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Navigating uncertainty: an examination of how people with haemophilia understand and cope with uncertainty in protection in an ethnographic study

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17 gru 2020

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Faced with medical guidance about treatment that can be unclear or difficult to relate to, people with haemophilia and their caregivers develop their own ‘mental models’ to help them navigate their condition – but this can lead to both limitations and risks in their everyday lives.
Faced with medical guidance about treatment that can be unclear or difficult to relate to, people with haemophilia and their caregivers develop their own ‘mental models’ to help them navigate their condition – but this can lead to both limitations and risks in their everyday lives.

Figure 1

Illustrative diagram of the ‘grey area’ of uncertainty around treatment regimen among PwH, with example concerns
Illustrative diagram of the ‘grey area’ of uncertainty around treatment regimen among PwH, with example concerns