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Navigating uncertainty: an examination of how people with haemophilia understand and cope with uncertainty in protection in an ethnographic study

Thomas Hughes

Thomas Hughes

ReD AssociatesCopenhagen, Denmark
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Hughes, Thomas
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Mikkel Brok-Kristensen

Mikkel Brok-Kristensen

ReD AssociatesCopenhagen, Denmark
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Brok-Kristensen, Mikkel
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Yosha Gargeya

Yosha Gargeya

ReD AssociatesCopenhagen, Denmark
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Gargeya, Yosha
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Anne Mette Worsøe Lottrup

Anne Mette Worsøe Lottrup

ReD AssociatesCopenhagen, Denmark
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Worsøe Lottrup, Anne Mette
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Ask Bo Larsen

Ask Bo Larsen

ReD AssociatesCopenhagen, Denmark
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Bo Larsen, Ask
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Ana Torres-Ortuño

Ana Torres-Ortuño

University of MurciaSpain
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Torres-Ortuño, Ana
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Nicki Mackett

Nicki Mackett

Alder Hey Children's NHS Foundation TrustUK
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Mackett, Nicki
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John Stevens

John Stevens

Swedish Orphan Biovitrum AB (Sobi)Stockholm, Sweden
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Stevens, John
  
17 déc. 2020
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Catégorie d'article: Community Focus
Publié en ligne: 17 déc. 2020
Pages: 158 - 164
DOI: https://doi.org/10.17225/jhp00168
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© 2020 Thomas Hughes et al., published by Sciendo
This work is licensed under the Creative Commons Attribution-NonCommercial-NoDerivatives 3.0 License.
Faced with medical guidance about treatment that can be unclear or difficult to relate to, people with haemophilia and their caregivers develop their own ‘mental models’ to help them navigate their condition – but this can lead to both limitations and risks in their everyday lives.
Faced with medical guidance about treatment that can be unclear or difficult to relate to, people with haemophilia and their caregivers develop their own ‘mental models’ to help them navigate their condition – but this can lead to both limitations and risks in their everyday lives.

Figure 1

Illustrative diagram of the ‘grey area’ of uncertainty around treatment regimen among PwH, with example concerns
Illustrative diagram of the ‘grey area’ of uncertainty around treatment regimen among PwH, with example concerns
Langue:
Anglais
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Sujets de la revue:
Médecine, Sciences médicales de base, Sciences médicales de base, autres, Médecine clinique, Médecine clinique, autres, Pharmacie, Pharmacologie
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