liz Berragan
Liz Berragan
et
Ros Jennings
Ros Jennings
Accès libre | 18 mai 2023
The strategies of parents who tell their daughters about the possibility of being a haemophilia carrier
Keiko Nozaki
Keiko Nozaki
et
Akemi Yamazaki
Akemi Yamazaki
Nurse Focus
Accès libre | 05 mai 2023
Editorial – Living, Caring, Learning: How patients shape the specialist haemophilia nurse
Kate Khair
Kate Khair
Accès libre | 05 mai 2023
Living, Caring, Learning – Reflections on the therapeutic relationship in haemophilia care
Regina Butler
Regina Butler
Accès libre | 05 mai 2023
Living, Caring, Learning – The treatment centre as family for a woman with severe haemophilia
Dalia Bashari
Dalia Bashari
Accès libre | 05 mai 2023
Living, Caring, Learning – Early education, active lives and tailored treatment in haemophilia care
Josipa Belev
Josipa Belev
Accès libre | 17 déc. 2023
Living, Caring, Learning – Addressing challenges in the transition to adult care
Greta Mulders
Greta Mulders
Accès libre | 17 déc. 2023
Living, Caring, Learning – Trust and teamwork in patient care
Marcela Ganzella Sisdelli
Marcela Ganzella Sisdelli
Clinical Practice
Accès libre | 09 août 2023
Shared decision-making for gene therapy in haemophilia care
Simon Fletcher
Simon Fletcher
,
Kathryn Jenner
Kathryn Jenner
et
Kate Khair
Kate Khair
Accès libre | 20 déc. 2023
Recognising the importance of the research nurse and study coordinators in enhancing retention of people with haemophilia in clinical trials
Kate Khair
Kate Khair
,
Hanne Thykjaer
Hanne Thykjaer
,
Tami Barazani-Brutman
Tami Barazani-Brutman
,
Kelly Bellm
Kelly Bellm
,
Christopher Benjamin
Christopher Benjamin
,
Cindy Wakefield
Cindy Wakefield
,
Nicola Williams
Nicola Williams
,
Pakawan Wongwerawattanakoon
Pakawan Wongwerawattanakoon
,
Huiqun Zhong
Huiqun Zhong
et
Greta Mulders
Greta Mulders
Accès libre | 29 déc. 2023
A multidisciplinary approach to optimising the virtual management of haemophilia: a roundtable meeting of UK experts
Gary Benson
Gary Benson
,
Trupti Bhandari
Trupti Bhandari
,
Keith Gomez
Keith Gomez
,
Kerry-Ann Holder
Kerry-Ann Holder
,
David Stephensen
David Stephensen
,
Alice Wilkinson
Alice Wilkinson
et
Sarah Mangles
Sarah Mangles
Case Study
Accès libre | 09 août 2023
Management of a patient with factor X deficiency with FEIBA: a case report
Luish Borboruah
Luish Borboruah
et
Anupam Dutta
Anupam Dutta
Accès libre | 19 oct. 2023
A creative approach to managing a case of haemophilia A with inhibitors in a low-resource country: case report
Simran Bhatia
Simran Bhatia
,
M V Archana
M V Archana
,
Vasudeva Bhat
Vasudeva Bhat
,
Ganesh M Balthillya
Ganesh M Balthillya
et
Sulochana Badagabettu
Sulochana Badagabettu
Accès libre | 19 oct. 2023
The first reported case of factor X deficiency in a Filipino child – case study
Kristian Dorell Masacupan
Kristian Dorell Masacupan
,
Allan Robert Racho
Allan Robert Racho
,
Maria Luz Del Rosario
Maria Luz Del Rosario
et
Loralyn Mae Lagara-Aranas
Loralyn Mae Lagara-Aranas
Commentary
Accès libre | 17 déc. 2023
Factor X deficiency: a comment on two recent case studies
Brian Branchford
Brian Branchford
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Édition 11 (2024)
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Edition 1 (Janvier 2023)
Édition 9 (2022)
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Édition 8 (2021)
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