
21 Artikel
Community Focus
New challenges for an expanding generation of older persons with haemophilia
Systems Change
Key challenges for patient registries – A report from the 1st workshop of the EHC Think Tank Workstream on Registries
Key challenges for hub and spoke models of care – A report from the 1st workshop of the EHC Think Tank on Hub and Spoke Treatment Models
Patient agency: key questions and challenges – A report from the 1st workshop of the EHC Think Tank Workstream on Patient Agency
Case Study
Osseous bilateral pseudotumour of the thumb in severe haemophilia A – A case report
Treatment of a patient with severe haemophilia A presenting with left extra pleural haematoma and diagnosed with inhibitors – case report
“I didn’t know women could have haemophilia”: A qualitative case study
Clinical Viewpoint
Development of decision-making considerations to support equitable patient selection in paediatric haemophilia trials
Evidence Review
Discrete choice experiments: An overview of experience to date in haemophilia
Clinical Practice
Point of care ultrasonography in patients with haemophilia and acute haemarthrosis: a physiotherapist and sonographer inter-professional agreement pilot study
The journey of gene therapy in haemophilia – putting the patient at the centre of the hub and spoke model
Short Report
Processes and experiences of satellite haemophilia clinic set-ups in Uganda – a short report
Clinical Research
Comparison of perioperative practices for placement of central venous access devices (CVAD) in children with haemophilia
Comparative evaluation and preference of MixPro® versus Mix2Vial® reconstitution devices among people with haemophilia and caregivers
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Designing ATHN 7: Safety, effectiveness and practice of treatment of people with haemophilia in the United States through a natural history cohort study
Women & Bleeding Disorders
The Second European Conference on Women and Bleeding Disorders, Basel, Switzerland, 10–12 May 2022
Monitoring to improve quality of life in women with bleeding disorders
Focus on musculoskeletal health in women with bleeding disorders
The Cinderella Study: women's lived experience of bleeding disorders – CSL Behring Symposium
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