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Short- and longer-term goals for change – A report from the 2nd workshops of the EHC Think Tank Workstreams on Registries, the Hub and Spoke Model and Patient Agency

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Feb 23, 2023

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Bok, Amanda ORCID Icon
European Haemophilia ConsortiumBrussels, Belgium
Noone, Declan ORCID Icon
European Haemophilia ConsortiumBrussels, Belgium
Skouw-Rasmussen, Naja ORCID Icon
European Haemophilia ConsortiumBrussels, Belgium