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The Journal of Haemophilia Practice
Volume 11 (2024): Issue 1 (January 2024)
Accès libre
The Journal of Haemophilia Practice
Volume 11 (2024): Issue 1 (January 2024)
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13 Articles
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System Change
Accès libre | 26 févr. 2024
System change in practice: A report from the EHC Think Tank workstreams on Registries and Patient Agency
Zita Gacser
Zita Gacser
et
Naja Skouw-Rasmussen
Naja Skouw-Rasmussen
Nurse Focus
Accès libre | 26 févr. 2024
Living, Caring, Learning - Thinking outside the box to solve care challenges in a rare blood disorder
Sandra Hibner
Sandra Hibner
Accès libre | 26 févr. 2024
Living, Caring, Learning - Building family relationships in haemophilia care
Robyn Shoemark
Robyn Shoemark
Accès libre | 26 févr. 2024
Living, Caring, Learning - Changing mindsets and enabling goals for people with haemophilia
Anne-Louise Cruickshank
Anne-Louise Cruickshank
Accès libre | 07 mai 2024
Living, Caring, Learning – Listening to patients with bleeding disorders and not being afraid to advocate
Michelle Witkop
Michelle Witkop
Accès libre | 07 mai 2024
Living, Caring, Learning – Collaborating across borders to support a haemophilia patient with a rare complication
Cyrus Githinji
Cyrus Githinji
Accès libre | 07 mai 2024
Living, Caring, Learning – Setting boundaries for the wellbeing of everyone in bleeding disorders care
Cathy Harrison
Cathy Harrison
Accès libre | 07 mai 2024
Living, Caring, Learning – The power of qualitative research in bleeding disorders care: One voice, from soloist to choir
Simon Fletcher
Simon Fletcher
Accès libre | 07 mai 2024
Editorial – Living, Caring, Learning: The nurse-patient relationship in bleeding disorders care
Clive Smith
Clive Smith
Clinical Research
Accès libre | 08 avr. 2024
Exploring patient and clinician perspectives on the benefits and risks of emerging therapies for the treatment of haemophilia: a qualitative study
John Spoors
John Spoors
,
Katherine Payne
Katherine Payne
,
Stuart Wright
Stuart Wright
,
Will Horsley
Will Horsley
,
Sadie Bell
Sadie Bell
et
John Cairns
John Cairns
Accès libre | 22 avr. 2024
Real-world clinical and psychosocial outcomes among people with mild or moderate haemophilia A treated on-demand in the Italian CHESS II cohort: a real-world data analysis
Giancarlo Castaman
Giancarlo Castaman
,
Maria Elisa Mancuso
Maria Elisa Mancuso
,
Matteo Nicola Dario Di Minno
Matteo Nicola Dario Di Minno
,
Luigi Sannino
Luigi Sannino
,
Rosaria Tempre
Rosaria Tempre
,
Sara Bendinelli
Sara Bendinelli
,
Tom Blenkiron
Tom Blenkiron
,
Tom Burke
Tom Burke
et
Enrico Ferri Grazzi
Enrico Ferri Grazzi
Clinical Practice
Accès libre | 08 avr. 2024
CATCH 2023 Meeting Summary: Collaborate & Address Treatment Challenges in Haemophilia
Gary Benson
Gary Benson
,
Nicola Curry
Nicola Curry
,
Simon Fletcher
Simon Fletcher
,
Will Gregory
Will Gregory
,
Cathy Harrison
Cathy Harrison
,
Mike Laffan
Mike Laffan
,
Gillian Lowe
Gillian Lowe
,
Kate Khair
Kate Khair
,
Susan Kirk
Susan Kirk
,
Paul McLaughlin
Paul McLaughlin
,
Charles Percy
Charles Percy
,
Denise Player
Denise Player
et
Sarah Whitaker
Sarah Whitaker
Accès libre | 18 avr. 2024
A multi-stakeholder collaborative approach to awareness, education and support needed in the haemophilia gene therapy patient journey – a report on insights from a European patient advisory board
Brian O’Mahony
Brian O’Mahony
,
Simon Fletcher
Simon Fletcher
,
Manuel Baarslag
Manuel Baarslag
,
Kate Khair
Kate Khair
,
Daan Breederveld
Daan Breederveld
,
Nathalie Jansen
Nathalie Jansen
,
Luke Pembroke
Luke Pembroke
,
Karen Pinachyan
Karen Pinachyan
et
Sujan Sivasubramaniyam
Sujan Sivasubramaniyam
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Édition 11 (2024)
Edition 1 (Janvier 2024)
Édition 10 (2023)
Edition 1 (Janvier 2023)
Édition 9 (2022)
Edition 1 (Janvier 2022)
Édition 8 (2021)
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