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Accesso libero

The Journal of Haemophilia Practice

Volume 9 (2022): Numero 1 (Gennaio 2022)

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21 Articoli

Community Focus

Accesso libero | 09 mar 2022
New challenges for an expanding generation of older persons with haemophilia
, , , ,  e   

Systems Change

Accesso libero | 09 mar 2022
Key challenges for patient registries – A report from the 1st workshop of the EHC Think Tank Workstream on Registries
, ,  e   
Accesso libero | 29 mar 2022
Key challenges for hub and spoke models of care – A report from the 1st workshop of the EHC Think Tank on Hub and Spoke Treatment Models
,  e   
Accesso libero | 29 mar 2022
Patient agency: key questions and challenges – A report from the 1st workshop of the EHC Think Tank Workstream on Patient Agency
,  e   

Case Study

Accesso libero | 29 mar 2022
Osseous bilateral pseudotumour of the thumb in severe haemophilia A – A case report
,  e   
Accesso libero | 20 mag 2022
Treatment of a patient with severe haemophilia A presenting with left extra pleural haematoma and diagnosed with inhibitors – case report
, ,  e   
Accesso libero | 04 lug 2022
“I didn’t know women could have haemophilia”: A qualitative case study
  

Clinical Viewpoint

Accesso libero | 08 apr 2022
Development of decision-making considerations to support equitable patient selection in paediatric haemophilia trials
, , , , ,  e   

Evidence Review

Accesso libero | 20 mag 2022
Discrete choice experiments: An overview of experience to date in haemophilia
,  e   

Clinical Practice

Accesso libero | 20 mag 2022
Point of care ultrasonography in patients with haemophilia and acute haemarthrosis: a physiotherapist and sonographer inter-professional agreement pilot study
, , , ,  e   
Accesso libero | 03 gen 2023
The journey of gene therapy in haemophilia – putting the patient at the centre of the hub and spoke model
, , , , ,  e   

Short Report

Accesso libero | 20 mag 2022
Processes and experiences of satellite haemophilia clinic set-ups in Uganda – a short report
, ,  e   

Clinical Research

Accesso libero | 28 set 2022
Comparison of perioperative practices for placement of central venous access devices (CVAD) in children with haemophilia
, , , , ,  e   
Accesso libero | 08 ott 2022
Comparative evaluation and preference of MixPro® versus Mix2Vial® reconstitution devices among people with haemophilia and caregivers
, ,  e   
Accesso libero | 03 gen 2023
Designing ATHN 7: Safety, effectiveness and practice of treatment of people with haemophilia in the United States through a natural history cohort study
, , , ,  e   

Women & Bleeding Disorders

Accesso libero | 26 nov 2022
The Second European Conference on Women and Bleeding Disorders, Basel, Switzerland, 10–12 May 2022
,  e   
Accesso libero | 26 nov 2022
Monitoring to improve quality of life in women with bleeding disorders
 e   
Accesso libero | 26 nov 2022
Ageing and women with bleeding disorders
 e   
Accesso libero | 26 nov 2022
Focus on musculoskeletal health in women with bleeding disorders
 e   
Accesso libero | 26 nov 2022
The Cinderella Study: women's lived experience of bleeding disorders – CSL Behring Symposium
 e   
Accesso libero | 26 nov 2022
Advocacy worldwide for women with bleeding disorders
  

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