13 Artikel
System Change
Uneingeschränkter Zugang | 26. Feb. 2024
System change in practice: A report from the EHC Think Tank workstreams on Registries and Patient Agency
und Nurse Focus
Uneingeschränkter Zugang | 26. Feb. 2024
Living, Caring, Learning - Thinking outside the box to solve care challenges in a rare blood disorder
Uneingeschränkter Zugang | 26. Feb. 2024
Living, Caring, Learning - Building family relationships in haemophilia care
Uneingeschränkter Zugang | 26. Feb. 2024
Living, Caring, Learning - Changing mindsets and enabling goals for people with haemophilia
Uneingeschränkter Zugang | 07. Mai 2024
Living, Caring, Learning – Listening to patients with bleeding disorders and not being afraid to advocate
Uneingeschränkter Zugang | 07. Mai 2024
Living, Caring, Learning – Collaborating across borders to support a haemophilia patient with a rare complication
Uneingeschränkter Zugang | 07. Mai 2024
Living, Caring, Learning – Setting boundaries for the wellbeing of everyone in bleeding disorders care
Uneingeschränkter Zugang | 07. Mai 2024
Living, Caring, Learning – The power of qualitative research in bleeding disorders care: One voice, from soloist to choir
Uneingeschränkter Zugang | 07. Mai 2024
Editorial – Living, Caring, Learning: The nurse-patient relationship in bleeding disorders care
Clinical Research
Uneingeschränkter Zugang | 08. Apr. 2024
Exploring patient and clinician perspectives on the benefits and risks of emerging therapies for the treatment of haemophilia: a qualitative study
, , , , und Uneingeschränkter Zugang | 22. Apr. 2024
Real-world clinical and psychosocial outcomes among people with mild or moderate haemophilia A treated on-demand in the Italian CHESS II cohort: a real-world data analysis
, , , , , , , und Clinical Practice
Uneingeschränkter Zugang | 08. Apr. 2024
CATCH 2023 Meeting Summary: Collaborate & Address Treatment Challenges in Haemophilia
, , , , , , , , , , , und Uneingeschränkter Zugang | 18. Apr. 2024
A multi-stakeholder collaborative approach to awareness, education and support needed in the haemophilia gene therapy patient journey – a report on insights from a European patient advisory board
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