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Journals
The Journal of Haemophilia Practice
Volume 10 (2023): Issue 1 (January 2023)
Open Access
Short- and longer-term goals for change – A report from the 2nd workshops of the EHC Think Tank Workstreams on Registries, the Hub and Spoke Model and Patient Agency
Amanda Bok
Amanda Bok
,
Declan Noone
Declan Noone
and
Naja Skouw-Rasmussen
Naja Skouw-Rasmussen
| Feb 23, 2023
The Journal of Haemophilia Practice
Volume 10 (2023): Issue 1 (January 2023)
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Article Category:
Systems Change
Published Online:
Feb 23, 2023
Page range:
1 - 10
DOI:
https://doi.org/10.2478/jhp-2023-0001
Keywords
Bleeding disorders
,
Registries
,
Hub and spoke model
,
Patient agency
,
Mapping
,
Collaboration
,
Education
,
Organisational change
,
Governance
© 2023 Amanda Bok et al., published by Sciendo
This work is licensed under the Creative Commons Attribution-NonCommercial-NoDerivatives 3.0 License.