23 Artikel
System Change
Uneingeschränkter Zugang | 23. Feb. 2023
Short- and longer-term goals for change – A report from the 2nd workshops of the EHC Think Tank Workstreams on Registries, the Hub and Spoke Model and Patient Agency
, und Uneingeschränkter Zugang | 17. Juli 2023
Access equity: key questions and challenges - A report from the 1st workshop of the European Haemophilia Consortium (EHC) Think Tank Workstream on Access Equity
und Uneingeschränkter Zugang | 09. Aug. 2023
Future Care Pathways – A report from the 1st workshop of the EHC Think Tank Workstream on Future Care Pathways
und Uneingeschränkter Zugang | 29. Dez. 2023
Short- and longer-term goals for change – A report from the 2nd workshops of the EHC Think Tank Workstreams on Access Equity and Future Care Pathways
, , , und Clinical Research
Uneingeschränkter Zugang | 23. Feb. 2023
Clinical and radiological assessment of joints in people with haemophilia in Assam, Northeast India: a cross-sectional study
, , , , und Uneingeschränkter Zugang | 17. Juli 2023
Pain assessment and management in the Moroccan haemophilia population: a prospective descriptive study
, , , , , , und Uneingeschränkter Zugang | 31. Okt. 2023
Psychological experiences of mothers of children with severe haemophilia in Iranian culture: A phenomenological study
, , , , , und Uneingeschränkter Zugang | 17. Dez. 2023
Factors associated with delays in seeking treatment for acute bleeding among persons living with haemophilia in Uganda: a cross-sectional mixed methods study
, , , , , , und
, , , , , und Community Focus
Uneingeschränkter Zugang | 21. Apr. 2023
The impact of the Contaminated Blood Scandal on the next generation: the state of the evidence
, und Uneingeschränkter Zugang | 18. Mai 2023
The strategies of parents who tell their daughters about the possibility of being a haemophilia carrier
und Nurse Focus
Uneingeschränkter Zugang | 05. Mai 2023
Editorial – Living, Caring, Learning: How patients shape the specialist haemophilia nurse
Uneingeschränkter Zugang | 05. Mai 2023
Living, Caring, Learning – Reflections on the therapeutic relationship in haemophilia care
Uneingeschränkter Zugang | 05. Mai 2023
Living, Caring, Learning – The treatment centre as family for a woman with severe haemophilia
Uneingeschränkter Zugang | 05. Mai 2023
Living, Caring, Learning – Early education, active lives and tailored treatment in haemophilia care
Uneingeschränkter Zugang | 17. Dez. 2023
Living, Caring, Learning – Addressing challenges in the transition to adult care
Uneingeschränkter Zugang | 17. Dez. 2023
Living, Caring, Learning – Trust and teamwork in patient care
Clinical Practice
Uneingeschränkter Zugang | 09. Aug. 2023
Shared decision-making for gene therapy in haemophilia care
, und Uneingeschränkter Zugang | 20. Dez. 2023
Recognising the importance of the research nurse and study coordinators in enhancing retention of people with haemophilia in clinical trials
, , , , , , , , und Uneingeschränkter Zugang | 29. Dez. 2023
A multidisciplinary approach to optimising the virtual management of haemophilia: a roundtable meeting of UK experts
, , , , , und Case Study
Uneingeschränkter Zugang | 09. Aug. 2023
Management of a patient with factor X deficiency with FEIBA: a case report
und Uneingeschränkter Zugang | 19. Okt. 2023
A creative approach to managing a case of haemophilia A with inhibitors in a low-resource country: case report
, , , und Uneingeschränkter Zugang | 19. Okt. 2023
The first reported case of factor X deficiency in a Filipino child – case study
, , und Commentary
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