20 Articles
Community Focus
Open Access | Mar 03, 2021
A descriptive study of United States bleeding disorders camps
, and Open Access | Mar 02, 2022
“It's a way of life”: Results from the Perceptions of Pain in Haemophilia study
, and Case Study
Open Access | Mar 03, 2021
Case report of nasal pseudotumor – a rare presentation in severe haemophilia A with high titre inhibitors
Prakas Kumar Mandal
Department of Haematology, NRS Medical CollegeKolkata, India
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, Malini Garg
Department of Haematology, NRS Medical CollegeKolkata, India
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, Debasis Gantait
Department of Haematology, NRS Medical CollegeKolkata, India
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and Utpal Jana
Department of ENT, NRS Medical CollegeKolkata, India
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Open Access | May 30, 2021
Dental extraction in congenital factor Vll deficiency with inhibitor – a case report
Geeta Nayar
Haemophilia Treatment Centre, Government District HospitalAluva, India
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, Vijayakumar Narayana Pillai
Haemophilia Treatment Centre, Government District HospitalAluva, India
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, Sheena Mathew
Haemophilia Treatment Centre, Government District HospitalAluva, India
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and Gokul Das Menon
Department of Anaesthesia and Critical Care, Amrita Institute of Medical SciencesKochi, India
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Open Access | Dec 22, 2021
Management of multiple myeloma in a patient with haemophilia with concurrent emicizumab – case report
Elizabeth Davies
Haematology and Pharmacy Department, Manchester University NHS Foundation TrustManchester, UK
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, Luke Carter-Brzezinski
Haematology and Pharmacy Department, Manchester University NHS Foundation TrustManchester, UK
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, Margarita Traintafillou
Haematology Department, Manchester University NHS Foundation TrustManchester, UK
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, Rachel Brown
Haematology Department, Manchester University NHS Foundation TrustManchester, UK
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and Charles R M Hay
Haematology Department, Manchester University NHS Foundation TrustManchester, UK
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Clinical Research
Open Access | May 02, 2021
The patient gene therapy journey: Findings from qualitative interviews with trial participants at one UK haemophilia centre
Elsa Aradom
Katharine Dormandy Haemophilia and Thrombosis Centre, Royal Free London NHS Foundation TrustLondon, UK
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and Keith Gomez
Katharine Dormandy Haemophilia and Thrombosis Centre, Royal Free London NHS Foundation TrustLondon, UK
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Open Access | May 30, 2021
Red Flag Study: An observational cross-sectional survey looking at bleeding in patients with a bleeding disorder who are lost to follow-up
Doaa Abdelfattah
Division of Hematology/Oncology, Children's Hospital of Eastern OntarioOttawa, Canada
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, Alicia E. Klaassen
Department of Pharmacy, University of British ColumbiaVancouver, Canada
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, Heather Perkins
Division of Hematology/Oncology, Children's Hospital of Eastern OntarioOttawa, Canada
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, , Dorine Belliveau
Division of Hematology/Oncology, Moncton HospitalMoncton, Canada
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and Robert J. Klaassen
Division of Hematology/Oncology, Children's Hospital of Eastern OntarioOttawa, Canada
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Open Access | May 30, 2021
The potential impact of gene therapy on health-related quality of life (HRQoL) domains in haemophilia
, Diandra Latibeaudiere Gardner
ICON Clinical Research LimitedLondon, UK
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, , Wolfgang Miesbach
Medical Clinic 2, Institute of Transfusion Medicine, University Hospital FrankfurtGermany
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, Sandra Nolte
ICON Clinical Research Limited, Charité–Universitätsmedizin Berlin, corporate member of Freie Universität Berlin, Humboldt-Universität zu Berlin, Berlin Institute of Health, Medical Department, Division of Psychosomatic MedicineMunich,
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, , Brian O’Mahony
Irish Haemophilia Society, Trinity CollegeDublin,
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, Debra Pollard
Royal Free Hospital, Trustee of Haemnet, MASAG, European Haemophilia ConsortiumLondon,
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, Mark Skinner
Institute for Policy Advancement Ltd, McMaster UniversityWashington,
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and Open Access | Jul 13, 2021
Web-based Application for the Population Pharmacokinetic Service (WAPPS)'s impact on dosage selection: a single paediatric centre experience
Celia Kwan
Faculty of Medicine, University of British ColumbiaVancouver, Canada
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, Mihir D. Bhatt
Department of Paediatrics, McMaster University, Hamilton Niagara Regional Hemophilia Program, McMaster Children's Hospital, Hamilton Health SciencesHamilton,
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, Karen Strike
Hamilton Niagara Regional Hemophilia Program, McMaster Children's Hospital, Hamilton Health Sciences, School of Rehabilitation Science, Faculty of Health Science, McMaster UniversityHamilton,
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, Kay Decker
Hamilton Niagara Regional Hemophilia Program, McMaster Children's Hospital, Hamilton Health SciencesHamilton, Canada
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, Davide Matino
Hamilton Niagara Regional Hemophilia Program, McMaster Children's Hospital, Hamilton Health Sciences, Department of Medicine, McMaster UniversityHamilton,
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and Anthony K.C. Chan
Department of Paediatrics, McMaster University, Hamilton Niagara Regional Hemophilia Program, McMaster Children's Hospital, Hamilton Health SciencesHamilton,
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Open Access | Oct 14, 2021
Bone mineral density in Canadian children with severe haemophilia A or B: a cross-sectional study
Cecily Bos
Department of Surgery, McMaster UniversityHamilton, Canada
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, Paul Tieu
Department of Pediatrics, McMaster University, Thrombosis and Atherosclerosis Research InstituteHamilton,
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, John K Wu
University of British Columbia, BC Children's HospitalCanada
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, Karen Strike
School of Rehabilitation Science, Faculty of Health Sciences, Hamilton Niagara Regional Hemophilia Program, McMaster Children's Hospital, Hamilton Health SciencesHamilton,
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and Anthony KC Chan
Department of Pediatrics, McMaster University, Hamilton Niagara Regional Hemophilia Program, McMaster Children's Hospital, Hamilton Health Sciences, Department of Paediatrics and Adolescent Medicine, The University of Hong KongHamilton,
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Clinical Practice
Open Access | Jun 18, 2021
Personalising haemophilia management with shared decision making
Leonard A Valentino
Rush University, National Hemophilia FoundationChicago, USA
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, Victor Blanchette
Department of Pediatrics, University of Toronto and Division of Hematology/Oncology, Hospital for Sick ChildrenToronto, Canada
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, Claude Negrier
Unité d’Hemostase Clinique, Hôpital, Louis Pradel, Hospices Civils de Lyon, Université Claude BernardLyon, France
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, , , Thomas Sannié
Association française des hémophilesParis, France
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and Mark W Skinner
Institute for Policy Advancement Ltd, McMaster UniversityWashington,
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Open Access | Aug 18, 2021
The use of rIX-FP in patients with haemophilia B: a nurse's perspective
, and Open Access | Oct 14, 2021
Telemedicine in haemophilia during COVID-19 and beyond: a comprehensive review
Casey L Li
Department of Paediatrics, McMaster University, Hamilton Niagara Regional Hemophilia Program, McMaster Children's Hospital, Hamilton Health SciencesHamilton,
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, Anthony KC Chan
Department of Paediatrics, McMaster University, Hamilton Niagara Regional Hemophilia Program, McMaster Children's Hospital, Hamilton, Health Sciences, Department of Paediatrics and Adolescent Medicine, The University of Hong KongHamilton,
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, Davide Matino
Hamilton Niagara Regional Hemophilia Program, McMaster Children's Hospital, Hamilton Health Sciences, Department of Medicine, McMaster UniversityHamilton,
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, Mihir D Bhatt
Department of Paediatrics, McMaster University, Hamilton Niagara Regional Hemophilia Program, McMaster Children's Hospital, Hamilton Health SciencesHamilton,
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, Kay Decker
Hamilton Niagara Regional Hemophilia Program, McMaster Children's Hospital, Hamilton Health SciencesHamilton, Canada
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and Karen Strike
Hamilton Niagara Regional Hemophilia Program, McMaster Children's Hospital, Hamilton Health Sciences, School of Rehabilitation Sciences, Faculty of Health Sciences, McMaster UniversityHamilton,
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Open Access | Oct 14, 2021
Haemophilia specialist nurses’ perceptions of haemophilia B
, Maj Friberg Birkedal
Haemophilia Centre University Hospital RigshospitaletCopenhagen, Denmark
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, Erica Crilly
Inherited Bleeding Disorders Programme, BC Children's HospitalVancouver, Canada
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, Simon Fletcher
Oxford Haemophilia & Thrombosis Centre, Churchill HospitalOxford, UK
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, Sara Garcia
Thrombosis and Haemostasis Unit, Haematology Department, Hospital La Paz Institute for Health Research – IdiPAZ (La Paz University Hospital – Universidad Autónoma de Madrid)Madrid, Spain
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, Greta Mulders
Haemophilia Centre, Erasmus University Medical CentreRotterdam, The Netherlands
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, Linda Myrin-Westesson
Coagulation Centre, Department of Medicine/Section of Hematology and Coagulation, Sahlgrenska University HospitalGothenburg, Sweden
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, , Anna Sanigorska
Oxford Haemophilia & Thrombosis Centre, Churchill HospitalOxford, UK
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and Nanda Uitslager
Division of Internal Medicine and Dermatology, Van Creveldkliniek University Medical Center UtrechtThe Netherlands
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Open Access | Mar 02, 2022
Haemophilia A management with emicizumab: A survey of haematologists in the United States
, , , , , , and Open Access | Mar 02, 2022
Bone health assessment in haemophilic arthropathy: A single centre study from Kolkata, West Bengal, India
Prakas Kumar Mandal
Department of Hematology, NRS Medical CollegeKolkata, India
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, Malini Garg
Department of Hematology, NRS Medical CollegeKolkata, India
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, Prantar Chakrabarti
Department of Hematology, NRS Medical CollegeKolkata, India
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, Amrita Bhowmik
Department of Hematology, NRS Medical CollegeKolkata, India
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, Debasis Gantait
Department of Hematology, NRS Medical CollegeKolkata, India
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and Tuphan Kanti Dolai
Department of Hematology, NRS Medical CollegeKolkata, India
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Commentary
Open Access | Dec 30, 2021
Seeing the bigger picture: Qualitative research in the Zoom® age
Simon Fletcher
Oxford University Hospitals NHS Foundation TrustOxford, UK
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