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The Journal of Haemophilia Practice

Tom 4 (2017): Zeszyt 1 (Styczeń 2017)

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13 Artykułów

VIEWPOINT

Otwarty dostęp | 14 mar 2018
Who should care for people with bleeding disorders?
Cathy Harrison

Cathy Harrison

Advanced Nurse Practitioner, Haemophilia and Thrombosis Sheffield Haemophilia and Thrombosis Centre RoyalHallamshire, United Kingdom of Great Britain and Northern Ireland
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Harrison, Cathy
  

PROFESSIONAL

Otwarty dostęp | 14 mar 2018
What is a nurse-led service? A discussion paper
Kate Khair

Kate Khair

Nurse Consultant, Haemophilia Centre, Great Ormond Street Hospital for Children NHS Trust,London, UK
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Khair, Kate
 oraz 
Steve Chaplin

Steve Chaplin

Medical writer,London, UK
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Chaplin, Steve
  
Otwarty dostęp | 14 mar 2018
US haemophilia centre nurses and advanced practice providers: Demographics, roles/responsibilities, training, educational barriers and employment benefits
Michelle L. Witkop

Michelle L. Witkop

Northern Regional Bleeding Disorders Center at Munson Medical Center, 1105 Sixth Street, Traverse City, MI 49684,Michigan, USA
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Witkop, Michelle L.
, 
Christine Guelcher

Christine Guelcher

Center for Cancer and Blood Disorders, Children’s National Health System, 111 Michigan Avenue, NW,Washington DC, USA
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Guelcher, Christine
, 
Margaret Hall

Margaret Hall

Northern Regional Bleeding Disorders Center at Munson Medical Center, 1105 Sixth Street, Traverse City, MI 49684,Michigan, USA
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Hall, Margaret
 oraz 
Jennifer Maahs

Jennifer Maahs

Indiana Hemophilia & Thrombosis Treatment Center, 8326 Naab Road,Indianapolis, USA
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Maahs, Jennifer
  
Otwarty dostęp | 14 mar 2018
Aspire. Empowering professionals to lead Haemophilia care
Sandra Dodgson

Sandra Dodgson

Haemnet,London, UK
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Dodgson, Sandra
, 
Jenny Bryan

Jenny Bryan

Medical Writer,London, UK
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Bryan, Jenny
, 
Simon Fletcher

Simon Fletcher

Lead Research Nurse, Oxford Haemophilia and Thrombosis Centre, Oxford University Hospitals NHS Foundation Trust, The Churchill Hospital,Oxford, UK
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Fletcher, Simon
, 
Cathy Harrison

Cathy Harrison

Haemophilia & Thrombosis CNS/ANP, Haemophilia & Thrombosis Centre, Royal Hallamshire Hospital, Glossop Road,Sheffield, UK
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Harrison, Cathy
, 
Clare Ibbs

Clare Ibbs

Paediatric Haemophilia Nurse Specialist, Arthur Bloom Haemophilia Centre, University Hospital of Wales, Heath Park,Cardiff, UK
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Ibbs, Clare
, 
April Jones

April Jones

Nurse Specialist Haemophilia, Newcastle upon Tyne Hospitals NHS Trust, Royal Victoria Infirmary, Queen Victoria Road,Newcastle upon Tyne, UK
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Jones, April
, 
Paul McLaughlin

Paul McLaughlin

Clinical Specialist Physiotherapist in Haemophilia, Royal Free London NHS Foundation Trust, Katharine Dormandy Haemophilia Centre and Thrombosis Unit, Pond Street,London, UK
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McLaughlin, Paul
, 
Gráinne O’Brien

Gráinne O’Brien

Clinical Psychologist, Haemophilia and Thrombosis Centre, Royal Infirmary of Edinburgh, Little France Crescent,Edinburgh, UK
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O’Brien, Gráinne
, 
Sharon Varney

Sharon Varney

Space for Learning, www.spaceforlearning.com,London, UK
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Varney, Sharon
, 
Anne Wareing

Anne Wareing

Clinical Nurse Specialist, Haematology, St George's University Hospitals NHS Foundation Trust,London, UK
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Wareing, Anne
 oraz 
Pamela Wick

Pamela Wick

Sister, Haemophilia & Thrombosis Centre, Glasgow Royal Infirmary, 84 Castle Street,Glasgow, UK
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Wick, Pamela
  

CASE REPORT

Otwarty dostęp | 14 mar 2018
Tightrope walking with Glanzmann’s disease
Greta Mulders

Greta Mulders

MD Department of Hematology, Erasmus University Medical Center, Hemophilia Treatment Center,Rotterdam, Netherlands
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Mulders, Greta
 oraz 
Johan Boender

Johan Boender

MD Department of Hematology, Erasmus University Medical Center, Hemophilia Treatment Center,Rotterdam, Netherlands
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Boender, Johan
  

CLINICAL REPORT

Otwarty dostęp | 14 mar 2018
Neonatal circumcision in patients with haemophilia is safe – a single centre experience
Assaf Arie Barg

Assaf Arie Barg

The Israeli National Hemophilia Center and Thrombosis Unit, Sheba Medical Center, Tel Hashomer, and Sackler School of Medicine,Tel Aviv, Israel
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Barg, Assaf Arie
, 
Sarina Levy Mendelovich

Sarina Levy Mendelovich

The Israeli National Hemophilia Center and Thrombosis Unit, Sheba Medical Center, Tel Hashomer, and Sackler School of Medicine,Tel Aviv, Israel
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Mendelovich, Sarina Levy
, 
Shadan Lalezari

Shadan Lalezari

The Israeli National Hemophilia Center and Thrombosis Unit, Sheba Medical Center, Tel Hashomer, and Sackler School of Medicine,Tel Aviv, Israel
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Lalezari, Shadan
, 
Shirley Azar Aviv

Shirley Azar Aviv

The Israeli National Hemophilia Center and Thrombosis Unit, Sheba Medical Center, Tel Hashomer, and Sackler School of Medicine,Tel Aviv, Israel
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Aviv, Shirley Azar
, 
Dalia Bashari

Dalia Bashari

The Israeli National Hemophilia Center and Thrombosis Unit, Sheba Medical Center,Tel Hashomer, Israel
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Bashari, Dalia
 oraz 
Gili Kenet

Gili Kenet

Sackler School of Medicine, Tel Aviv University, Israel, and The Israeli National Hemophilia Center and Thrombosis Unit, Sheba Medical Center,Tel Hashomer, Israel
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Kenet, Gili
  
Otwarty dostęp | 14 mar 2018
Use of an innovative syringe pump to deliver bolus rFVIIa for patients with haemophilia and inhibitors undergoing surgery
Debra Pollard

Debra Pollard

Lead Nurse Haemophilia, Haemophilia and Thrombosis Centre, Royal Free London NHS Foundation Trust, Pond Street,London, UK
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Pollard, Debra
, 
Barbara Subel

Barbara Subel

Clinical Nurse Specialist, Haemophilia and Thrombosis Centre, Royal Free London NHS Foundation Trust,London, UK
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Subel, Barbara
, 
Pratima Chowdary

Pratima Chowdary

Consultant Haematologist and Clinical Lead, Haemophilia and Thrombosis Centre, Royal Free London NHS Foundation Trust,London, UK
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Chowdary, Pratima
 oraz 
Keith Gomez

Keith Gomez

Consultant Haematologist, Haemophilia and Thrombosis Centre, Royal Free London NHS Foundation Trust,London, UK
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Gomez, Keith
  
Otwarty dostęp | 14 mar 2018
Caregiver burden in haemophilia: results from a single UK centre
Kate Khair

Kate Khair

Haemophilia Centre, Great Ormond Street Hospital for Children NHS Foundation Trust,London, UK
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Khair, Kate
 oraz 
Sylvia Von Mackensen

Sylvia Von Mackensen

Institute and Policlinics of Medical Psychology, University Medical Centre Hamburg-Eppendorf, Martinistrasse 52, 20246Hamburg, Germany
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Mackensen, Sylvia Von
  
Otwarty dostęp | 14 mar 2018
Gingival bleeding and oral hygiene in women with von Willebrand Disease (VWD): a pilot study
Stefanie Vanduine

Stefanie Vanduine

Department of Periodontics and Oral Medicine, School of Dentistry, University of Michigan, Ann Arbor,Michigan, USA
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Vanduine, Stefanie
, 
Karen Ridley

Karen Ridley

Department of Periodontics and Oral Medicine, School of Dentistry, University of Michigan, Ann Arbor, MI JILL,Michigan, USA
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Ridley, Karen
, 
Jill Bashutski

Jill Bashutski

Department of Periodontics and Oral Medicine, School of Dentistry, University of Michigan,Ann Arbor, USA
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Bashutski, Jill
, 
Mark Snyder

Mark Snyder

Department of Biologic and Materials Sciences, School of Dentistry, University of Michigan, Ann Arbor,Michigan, USA
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Snyder, Mark
, 
Corey Powell

Corey Powell

Center for Statistical Consultation and Research, University of Michigan, Ann Arbor,Michigan, USA
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Powell, Corey
 oraz 
Susan Taichman

Susan Taichman

Department of Periodontics and Oral Medicine, School of Dentistry, University of Michigan, Ann Arbor,Michigan, USA
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Taichman, Susan
  
Otwarty dostęp | 14 mar 2018
Impact of intestinal helminths on the risks of gastrointestinal haemorrhage and iron deficiency among haemophilia patients in northern Nigeria
Umma A. Ibrahim

Umma A. Ibrahim

Department of Paediatrics Aminu Kano Teaching Hospital PMB 3452,Kano Kano, Nigeria
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Ibrahim, Umma A.
, 
Sagir G. Ahmed

Sagir G. Ahmed

Department of Haematology Aminu Kano Teaching Hospital PMB 3452,Kano Kano, Nigeria
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Ahmed, Sagir G.
, 
Modu B. Kagu

Modu B. Kagu

Department of Haematology University of Maiduguri Teaching Hospital PMB 1414,Maiduguri Borno, Nigeria
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Kagu, Modu B.
 oraz 
Usman A. Abjah

Usman A. Abjah

Department of Haematology University of Maiduguri Teaching Hospital PMB 1414,Maiduguri Borno, Nigeria
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Abjah, Usman A.
  
Otwarty dostęp | 14 mar 2018
Experience of exercise in people with severe haemophilia: A qualitative study
Stephanie Taylor

Stephanie Taylor

  • Physiotherapy Research Unit, Nuffield Orthopaedic Centre and Oxford Haemophilia and Thrombosis Centre,Oxford, UK
  • University Hospitals NHS Foundation Trust, Windmill Road,Oxford, UK
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Taylor, Stephanie
, 
Francine Toye

Francine Toye

Physiotherapy Research Unit, Nuffield Orthopaedic Centre, Oxford University Hospitals NHS Foundation Trust, Windmill Road,Oxford, UK
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Toye, Francine
 oraz 
Karen Barker

Karen Barker

Physiotherapy Research Unit, Nuffield Orthopaedic Centre and Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Sciences, University ofOxford, UK
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Barker, Karen
  
Otwarty dostęp | 14 mar 2018
Perceived confidence for injury self‑management increases for young men with mild haemophilia with the use of the mobile app HIRT?
Joann Nilson

Joann Nilson

Saskatchewan Bleeding Disorders Program, Saskatoon,Saskatchewan, Canada
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Nilson, Joann
, 
Kathy Mulder

Kathy Mulder

Physiotherapy-Child Health Program; Children’s Hospital, Winnipeg,Manitoba, Canada
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Mulder, Kathy
, 
Candice L. Schachter

Candice L. Schachter

School of Physical Therapy, University of Saskatchewan, Saskatoon,Saskatchewan, Canada
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Schachter, Candice L.
, 
Kristy Wittmeier

Kristy Wittmeier

Department of Physiotherapy, Health Sciences Centre Winnipeg Department of Pediatrics and Child Health, Max Rady College of Medicine, Rady Faculty of Health Sciences, University of Manitoba, Winnipeg,Manitoba, Canada
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Wittmeier, Kristy
, 
Richard Lomotey

Richard Lomotey

The Pennsylvania State University, Information Sciences and Technology,Monaca, USA
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Lomotey, Richard
, 
Catherine M. Arnold

Catherine M. Arnold

School of Physical Therapy, University of Saskatchewan, Saskatoon,Saskatchewan, Canada
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Arnold, Catherine M.
 oraz 
Sarah Oosman

Sarah Oosman

School of Physical Therapy Researcher, Saskatchewan Population Health and Evaluation Research Unit (SPHERU) University of Saskatchewan,Saskatoon, Canada
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Oosman, Sarah
  

EVIDENCE REVIEW

Otwarty dostęp | 14 mar 2018
School-based programs for promoting physical activity and fitness in children and adolescents
Anne Wareing

Anne Wareing

Clinical Nurse Specialist, Department of Haemostasis, St George’s University Hospital NHS Foundation Trust, Blackshaw Road,London, UK
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Wareing, Anne
  

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