23 Articles
System Change
Accès libre | 23 févr. 2023
Short- and longer-term goals for change – A report from the 2nd workshops of the EHC Think Tank Workstreams on Registries, the Hub and Spoke Model and Patient Agency
, et Accès libre | 17 juil. 2023
Access equity: key questions and challenges - A report from the 1st workshop of the European Haemophilia Consortium (EHC) Think Tank Workstream on Access Equity
et Accès libre | 09 août 2023
Future Care Pathways – A report from the 1st workshop of the EHC Think Tank Workstream on Future Care Pathways
et Accès libre | 29 déc. 2023
Short- and longer-term goals for change – A report from the 2nd workshops of the EHC Think Tank Workstreams on Access Equity and Future Care Pathways
, , , et Clinical Research
Accès libre | 23 févr. 2023
Clinical and radiological assessment of joints in people with haemophilia in Assam, Northeast India: a cross-sectional study
, , , , et Accès libre | 17 juil. 2023
Pain assessment and management in the Moroccan haemophilia population: a prospective descriptive study
, , , , , , et Accès libre | 31 oct. 2023
Psychological experiences of mothers of children with severe haemophilia in Iranian culture: A phenomenological study
, , , , , et Accès libre | 17 déc. 2023
Factors associated with delays in seeking treatment for acute bleeding among persons living with haemophilia in Uganda: a cross-sectional mixed methods study
, , , , , , et
, , , , , et Community Focus
Accès libre | 21 avr. 2023
The impact of the Contaminated Blood Scandal on the next generation: the state of the evidence
, et Accès libre | 18 mai 2023
The strategies of parents who tell their daughters about the possibility of being a haemophilia carrier
et Nurse Focus
Accès libre | 05 mai 2023
Editorial – Living, Caring, Learning: How patients shape the specialist haemophilia nurse
Accès libre | 05 mai 2023
Living, Caring, Learning – Reflections on the therapeutic relationship in haemophilia care
Accès libre | 05 mai 2023
Living, Caring, Learning – The treatment centre as family for a woman with severe haemophilia
Accès libre | 05 mai 2023
Living, Caring, Learning – Early education, active lives and tailored treatment in haemophilia care
Accès libre | 17 déc. 2023
Living, Caring, Learning – Addressing challenges in the transition to adult care
Clinical Practice
Accès libre | 20 déc. 2023
Recognising the importance of the research nurse and study coordinators in enhancing retention of people with haemophilia in clinical trials
, , , , , , , , et Accès libre | 29 déc. 2023
A multidisciplinary approach to optimising the virtual management of haemophilia: a roundtable meeting of UK experts
, , , , , et Case Study
Accès libre | 09 août 2023
Management of a patient with factor X deficiency with FEIBA: a case report
et Accès libre | 19 oct. 2023
A creative approach to managing a case of haemophilia A with inhibitors in a low-resource country: case report
, , , et Accès libre | 19 oct. 2023
The first reported case of factor X deficiency in a Filipino child – case study
, , et Commentary
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Édition 11 (2024)
Édition 10 (2023)
Édition 9 (2022)
Édition 8 (2021)
Édition 7 (2020)
Édition 6 (2019)
Édition 5 (2018)
Édition 4 (2017)
Édition 3 (2016)
Édition 2 (2015)