You think you know the patient inside-out. But do you know the outside-in?
Article Category: Clinical Practice
Publié en ligne: 14 déc. 2018
Pages: 130 - 137
© 2018 Emily South, Kate Khair, published by Sciendo
This work is licensed under the Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License.
Image: Beyond the person with haemophilia, there is a network of family, friends and partners who are also impacted. These people are ‘witnesses’ to the lived experience of haemophilia and, as such, may have a valuable role to play in haemophilia care© Shutterstock
Image: Members of the ‘outside-in’ know the individual living with haemophilia well, play an influential role in their lives, and can help to create a more complete picture of their lived experience. Their unique perspective and involvement in the wider care team can help in providing better support© Shutterstock