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Journals
The Journal of Haemophilia Practice
Volume 5 (2018): Issue 1 (April 2018)
Open Access
You think you know the patient inside-out. But do you know the
outside-in
?
Emily South
Emily South
and
Kate Khair
Kate Khair
| Dec 14, 2018
The Journal of Haemophilia Practice
Volume 5 (2018): Issue 1 (April 2018)
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Article Category:
Clinical Practice
Published Online:
Dec 14, 2018
Page range:
130 - 137
DOI:
https://doi.org/10.17225/jhp00125
Keywords
haemophilia
,
inside-out
,
outside in
,
patient experience
,
self-management
© 2018 Emily South, Kate Khair, published by Sciendo
This work is licensed under the Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License.
Image: Beyond the person with haemophilia, there is a network of family, friends and partners who are also impacted. These people are ‘witnesses’ to the lived experience of haemophilia and, as such, may have a valuable role to play in haemophilia care© Shutterstock
Image: Members of the ‘outside-in’ know the individual living with haemophilia well, play an influential role in their lives, and can help to create a more complete picture of their lived experience. Their unique perspective and involvement in the wider care team can help in providing better support© Shutterstock