<abstract xmlns="http://www.w3.org/1999/xhtml">

<sec>
<h3>Introduction</h3>
<p>The European Haemophilia Consortium (EHC) Think Tank was established as a platform for system change to ensure the healthcare ecosystem remains effective and relevant for people with bleeding disorders and other rare diseases. Operating alongside traditional advocacy initiatives, it comprised a series of thematic workstreams in which multiple stakeholders explored and co-designed potential solutions for specific aspects of the healthcare system. This final report from the workstreams on Access Equity and Future Care Pathways summarises recommendations for system change and the actions needed to achieve critical goals.</p>
</sec>
<sec>
<h3>Methodology/Process</h3>
<p>In a three-phase Discovery-Strategy-Innovation process, workstream participants explored vital challenges to the system in which they were working, mapped the system to identify enablers and constraints to progress, and determined leverage points to explore strategies for change before co-creating a set of recommendations for action.</p>
</sec>
<sec>
<h3>Results</h3>
<p>Participants in the Access Equity workstream identified a need for evidence-based narratives to drive policy change by effectively reaching and engaging target audiences. Fostering trust among stakeholders, supported by ‘open, active listening’, was seen as essential for progress towards access equity, as was promoting value-based frameworks by ensuring that decision-makers understand the broader impact of progress in access equity for health improvement. Participants in the Future Care Pathways workstream focused on digitalisation, patient preferences and financial incentives as drivers of progress towards creating seamless, personalised care pathways that can be measured effectively. Recommendations included fostering a coordination mindset and culture, encouraging patients to take ownership of their digital healthcare records, and enabling personalised care plans through flexibility in care pathways.</p>
</sec>
<sec>
<h3>Conclusions</h3>
<p>Among the co-created, innovative strategies and recommendations proposed by workstream participants, key elements to support system change in Access Equity and Future Care Pathways, respectively, include demonstrating value through evidence-based narratives and integrating digital technology into care pathways to enhance patient-centred care. Appropriate capacity-building for all stakeholders, particularly healthcare professionals (HCPs) and patients, will be essential for the success of these initiatives.</p>
</sec>
</abstract>

Introduction
The European Haemophilia Consortium (EHC) Think Tank was established as a platform for system change to ensure the healthcare ecosystem remains effective and relevant for people with bleeding disorders and other rare diseases. Operating alongside traditional advocacy initiatives, it comprised a series of thematic workstreams in which multiple stakeholders explored and co-designed potential solutions for specific aspects of the healthcare system. This final report from the workstreams on Access Equity and Future Care Pathways summarises recommendations for system change and the actions needed to achieve critical goals.


Methodology/Process
In a three-phase Discovery-Strategy-Innovation process, workstream participants explored vital challenges to the system in which they were working, mapped the system to identify enablers and constraints to progress, and determined leverage points to explore strategies for change before co-creating a set of recommendations for action.


Results
Participants in the Access Equity workstream identified a need for evidence-based narratives to drive policy change by effectively reaching and engaging target audiences. Fostering trust among stakeholders, supported by ‘open, active listening’, was seen as essential for progress towards access equity, as was promoting value-based frameworks by ensuring that decision-makers understand the broader impact of progress in access equity for health improvement. Participants in the Future Care Pathways workstream focused on digitalisation, patient preferences and financial incentives as drivers of progress towards creating seamless, personalised care pathways that can be measured effectively. Recommendations included fostering a coordination mindset and culture, encouraging patients to take ownership of their digital healthcare records, and enabling personalised care plans through flexibility in care pathways.


Conclusions
Among the co-created, innovative strategies and recommendations proposed by workstream participants, key elements to support system change in Access Equity and Future Care Pathways, respectively, include demonstrating value through evidence-based narratives and integrating digital technology into care pathways to enhance patient-centred care. Appropriate capacity-building for all stakeholders, particularly healthcare professionals (HCPs) and patients, will be essential for the success of these initiatives.

System change in practice: A report from the EHC Think Tank workstreams on Access Equity and Future Care Pathways

The Journal of Haemophilia Practice

This work is licensed under the Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License.

Introduction
The European Haemophilia Consortium (EHC) Think Tank was established as a platform for system change to ensure the healthcare ecosystem remains...

System change in practice: A report from the EHC Think Tank workstreams on Access Equity and Future Care Pathways

Article Category: Systems Change

Data publikacji: 05 sie 2024

Zakres stron: 99 - 107

DOI: https://doi.org/10.2478/jhp-2024-0017

Słowa kluczowe
Access equity, Care pathway, Behaviour change, Digital health, Health investment

© 2024 Zita Gacser et al., published by Sciendo

This work is licensed under the Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License.

System change in practice: A report from the EHC Think Tank workstreams on Access Equity and Future Care Pathways

Article Category: Systems Change

Data publikacji: 05 sie 2024

Zakres stron: 99 - 107

DOI: https://doi.org/10.2478/jhp-2024-0017

Słowa kluczoweAccess equity, Care pathway, Behaviour change, Digital health, Health investment

© 2024 Zita Gacser et al., published by Sciendo

This work is licensed under the Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License.

Słowa kluczowe
Access equity, Care pathway, Behaviour change, Digital health, Health investment