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The Journal of Haemophilia Practice

Volume 5 (2018): Issue 1 (April 2018)

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21 Articles

Clinical Report

Open Access | Apr 14, 2018
Head injury in a haemophilia patient – Nursing considerations: a case report
B. Sulochana

B. Sulochana

Department of Fundamentals of Nursing, Manipal College of NursingManipal, India
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Sulochana, B.
, 
Roseminu Varghese

Roseminu Varghese

Department of Fundamentals of Nursing, Manipal College of NursingManipal, India
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Varghese, Roseminu
 and 
Girish Menon

Girish Menon

Professor and Head of the Department of Neurosurgery, Kasturba Medical CollegeManipal, India
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Menon, Girish
  
Open Access | Apr 14, 2018
Haemostasis action of VELSEAL-T in a haemophilia A patient with external bleeding
Anupam Dutta

Anupam Dutta

Department of Medicine, Assam Medical College and Hospital, DibrugarhAssam, India
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Dutta, Anupam
 and 
Anup Kumar Das

Anup Kumar Das

Department of Medicine, Assam Medical College and Hospital, DibrugarhAssam, India
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Das, Anup Kumar
  

Case Study

Open Access | Apr 14, 2018
Myocardial infarction in severe haemophilia
Jenique Bailly

Jenique Bailly

Department of Molecular Medicine and Haematology, University of the WitwatersrandJohannesburg, South Africa
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Bailly, Jenique
 and 
Johnny Mahlangu

Johnny Mahlangu

  • Haemophilia Comprehensive Care Centre, Charlotte Maxeke Johannesburg Academic HospitalJohannesburg, South Africa
  • Professor of Haematology, Department of Molecular Medicine and Haematology, University of the Witwatersrand and NHLSJohannesburg, South Africa
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Mahlangu, Johnny
  
Open Access | May 31, 2018
Evaluation of a pre-filled diluent syringe (MixPro®) among patient/carer users and nurses
Debra Pollard

Debra Pollard

Katharine Dormandy Haemophilia & Thrombosis Centre, Royal Free London NHS FoundationLondon, UK
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Pollard, Debra
, 
Kate Khair

Kate Khair

Haemophilia Comprehensive Care Centre, Great Ormond Street Hospital for Children NHS Foundation TrustLondon, UK
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Khair, Kate
, 
Cléa Percier

Cléa Percier

Global Scientific LeadNovo Nordisk, Switzerland
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Percier, Cléa
, 
Yen Wong

Yen Wong

Phoenix Marketing International (Healthcare)London, UK
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Wong, Yen
 and 
Robyn Shoemark

Robyn Shoemark

The Children’s Hospital at WestmeadSydney, Australia
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Shoemark, Robyn
  
Open Access | May 31, 2018
Living with an inhibitor: Results from the Study of Haemophilia Experiences, Results and Opportunities in Children and young adults with long-standing inhibitors (the SO-HEROIC study)
Kate Khair

Kate Khair

Consultant Nurse, Great Ormond Street Hospital for Children NHS Trust, London; Visiting Professor of Health and Social Care, London South Bank University; Co-Founder and Trustee, HaemnetLondon, UK
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Khair, Kate
, 
Steve Chaplin

Steve Chaplin

Medical Writer, HaemnetLondon, UK
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Chaplin, Steve
 and 
Mike Holland

Mike Holland

Co-Founder and Director, HaemnetLondon, UK
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Holland, Mike
  
Open Access | May 31, 2018
Subcutaneous injection: learning from experience in other specialties
Debra Pollard

Debra Pollard

Lead Nurse Specialist, Katharine Dormandy Haemophilia & Thrombosis Centre, Royal Free London NHS Foundation TrustLondon, UK
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Pollard, Debra
 and 
Steve Chaplin

Steve Chaplin

Medical writerLondon, UK
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Chaplin, Steve
  
Open Access | Dec 21, 2018
A case study exploring the impact on family life of two genetic conditions – severe haemophilia A and sickle cell disease
Anica Phillott

Anica Phillott

Paediatric Haemophilia Nurse Manager and Specialist, Evelina London Children's Hospital, Guy’s and St Thomas’ NHS Foundation TrustLondon, UK
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Phillott, Anica
  
Open Access | Dec 14, 2018
Acquired haemophilia A in an elderly patient related to relapsed cervix carcinoma
Fatos Dilan Atilla

Fatos Dilan Atilla

Adult Haemophilia and Thrombosis Centre, Ege University HospitalIzmir, Turkey
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Atilla, Fatos Dilan
, 
Ahmet Alp Unat

Ahmet Alp Unat

Department of Internal Medicine, Ege University HospitalIzmir, Turkey
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Unat, Ahmet Alp
, 
Hale Bulbul

Hale Bulbul

Adult Haemophilia and Thrombosis Centre, Ege University HospitalIzmir, Turkey
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Bulbul, Hale
, 
Murat Ulukus

Murat Ulukus

Department of Obstetrics and Gynaecology, Ege University HospitalIzmir, Turkey
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Ulukus, Murat
, 
Zuhal Demirci

Zuhal Demirci

Adult Haemophilia and Thrombosis Centre, Ege University HospitalIzmir, Turkey
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Demirci, Zuhal
, 
Guray Saydam

Guray Saydam

Adult Haemophilia and Thrombosis Centre, Ege University HospitalIzmir, Turkey
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Saydam, Guray
 and 
Fahri Sahin

Fahri Sahin

Adult Haemophilia and Thrombosis Centre, Ege University HospitalIzmir, Turkey
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Sahin, Fahri
  
Open Access | Jan 08, 2019
A transgender person with haemophilia
Caroline Valk

Caroline Valk

Haemophilia nurse specialist, Academic Medical Center, University of AmsterdamAmsterdam, The Netherlands
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Valk, Caroline
  
Open Access | Dec 21, 2018
Haemophilic arthropathy: a case of misdiagnosis
Nakalyango Annette Grace

Nakalyango Annette Grace

Mulago National Referral HospitalKampala, Uganda
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Grace, Nakalyango Annette
  

Clinical Research

Open Access | Jun 28, 2018
Evaluation of a shortened course of tranexamic acid for patients with inherited bleeding disorders following dental procedures
Allison Greig

Allison Greig

Centre for Haemostasis and Thrombosis – Haemophilia Centre, St George’s University Hospitals NHS Foundation TrustLondon, UK
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Greig, Allison
  
Open Access | Oct 18, 2018
Pain self-management experiences in haemophilia patients: a qualitative study
Masoume Rambod

Masoume Rambod

Community Based Psychiatric Care Research Center, Department of Medical Surgical, School of Nursing and Midwifery, Shiraz University of Medical SciencesShiraz, Iran
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Rambod, Masoume
, 
Farkondeh Sharif

Farkondeh Sharif

Community Based Psychiatric Care Research Center, Department of Mental Health and Psychiatric Nursing, School of Nursing and Midwifery, Shiraz University of Medical SciencesShiraz, Iran
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Sharif, Farkondeh
, 
Zahra Molazem

Zahra Molazem

Community Based Psychiatric Care Research Center, Department of Medical Surgical, School of Nursing and Midwifery, Shiraz University of Medical SciencesShiraz, Iran
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Molazem, Zahra
 and 
Kate Khair

Kate Khair

  • Clinical Academic Careers Fellow, Centre for Outcomes and Experience Research in Children's Health, Illness and Disability (ORCHID), Great Ormond Street Hospital for Children NHS Foundation TrustLondon, UK
  • Visiting Professor of Health and Social Care, London South Bank University.London, UK
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Khair, Kate
  
Open Access | Dec 14, 2018
Effects of top rope climbing therapy on joint health in adult haemophilia patients with severe arthropathies
Courtney Schroeder

Courtney Schroeder

Resident Physician, Hemophilia and Thrombosis Treatment Center, Department of Medicine, University of California San DiegoCalifornia, U.S.A
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Schroeder, Courtney
, 
Richard FW Barnes

Richard FW Barnes

Statistician, Hemophilia and Thrombosis Treatment Center, Department of Medicine, University of California San DiegoCalifornia, U.S.A
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Barnes, Richard FW
, 
Lena Volland

Lena Volland

Doctor of Physical Therapy, Hemophilia and Thrombosis Treatment Center, Department of Medicine, University of California San DiegoCalifornia, U.S.A
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Volland, Lena
, 
Sonha Nguyen

Sonha Nguyen

Medical Student, Hemophilia and Thrombosis Treatment Center, Department of Medicine, University of California San DiegoCalifornia, U.S.A
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Nguyen, Sonha
 and 
Annette von Drygalski

Annette von Drygalski

  • Associate Professor of Medicine and Director of the Hemophilia and Thrombosis Treatment Center, Department of Medicine, University of California San DiegoCalifornia, U.S.A
  • Department of Molecular Medicine, The Scripps Research InstituteLa Jolla, U.S.A
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von Drygalski, Annette
  

Clinical Practice

Open Access | Jun 28, 2018
Hepatitis C and bleeding disorders in Europe
Laura Savini

Laura Savini

European Haemophilia ConsortiumBrussels, Belgium
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Savini, Laura
, 
Radoslaw Kaczmarek

Radoslaw Kaczmarek

  • European Haemophilia ConsortiumBrussels, Belgium
  • Laboratory of Glycobiology, Hirszfeld Institute of Immunology and Experimental Therapy, Polish Academy of SciencesWrocław, Poland
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Kaczmarek, Radoslaw
, 
Declan Noone

Declan Noone

European Haemophilia ConsortiumBrussels, Belgium
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Noone, Declan
, 
Paul Giangrande

Paul Giangrande

European Haemophilia ConsortiumBrussels, Belgium
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Giangrande, Paul
, 
Geoffrey Dusheiko

Geoffrey Dusheiko

Institute of Liver and Digestive Health, University College London; Kings College Hospital and Royal Free HospitalLondon, UK
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Dusheiko, Geoffrey
 and 
Brian O’Mahony

Brian O’Mahony

European Haemophilia ConsortiumBrussels, Belgium
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O’Mahony, Brian
  
Open Access | Jan 18, 2019
Guidelines for the management of haemophilia in Egypt
Galila Mokhtar

Galila Mokhtar

Professor of Paediatrics, Head of the Paediatric Department and Head of Paediatric Hemato-Oncology Unit, Ain Shams University, Cairo, EgyptityCairo, Egypt
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Mokhtar, Galila
, 
Amal El-Beshlawy

Amal El-Beshlawy

Senior Professor of Paediatric Haematology, Cairo University Paediatric HospitalCairo, Egypt
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El-Beshlawy, Amal
, 
Mohssen El Alfy

Mohssen El Alfy

  • Professor of Paediatric Haematology and Chairman of the Paediatric Department, Ain Shams UniversityCairo, Egypt
  • President of the Egyptian Society of Paediatric Haematology-OncologyCairo, Egypt
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El Alfy, Mohssen
, 
Magdy El Ekiaby

Magdy El Ekiaby

Senior Consultant Haematologist and Medical Director, Shabrawishi Hospital Hemophilia Treatment CenterCairo, Egypt
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El Ekiaby, Magdy
, 
Naglaa Omar

Naglaa Omar

  • Consultant in Paediatric Haematology, Cairo UniversityCairo, Egypt
  • Head of the Haematology Committee, 6th December Health Insurance HospitalCairo, Egypt
  • Consultant in Paediatric Haematology, Egyptian Red CrescentGiza, Egypt
  • Board member of Egyptian Thalassemia Association (ETA)Cairo, Egypt
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Omar, Naglaa
, 
Khaled Abd El-Azim Eid

Khaled Abd El-Azim Eid

  • Consultant in Paediatric Haematology Cairo UniversityCairo, Egypt
  • Head of the Haematology Unit, Benha Children’s HospitalBanha, Egypt
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Abd El-Azim Eid, Khaled
, 
Hoda Hassab

Hoda Hassab

Professor of Paediatrics (Paediatric Haematology/ Oncology), Faculty of Medicine, Alexandria UniversityAlexandria, Egypt
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Hassab, Hoda
, 
Osama El Safy

Osama El Safy

  • Professor of Paediatrics, Haematology and Oncology, Paediatric Department, Zagazig UniversityZagazig, Egypt
  • Head of the Paediatric Haematology and Oncology Unit, Zagazig Health Insurance HospitalZagazig, Egypt
  • Director of Zagazig University Thalassemia Association (ZUTA)Zagazig, Egypt
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El Safy, Osama
, 
Ahmed Mansour

Ahmed Mansour

Professor of Paediatrics (Haematology and Oncology) and Head of the Haematology and Oncology Unit, Faculty of Medicine, Mansoura UniversityMansoura, Egypt
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Mansour, Ahmed
, 
Rasha El Ashry

Rasha El Ashry

Professor of Paediatrics (Haematology, Oncology and Bone Marrow Transplantation), Mansoura Children’s Hospital and Mansoura Oncology CentreMansoura, Egypt
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El Ashry, Rasha
, 
Naglaa Shaheen

Naglaa Shaheen

Consultant in Paediatrics and Genetic Blood Disorders and official spokesperson of the National Health Insurance OrganizationCairo, Egypt
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Shaheen, Naglaa
 and 
Azza Abdel Gawad

Azza Abdel Gawad

Professor of Paediatrics, Ain Shams UniversityCairo, Egypt
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Gawad, Azza Abdel
  
Open Access | Oct 18, 2018
Nurse-led telephone review service for mild inherited bleeding disorders improves attendance rates, frees hospital resources and is highly rated by patients
Sharon Alavian

Sharon Alavian

Hammersmith Hospital Haemophilia Centre, Imperial Healthcare NHS TrustLondon, UK
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Alavian, Sharon
, 
Wendy Hutchinson

Wendy Hutchinson

Hammersmith Hospital Haemophilia Centre, Imperial Healthcare NHS TrustLondon, UK
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Hutchinson, Wendy
, 
Abigail Morris

Abigail Morris

Haematology Day Unit, The Royal London Hospital Haemophilia Centre, Barts Health NHS TrustLondon, UK
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Morris, Abigail
, 
Heather Williams

Heather Williams

Haematology Day Unit, The Royal London Hospital Haemophilia Centre, Barts Health NHS TrustLondon, UK
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Williams, Heather
 and 
Debra Pollard

Debra Pollard

Katharine Dormandy Haemophilia & Thrombosis Centre, Royal Free NHS Foundation TrustLondon, UK
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Pollard, Debra
  
Open Access | Dec 14, 2018
Transforming Transition: enhancing practice in haemophilia
Sandra Dodgson

Sandra Dodgson

HaemnetLondon, UK
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Dodgson, Sandra
, 
Mike Holland

Mike Holland

HaemnetLondon, UK
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Holland, Mike
, 
Luke Pembroke

Luke Pembroke

HaemnetLondon, UK
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Pembroke, Luke
 and 
Kate Khair

Kate Khair

HaemnetLondon, UK
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Khair, Kate
  
Open Access | Dec 14, 2018
Young people’s experience of transition from paediatric to adult haemophilia care in the UK
Luke Pembroke

Luke Pembroke

HaemnetLondon, UK
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Pembroke, Luke
 and 
Sandra Dodgson

Sandra Dodgson

HaemnetLondon, UK
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Dodgson, Sandra
  
Open Access | Dec 14, 2018
You think you know the patient inside-out. But do you know the outside-in?
Emily South

Emily South

The Planning ShopLondon, UK
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South, Emily
 and 
Kate Khair

Kate Khair

The Centre for Outcome and Experience Research in Childhood health, Illness and Disability (ORCHID), Great Ormond Street Hospital for ChildrenLondon, UK
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Khair, Kate
  

Community Focus

Open Access | Dec 21, 2018
“Ask what can you do instead of thinking about what you can’t” Profile: Clive Smith
Steve Chaplin

Steve Chaplin

Medical writerHaemnet, UK
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Chaplin, Steve
  

Evidence Review

Open Access | Jan 18, 2019
Prevalence, pattern and clinical implications of transfusion transmissible viral infections among paediatric haemophiliacs in northern Nigeria
Sagir G. Ahmed

Sagir G. Ahmed

Department of Haematology, Aminu Kano Teaching HospitalKano, Nigeria
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Ahmed, Sagir G.
, 
Umma A. Ibrahim

Umma A. Ibrahim

Department of Paediatrics, Aminu Kano Teaching HospitalKano, Nigeria
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Ibrahim, Umma A.
 and 
Modu B. Kagu

Modu B. Kagu

Department of Haematology, University of Maiduguri Teaching HospitalMaiduguri, Nigeria
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Kagu, Modu B.
  

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Language:
English
Publication timeframe:
1 times per year
Journal Subjects:
Medicine, Basic Medical Science, Basic Medical Science, other, Clinical Medicine, Clinical Medicine, other, Pharmacy, Pharmacology
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