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System change in practice: A report from the EHC Think Tank workstreams on Access Equity and Future Care Pathways

Zita Gacser

Zita Gacser

European Haemophilia ConsortiumBrussels, Belgium
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Gacser, Zita
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Steven Bourke

Steven Bourke

Personal Pulse GmbHBasel, Switzerland
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Bourke, Steven
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Dalma Hosszú

Dalma Hosszú

Syreon Research InstituteBudapest, Hungary
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Hosszú, Dalma
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Susan Daniels

Susan Daniels

LumanityFarnham, UK
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Daniels, Susan
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European Haemophilia ConsortiumBrussels, Belgium
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05. Aug. 2024
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Artikel-Kategorie: Systems Change
Online veröffentlicht: 05. Aug. 2024
Seitenbereich: 99 - 107
DOI: https://doi.org/10.2478/jhp-2024-0017
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© 2024 Zita Gacser et al., published by Sciendo
This work is licensed under the Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License.
The EHC Think Tank’s recommendations for system change around access equity and future care pathways include using evidence-based narratives to demonstrate value and the integration of digital technologies to enhance patient-centred care
The EHC Think Tank’s recommendations for system change around access equity and future care pathways include using evidence-based narratives to demonstrate value and the integration of digital technologies to enhance patient-centred care

Figure 1.

Workstream methodology Summary of broad objectives and activities for EHC Think Tank workstreams
Workstream methodology Summary of broad objectives and activities for EHC Think Tank workstreams

Figure 2.

Recommendations for changing narratives and behaviour to improve access equity for rare disease patients
Recommendations for changing narratives and behaviour to improve access equity for rare disease patients

Figure 3.

Recommendations to support the development of seamless, personalised care pathways for rare disease patients
Recommendations to support the development of seamless, personalised care pathways for rare disease patients
Sprache:
Englisch
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Fachgebiete der Zeitschrift:
Medizin, Vorklinische Medizin, Grundlagenmedizin, Vorklinische Medizin, Grundlagenmedizin, andere, Klinische Medizin, Klinische Medizin, andere, Pharmazie, Pharmakologie
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