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The EHC Think Tank’s recommendations for system change around access equity and future care pathways include using evidence-based narratives to demonstrate value and the integration of digital technologies to enhance patient-centred care
Figure 1.
Workstream methodology
Summary of broad objectives and activities for EHC Think Tank workstreams
Figure 2.
Recommendations for changing narratives and behaviour to improve access equity for rare disease patients
Figure 3.
Recommendations to support the development of seamless, personalised care pathways for rare disease patients