The Journal of Haemophilia Practice

Community Focus

Accès libre | 19 mars 2025

“I’d go on a hike with my kids… that would make me feel so happy.” Recognising what people with haemophilia B identify as meaningful when considering personal goals and the potential for gene therapy

Kate Khair

Kate Khair

Haemnet LtdLondon, UK

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Khair, Kate

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Ranjit Nagra

Ranjit Nagra

Pfizer LtdSurrey, UK

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Nagra, Ranjit

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Richard Gorman

Richard Gorman

Brighton and Sussex Medical School, University of SussexUK

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Gorman, Richard

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Simon Fletcher

Simon Fletcher

University of Oxford, Haemnet LtdOxford,

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Fletcher, Simon

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Kathryn Jenner

Kathryn Jenner

Haemnet LtdLondon, UK

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Jenner, Kathryn

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Joe Trim

Joe Trim

Pfizer LtdSurrey, UK

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Trim, Joe

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Shuk-Li Collings

Shuk-Li Collings

Pfizer LtdSurrey, UK

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Collings, Shuk-Li

  

Accès libre | 12 avr. 2025

Lessons from a qualitative study of treatment experiences and perceptions in people with haemophilia in France

Sabine-Marie Castet

Sabine-Marie Castet

Haemophilia Treatment Centre (CRC MHC), Bordeaux Pellegrin University HospitalBordeaux, France

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Castet, Sabine-Marie

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Lola Sepot-Boucherit

Lola Sepot-Boucherit

Rare Disease, Novo NordiskParis, France

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Sepot-Boucherit, Lola

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Nicolas Beranger

Nicolas Beranger

Rare Disease, Novo NordiskParis, France

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Beranger, Nicolas

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Stephanie Delienne

Stephanie Delienne

Dijon Haemophilia Treatment Centre, French Federation of Haemophilia and Haemorrhagic Diseases Nurses (FIDEL’HEM)Dijon, France

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Delienne, Stephanie

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Valérie Chamouard

Valérie Chamouard

French Reference Centre on Haemophilia, Haemophilia Centre, Hospices Civils de Lyon, University Hospital of Lyon 1Lyon, France

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Chamouard, Valérie

  

Clinical Research

Accès libre | 19 mars 2025

Outcomes, challenges and prospects of emicizumab prophylaxis in Sub-Saharan Africa – Insights from the Tanzanian experience

Rebbecca Wughanga Mwakichako

Rebbecca Wughanga Mwakichako

Muhimbili University of Health and Allied SciencesDar es Salaam, Tanzania

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Mwakichako, Rebbecca Wughanga

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Rajabu Hussein Mnkugwe

Rajabu Hussein Mnkugwe

Muhimbili University of Health and Allied SciencesDar es Salaam, Tanzania

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Mnkugwe, Rajabu Hussein

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Clara Chamba

Clara Chamba

Muhimbili University of Health and Allied SciencesDar es Salaam, Tanzania

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Chamba, Clara

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Peter Kunambi

Peter Kunambi

Muhimbili University of Health and Allied SciencesDar es Salaam, Tanzania

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Kunambi, Peter

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Martha Bruckman

Martha Bruckman

Muhimbili University of Health and Allied SciencesDar es Salaam, Tanzania

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Bruckman, Martha

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Anna Schuh

Anna Schuh

Muhimbili University of Health and Allied SciencesDar es Salaam, Tanzania

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Schuh, Anna

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Michelle Munroe

Michelle Munroe

Muhimbili University of Health and Allied SciencesDar es Salaam, Tanzania

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Munroe, Michelle

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Gladys Kaaya

Gladys Kaaya

Muhimbili University of Health and Allied SciencesDar es Salaam, Tanzania

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Kaaya, Gladys

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Mwashungi Ally

Mwashungi Ally

Muhimbili University of Health and Allied SciencesDar es Salaam, Tanzania

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Ally, Mwashungi

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Ahlam Nasser

Ahlam Nasser

Muhimbili University of Health and Allied SciencesDar es Salaam, Tanzania

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Nasser, Ahlam

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William Mawala

William Mawala

Muhimbili University of Health and Allied SciencesDar es Salaam, Tanzania

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Mawala, William

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Magdalena Lyimo

Magdalena Lyimo

Muhimbili University of Health and Allied SciencesDar es Salaam, Tanzania

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Lyimo, Magdalena

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Johnny Mahlangu

Johnny Mahlangu

University of the Witwatersrand JohannesburgJohannesburg, South Africa

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Mahlangu, Johnny

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Stella Rwezaula

Stella Rwezaula

Muhimbili University of Health and Allied SciencesDar es Salaam, Tanzania

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Rwezaula, Stella

  

Accès libre | 19 mars 2025

Clinical profile and outcome of children with haemophilia A: The Royal Hospital, Oman’s experience

Anood AlRawahi

Anood AlRawahi

Pediatrics Program, Oman Medical Speciality BoardMuscat, Oman

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AlRawahi, Anood

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Ibrahim AlGaithi

Ibrahim AlGaithi

Consultant, Department of Pediatric Hematology/Oncology, Royal Hospital, Ministry of HealthMuscat, Oman

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AlGaithi, Ibrahim

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Fatma Al Riyami

Fatma Al Riyami

Medical Officer, Ministry of HealthMuscat, Oman

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Al Riyami, Fatma

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Maather Al Abri

Maather Al Abri

General Surgery Program, Oman Medical Specialty BoardMuscat, Oman

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Al Abri, Maather

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Hajer Al Shukaili

Hajer Al Shukaili

General Foundation Program, Oman Medical Specialty BoardMuscat, Oman

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Al Shukaili, Hajer

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Abdulhakim Al Rawahi

Abdulhakim Al Rawahi

Head of Research, Oman Medical Specialty BoardMuscat, Oman

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Al Rawahi, Abdulhakim

  

Accès libre | 21 mars 2025

Exploring the psychosocial status and lived experiences of haemophilia carriers: a comprehensive mixed methods study

S Badagabettu

S Badagabettu

Manipal College of Nursing, Manipal Academy of Higher EducationManipal, India

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Badagabettu, S

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A Kurien

A Kurien

Manipal University College MalaysiaBukit Baru, Malaysia

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Kurien, A

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V Lakshmi

V Lakshmi

Prasanna School of Public Health, Manipal Academy of Higher EducationManipal, India

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Lakshmi, V

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JA Noronha

JA Noronha

Manipal College of Nursing, Manipal Academy of Higher EducationManipal, India

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Noronha, JA

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LS George

LS George

Manipal College of Nursing, Manipal Academy of Higher EducationManipal, India

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George, LS

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S Govindan

S Govindan

Dept of Basic Medical Sciences, Manipal Academy of Higher EducationManipal, India

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Govindan, S

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DD Shroff

DD Shroff

Melaka Manipal Medical College (Manipal Campus), Manipal Academy of Higher EducationManipal, India

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Shroff, DD

  

Accès libre | 07 juin 2025

Incidence and prevention of post-immunisation bleeding complications in people with haemophilia at a treatment centre in India

Tenzin Zompa

Tenzin Zompa

Manipal College of Nursing, Manipal Academy of Higher EducationManipal, India

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Zompa, Tenzin

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Sandra Mary Abraham

Sandra Mary Abraham

Manipal College of Nursing, Manipal Academy of Higher EducationManipal, India

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Abraham, Sandra Mary

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Tenzin Tseten

Tenzin Tseten

Manipal College of Nursing, Manipal Academy of Higher EducationManipal, India

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Tseten, Tenzin

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Tenzin Palkyi

Tenzin Palkyi

Manipal College of Nursing, Manipal Academy of Higher EducationManipal, India

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Palkyi, Tenzin

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Alfiya Muhammed

Alfiya Muhammed

Manipal College of Nursing, Manipal Academy of Higher EducationManipal, India

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Muhammed, Alfiya

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MV Archana

MV Archana

Division of Pediatric Hematology and Oncology, Kasturba Medical College, Manipal Academy of Higher EducationManipal, India

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Archana, MV

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Raghavendra Nayak

Raghavendra Nayak

Department of Medical Surgical Nursing, Manipal College of Nursing, Manipal Academy of Higher EducationManipal, India

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Nayak, Raghavendra

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Sulochana Badagabettu

Sulochana Badagabettu

Department of Fundamentals of Nursing, Manipal College of Nursing, Manipal Academy of Higher EducationManipal, India

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Badagabettu, Sulochana

  

Accès libre | 10 juin 2025

Occult hepatitis B virus infection in people with haemophilia in South Africa

O Kgotleng

O Kgotleng

Department of Haematology, National Health Laboratory Service, University of PretoriaSouth Africa

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Kgotleng, O

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N Msomi

N Msomi

Discipline of Virology, National Health Laboratory Service, University of KwaZulu NatalSouth Africa

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Msomi, N

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LD Mthethwa

LD Mthethwa

Discipline of Virology, National Health Laboratory Service, University of KwaZulu NatalSouth Africa

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Mthethwa, LD

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J Potgieter

J Potgieter

Department of Haematology, National Health Laboratory Service, University of PretoriaSouth Africa

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Potgieter, J

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JN Mahlangu

JN Mahlangu

Department of Molecular Medicine and Haematology, Faculty of Health Science, National Health Laboratory, University of WitwatersrandSouth Africa

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Mahlangu, JN

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M Karodia

M Karodia

Division of Clinical Haematology, Gauteng Department of Health, University of Sefako MakgathoSouth Africa

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Karodia, M

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NL Ntabeni

NL Ntabeni

Department of Haematology, National Health Laboratory Service, University of PretoriaSouth Africa

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Ntabeni, NL

  

Case Study

Accès libre | 19 mars 2025

Severe haemophilia A with haemarthrosis improved on emicizumab: A case report

Mustafa Wasifuddin

Mustafa Wasifuddin

Department of Medicine, Brookdale University Hospital and Medical CenterBrooklyn, USA

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Wasifuddin, Mustafa

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Ibrahim Al-Gaithi

Ibrahim Al-Gaithi

Department of Pediatric Hematology/Oncology, Royal Hospital, Ministry of HealthMuscat, Oman

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Al-Gaithi, Ibrahim

  

Accès libre | 16 août 2025

Acquired haemophilia A: Balancing on the edge of haemostasis – Case series

Marieke J A Verhagen

Marieke J A Verhagen

Department of Hematology, Radboud University Medical Center, Haemophilia Treatment Center Nijmegen-Eindhoven-Maastricht, Laboratory of Hematology, Radboud University Medical CenterNijmegen,

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Verhagen, Marieke J A

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Sanna R Rijpma

Sanna R Rijpma

Haemophilia Treatment Center Nijmegen-Eindhoven-Maastricht, Laboratory of Hematology, Radboud University Medical CenterNijmegen,

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Rijpma, Sanna R

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Saskia E M Schols

Saskia E M Schols

Department of Hematology, Radboud University Medical Center, Haemophilia Treatment Center Nijmegen-Eindhoven-MaastrichtNijmegen,

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Schols, Saskia E M

  

Clinical Practice

Accès libre | 21 juil. 2025

The impact of home therapy interventions on treatment adherence and patient independence in haemophilia management in Assam, India

Anupam Dutta

Anupam Dutta

Assam Medical College and HospitalDibrugarh, India

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Dutta, Anupam

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Ajun Ngongpa

Ajun Ngongpa

Assam Medical College and HospitalDibrugarh, India

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Ngongpa, Ajun

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Papari Gogoi

Papari Gogoi

Assam Medical College and HospitalDibrugarh, India

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Gogoi, Papari