21 Articles
Community Focus
Accès libre | 09 mars 2022
New challenges for an expanding generation of older persons with haemophilia
, , , , et Daniel P Hart
The Royal London Hospital Haemophilia Centre, Barts and the London School of Medicine and Dentistry, QMULUK
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Systems Change
Accès libre | 09 mars 2022
Key challenges for patient registries – A report from the 1st workshop of the EHC Think Tank Workstream on Registries
, , Naja Skouw-Rasmussen
European Haemophilia ConsortiumBrussels, Belgium
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et Accès libre | 29 mars 2022
Key challenges for hub and spoke models of care – A report from the 1st workshop of the EHC Think Tank on Hub and Spoke Treatment Models
, et Naja Skouw-Rasmussen
European Haemophilia ConsortiumBrussels, Belgium
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Accès libre | 29 mars 2022
Patient agency: key questions and challenges – A report from the 1st workshop of the EHC Think Tank Workstream on Patient Agency
, et Naja Skouw-Rasmussen
European Haemophilia ConsortiumBrussels, Belgium
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Case Study
Accès libre | 29 mars 2022
Osseous bilateral pseudotumour of the thumb in severe haemophilia A – A case report
Prakas K Mandal
Department of Haematology, NRS Medical CollegeKolkata, India
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, Rishu Vidhrati
Department of Haematology, NRS Medical CollegeKolkata, India
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et Debasis Gantait
Department of Haematology, NRS Medical CollegeKolkata, India
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Accès libre | 20 mai 2022
Treatment of a patient with severe haemophilia A presenting with left extra pleural haematoma and diagnosed with inhibitors – case report
, , et
, et Accès libre | 04 juil. 2022
“I didn’t know women could have haemophilia”: A qualitative case study
Simon Fletcher
Oxford University Hospitals NHS Foundation TrustOxford, UK
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Clinical Viewpoint
Accès libre | 08 avr. 2022
Development of decision-making considerations to support equitable patient selection in paediatric haemophilia trials
Anne Fu
Hamilton Health Sciences High School Research Bursary Student, Hamilton Health SciencesHamilton, Canada
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, Karen Strike
School of Rehabilitation Science, Faculty of Health Sciences, McMaster University, Hamilton Niagara Regional Hemophilia Program, McMaster Children's Hospital, Hamilton Health SciencesHamilton,
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, , Linda Waterhouse
Hamilton Niagara Regional Hemophilia Program, McMaster Children's Hospital, Hamilton Health SciencesHamilton, Canada
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, Kay Decker
Hamilton Niagara Regional Hemophilia Program, McMaster Children's Hospital, Hamilton Health SciencesHamilton, Canada
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, et Anthony K C Chan
Hamilton Niagara Regional Hemophilia Program, McMaster Children's Hospital, Hamilton Health Sciences, Department of Pediatrics, McMaster University, Department of Paediatrics and Adolescent Medicine, The University of Hong KongHamilton,
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Evidence Review
Accès libre | 20 mai 2022
Discrete choice experiments: An overview of experience to date in haemophilia
John Spoors
London School of Hygiene and Tropical Medicine, NHS England and NHS Improvement Medicines Analysis TeamLondon,
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, Alec Miners
London School of Hygiene and Tropical MedicineLondon, UK
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et John Cairns
London School of Hygiene and Tropical MedicineLondon, UK
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Clinical Practice
Accès libre | 20 mai 2022
Point of care ultrasonography in patients with haemophilia and acute haemarthrosis: a physiotherapist and sonographer inter-professional agreement pilot study
Karen Strike
School of Rehabilitation Science, Faculty of Health Science, McMaster UniversityHamilton, Canada
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, Anthony KC Chan
Department of Pediatrics, McMaster UniversityHamilton, Canada
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, Monica R Maly
Department of Kinesiology, Faculty of Health, University of WaterlooWaterloo, Canada
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, Nina Stein
Department of Radiology, McMaster UniversityHamilton, Canada
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, Lynne Farrell
Diagnostic Imaging Department, McMaster Children's Hospital, Hamilton Health SciencesHamilton, Canada
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et Patricia Solomon
School of Rehabilitation Science, Faculty of Health Science, McMaster UniversityHamilton, Canada
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Accès libre | 03 janv. 2023
The journey of gene therapy in haemophilia – putting the patient at the centre of the hub and spoke model
, , , Flora Peyvandi
University of Milan, IRCCS Maggiore HospitalMilan,
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, , et Short Report
Accès libre | 20 mai 2022
Processes and experiences of satellite haemophilia clinic set-ups in Uganda – a short report
, , et Clinical Research
Accès libre | 28 sept. 2022
Comparison of perioperative practices for placement of central venous access devices (CVAD) in children with haemophilia
Celia Kwan
Dept of Pediatrics, McMaster UniversityHamilton, Canada
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, Anthony KC Chan
Dept of Pediatrics, McMaster University, Hamilton Niagara Regional Hemophilia Program, McMaster Children's Hospital, Hamilton Health Sciences, Dept of Paediatrics and Adolescent Medicine, The University of Hong KongHamilton,
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, Pei Lin Koh
Khoo Teck Puat-National University Children's Medical Institute, National University Health System, Dept of Paediatrics, Yong Loo Lin School of Medicine, National University of Singapore
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, Nur Insyirah Abdul Kadir
Children's Blood and Cancer Centre, KK Women's and Children's HospitalSingapore
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, Kay Decker
Hamilton Niagara Regional Hemophilia Program, McMaster Children's Hospital, Hamilton Health SciencesHamilton, Canada
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, Chiew Ying Lim
Children's Blood and Cancer Centre, KK Women's and Children's HospitalSingapore
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et Joyce Ching Mei Lam
Children's Blood and Cancer Centre, KK Women's and Children's HospitalSingapore
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Accès libre | 08 oct. 2022
Comparative evaluation and preference of MixPro® versus Mix2Vial® reconstitution devices among people with haemophilia and caregivers
, , et
Accès libre | 03 janv. 2023
Designing ATHN 7: Safety, effectiveness and practice of treatment of people with haemophilia in the United States through a natural history cohort study
Tyler W. Buckner
Hemophilia and Thrombosis Center, University of Colorado School of MedicineAurora, United States
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, , , , et Michael Recht
American Thrombosis and Hemostasis NetworkRochester, United States
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Women & Bleeding Disorders
Accès libre | 26 nov. 2022
The Second European Conference on Women and Bleeding Disorders, Basel, Switzerland, 10–12 May 2022
Naja Skouw-Rasmussen
European Haemophilia ConsortiumBrussels, Belgium
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, et Accès libre | 26 nov. 2022
Monitoring to improve quality of life in women with bleeding disorders
et Roseline d’Oiron
APHP. Université Paris-Saclay, Hôpital BicêtreParis, France
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Accès libre | 26 nov. 2022
Ageing and women with bleeding disorders
Sheila Radhakrishnan
Royal Free London NHS Foundation TrustLondon, UK
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et Roseline d’Oiron
APHP. Université Paris-Saclay, Hôpital BicêtreParis, France
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Accès libre | 26 nov. 2022
Focus on musculoskeletal health in women with bleeding disorders
et Laurent Frenzel
Hôpital universitaire Necker-Enfants maladiesParis, France
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Accès libre | 26 nov. 2022
The Cinderella Study: women's lived experience of bleeding disorders – CSL Behring Symposium
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