10 Artykułów
Community Focus
Otwarty dostęp | 19 mar 2025
“I’d go on a hike with my kids… that would make me feel so happy.” Recognising what people with haemophilia B identify as meaningful when considering personal goals and the potential for gene therapy
, , Richard Gorman
Brighton and Sussex Medical School, University of SussexUK
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, , , oraz Otwarty dostęp | 12 kwi 2025
Lessons from a qualitative study of treatment experiences and perceptions in people with haemophilia in France
Sabine-Marie Castet
Haemophilia Treatment Centre (CRC MHC), Bordeaux Pellegrin University HospitalBordeaux, France
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, , , oraz Valérie Chamouard
French Reference Centre on Haemophilia, Haemophilia Centre, Hospices Civils de Lyon, University Hospital of Lyon 1Lyon, France
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Clinical Research
Otwarty dostęp | 19 mar 2025
Outcomes, challenges and prospects of emicizumab prophylaxis in Sub-Saharan Africa – Insights from the Tanzanian experience
Rebbecca Wughanga Mwakichako
Muhimbili University of Health and Allied SciencesDar es Salaam, Tanzania
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, Rajabu Hussein Mnkugwe
Muhimbili University of Health and Allied SciencesDar es Salaam, Tanzania
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, Clara Chamba
Muhimbili University of Health and Allied SciencesDar es Salaam, Tanzania
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, Peter Kunambi
Muhimbili University of Health and Allied SciencesDar es Salaam, Tanzania
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, , , Michelle Munroe
Muhimbili University of Health and Allied SciencesDar es Salaam, Tanzania
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, Gladys Kaaya
Muhimbili University of Health and Allied SciencesDar es Salaam, Tanzania
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, Mwashungi Ally
Muhimbili University of Health and Allied SciencesDar es Salaam, Tanzania
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, Ahlam Nasser
Muhimbili University of Health and Allied SciencesDar es Salaam, Tanzania
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, William Mawala
Muhimbili University of Health and Allied SciencesDar es Salaam, Tanzania
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, Magdalena Lyimo
Muhimbili University of Health and Allied SciencesDar es Salaam, Tanzania
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, Johnny Mahlangu
University of the Witwatersrand JohannesburgJohannesburg, South Africa
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oraz Stella Rwezaula
Muhimbili University of Health and Allied SciencesDar es Salaam, Tanzania
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Otwarty dostęp | 19 mar 2025
Clinical profile and outcome of children with haemophilia A: The Royal Hospital, Oman’s experience
Anood AlRawahi
Pediatrics Program, Oman Medical Speciality BoardMuscat, Oman
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, Ibrahim AlGaithi
Consultant, Department of Pediatric Hematology/Oncology, Royal Hospital, Ministry of HealthMuscat, Oman
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, , Maather Al Abri
General Surgery Program, Oman Medical Specialty BoardMuscat, Oman
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, Hajer Al Shukaili
General Foundation Program, Oman Medical Specialty BoardMuscat, Oman
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oraz Abdulhakim Al Rawahi
Head of Research, Oman Medical Specialty BoardMuscat, Oman
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Otwarty dostęp | 21 mar 2025
Exploring the psychosocial status and lived experiences of haemophilia carriers: a comprehensive mixed methods study
S Badagabettu
Manipal College of Nursing, Manipal Academy of Higher EducationManipal, India
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, , V Lakshmi
Prasanna School of Public Health, Manipal Academy of Higher EducationManipal, India
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, JA Noronha
Manipal College of Nursing, Manipal Academy of Higher EducationManipal, India
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, LS George
Manipal College of Nursing, Manipal Academy of Higher EducationManipal, India
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, S Govindan
Dept of Basic Medical Sciences, Manipal Academy of Higher EducationManipal, India
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oraz DD Shroff
Melaka Manipal Medical College (Manipal Campus), Manipal Academy of Higher EducationManipal, India
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Otwarty dostęp | 07 cze 2025
Incidence and prevention of post-immunisation bleeding complications in people with haemophilia at a treatment centre in India
Tenzin Zompa
Manipal College of Nursing, Manipal Academy of Higher EducationManipal, India
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, Sandra Mary Abraham
Manipal College of Nursing, Manipal Academy of Higher EducationManipal, India
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, Tenzin Tseten
Manipal College of Nursing, Manipal Academy of Higher EducationManipal, India
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, Tenzin Palkyi
Manipal College of Nursing, Manipal Academy of Higher EducationManipal, India
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, Alfiya Muhammed
Manipal College of Nursing, Manipal Academy of Higher EducationManipal, India
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, MV Archana
Division of Pediatric Hematology and Oncology, Kasturba Medical College, Manipal Academy of Higher EducationManipal, India
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, Raghavendra Nayak
Department of Medical Surgical Nursing, Manipal College of Nursing, Manipal Academy of Higher EducationManipal, India
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oraz Sulochana Badagabettu
Department of Fundamentals of Nursing, Manipal College of Nursing, Manipal Academy of Higher EducationManipal, India
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Otwarty dostęp | 10 cze 2025
Occult hepatitis B virus infection in people with haemophilia in South Africa
O Kgotleng
Department of Haematology, National Health Laboratory Service, University of PretoriaSouth Africa
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, N Msomi
Discipline of Virology, National Health Laboratory Service, University of KwaZulu NatalSouth Africa
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, LD Mthethwa
Discipline of Virology, National Health Laboratory Service, University of KwaZulu NatalSouth Africa
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, J Potgieter
Department of Haematology, National Health Laboratory Service, University of PretoriaSouth Africa
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, JN Mahlangu
Department of Molecular Medicine and Haematology, Faculty of Health Science, National Health Laboratory, University of WitwatersrandSouth Africa
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, M Karodia
Division of Clinical Haematology, Gauteng Department of Health, University of Sefako MakgathoSouth Africa
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oraz NL Ntabeni
Department of Haematology, National Health Laboratory Service, University of PretoriaSouth Africa
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Case Study
Otwarty dostęp | 19 mar 2025
Severe haemophilia A with haemarthrosis improved on emicizumab: A case report
Mustafa Wasifuddin
Department of Medicine, Brookdale University Hospital and Medical CenterBrooklyn, USA
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oraz Ibrahim Al-Gaithi
Department of Pediatric Hematology/Oncology, Royal Hospital, Ministry of HealthMuscat, Oman
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Otwarty dostęp | 16 sie 2025
Acquired haemophilia A: Balancing on the edge of haemostasis – Case series
Marieke J A Verhagen
Department of Hematology, Radboud University Medical Center, Haemophilia Treatment Center Nijmegen-Eindhoven-Maastricht, Laboratory of Hematology, Radboud University Medical CenterNijmegen,
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, Sanna R Rijpma
Haemophilia Treatment Center Nijmegen-Eindhoven-Maastricht, Laboratory of Hematology, Radboud University Medical CenterNijmegen,
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oraz Saskia E M Schols
Department of Hematology, Radboud University Medical Center, Haemophilia Treatment Center Nijmegen-Eindhoven-MaastrichtNijmegen,
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Clinical Practice
Otwarty dostęp | 21 lip 2025
The impact of home therapy interventions on treatment adherence and patient independence in haemophilia management in Assam, India
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