Short- and longer-term goals for change – A report from the 2nd workshops of the EHC Think Tank Workstreams on Registries, the Hub and Spoke Model and Patient Agency

Bok, Amanda; Noone, Declan; Skouw-Rasmussen, Naja

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Short- and longer-term goals for change – A report from the 2nd workshops of the EHC Think Tank Workstreams on Registries, the Hub and Spoke Model and Patient Agency

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and

Skouw-Rasmussen, Naja

Feb 23, 2023

Short- and longer-term goals for change – A report from the 2nd workshops of the EHC Think Tank Workstreams on Registries, the Hub and Spoke Model and Patient Agency's Cover Image

The Journal of Haemophilia Practice

Volume 10 (2023): Issue 1 (January 2023)

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Article Category: Systems Change

Published Online: Feb 23, 2023

Page range: 1 - 10

DOI: https://doi.org/10.2478/jhp-2023-0001

Keywords
Bleeding disorders, Registries, Hub and spoke model, Patient agency, Mapping, Collaboration, Education, Organisational change, Governance

This work is licensed under the Creative Commons Attribution-NonCommercial-NoDerivatives 3.0 License.

The concept of a ‘guiding star’ and associated ‘near star’ milestones has been used to identify steps towards achieving long-term solutions to challenges identified in the EHC Think Tank Workstreams on Registries, the Hub and Spoke Model, and Patient Agency

Guiding star and near star aims for the EHC Think Tank Workstream on Registries

Guiding star and near star aims for the EHC Think Tank Workstream on the Hub and Spoke Model

Guiding star and near star aims for the EHC Think Tank Workstream on Patient Agency

Language:: English

Publication timeframe:: 1 times per year
Journal Subjects:: Medicine, Basic Medical Science, Basic Medical Science, other, Clinical Medicine, Clinical Medicine, other, Pharmacy, Pharmacology

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Short- and longer-term goals for change – A report from the 2nd workshops of the EHC Think Tank Workstreams on Registries, the Hub and Spoke Model and Patient Agency

Article Category: Systems Change

Published Online: Feb 23, 2023

Page range: 1 - 10

DOI: https://doi.org/10.2478/jhp-2023-0001

Keywords
Bleeding disorders, Registries, Hub and spoke model, Patient agency, Mapping, Collaboration, Education, Organisational change, Governance

© 2023 Amanda Bok et al., published by Sciendo

This work is licensed under the Creative Commons Attribution-NonCommercial-NoDerivatives 3.0 License.

Figure 1

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Short- and longer-term goals for change – A report from the 2nd workshops of the EHC Think Tank Workstreams on Registries, the Hub and Spoke Model and Patient Agency

Amanda Bok

Declan Noone

Naja Skouw-Rasmussen

Article Category: Systems Change

Published Online: Feb 23, 2023

Page range: 1 - 10

DOI: https://doi.org/10.2478/jhp-2023-0001

KeywordsBleeding disorders, Registries, Hub and spoke model, Patient agency, Mapping, Collaboration, Education, Organisational change, Governance

© 2023 Amanda Bok et al., published by Sciendo

This work is licensed under the Creative Commons Attribution-NonCommercial-NoDerivatives 3.0 License.

Figure 1

Figure 2

Figure 3

Keywords
Bleeding disorders, Registries, Hub and spoke model, Patient agency, Mapping, Collaboration, Education, Organisational change, Governance