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Future Care Pathways – A report from the 1st workshop of the EHC Think Tank Workstream on Future Care Pathways

Naja Skouw-Rasmussen

Naja Skouw-Rasmussen

European Haemophilia ConsortiumBrussels, Belgium
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Skouw-Rasmussen, Naja
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Laura Savini

Laura Savini

European Haemophilia ConsortiumBrussels, Belgium
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Savini, Laura
  
Aug 09, 2023
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Article Category: Systems Change
Published Online: Aug 09, 2023
Page range: 74 - 81
DOI: https://doi.org/10.2478/jhp-2023-0013
Keywords
© 2023 Naja Skouw-Rasmussen et al., published by Sciendo
This work is licensed under the Creative Commons Attribution-NonCommercial-NoDerivatives 3.0 License.
The development of clearly defined, evidence-based future care pathways in rare disease faces multiple challenges related to prioritisation, minimum levels of care and fragmentation of services, with digital health presenting both opportunities and drawbacks
The development of clearly defined, evidence-based future care pathways in rare disease faces multiple challenges related to prioritisation, minimum levels of care and fragmentation of services, with digital health presenting both opportunities and drawbacks

Figure 1.

Iceberg Model template used to identify events, patterns, structures and mental models in challenges for access equity.
Iceberg Model template used to identify events, patterns, structures and mental models in challenges for access equity.

Figure 2.

Infographic showing the patient journey to diagnosis in rare diseases, developed as part of the EURORDIS Solve-RD project [32]
Infographic showing the patient journey to diagnosis in rare diseases, developed as part of the EURORDIS Solve-RD project [32]
Language:
English
Publication timeframe:
1 times per year
Journal Subjects:
Medicine, Basic Medical Science, Basic Medical Science, other, Clinical Medicine, Clinical Medicine, other, Pharmacy, Pharmacology
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