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You think you know the patient inside-out. But do you know the outside-in?

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14 déc. 2018
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Image: Beyond the person with haemophilia, there is a network of family, friends and partners who are also impacted. These people are ‘witnesses’ to the lived experience of haemophilia and, as such, may have a valuable role to play in haemophilia care© Shutterstock
Image: Beyond the person with haemophilia, there is a network of family, friends and partners who are also impacted. These people are ‘witnesses’ to the lived experience of haemophilia and, as such, may have a valuable role to play in haemophilia care© Shutterstock
Image: Members of the ‘outside-in’ know the individual living with haemophilia well, play an influential role in their lives, and can help to create a more complete picture of their lived experience. Their unique perspective and involvement in the wider care team can help in providing better support© Shutterstock
Image: Members of the ‘outside-in’ know the individual living with haemophilia well, play an influential role in their lives, and can help to create a more complete picture of their lived experience. Their unique perspective and involvement in the wider care team can help in providing better support© Shutterstock