Female | 70 | 59.3% |
Male | 26 | 22.0% |
Missing data | 22 | 18.7% |
Hematologist | 43 | 36.6% |
Staff nurse | 4 | 3.4% |
Advanced practice registered nurse (NP) | 19 | 16.1% |
Physician assistant | 1 | 0.8% |
Nurse coordinator | 30 | 25.4% |
Missing data | 21 | 17.8% |
ADN | 2 | 3.8% |
BSN | 22 | 41.5% |
MSN | 21 | 39.6% |
Doctorate (PhD, DNP, EdD) | 4 | 7.5% |
Other | 4 | 7.5% |
Paediatric | 43 | 36.4% |
Adults | 19 | 16.1% |
Both | 34 | 28.8% |
Missing data | 22 | 18.6% |
New England | 11 | 9.3% |
Mid-Atlantic | 11 | 9.3% |
Southeast | 18 | 15.3% |
Great Lakes | 20 | 16.9% |
Northern States | 2 | 1.7% |
Great Plains | 17 | 14.4% |
Mountain States | 8 | 6.8% |
Western States | 10 | 8.5% |
Academic centre | 70 | 59.3% |
Private clinic or hospital | 15 | 12.7% |
Community/public clinic or hospital | 11 | 9.3% |
Independent, self-standing HTC | 10 | 8.5% |
Missing data | 12 | 10.2% |
Less frequent dosing option | 0 (0) | 2 (2.4) | 0 (0) | 32 (38.1) | 50 (59.5) |
Lower out-of-pocked cost | 5 (5.9) | 8 (9.4) | 11 (12.9) | 21 (24.7) | 40 (47.1) |
Insurance preferred drug list | 13 (15.5) | 14 (16.7) | 18 (21.4) | 19 (22.6) | 20 (23.8) |
Concerns about inhibitor development | 2 (2.4) | 15 (17.6) | 12 (14.1) | 30 (35.3) | 26 (30.6) |
Strong commitment of manufacturer to haemophilia community | 11 (12.9) | 17 (20.0) | 24 (28.2) | 26 (30.6) | 7 (8.2) |
Patient/caregiver brand loyalty | 4 (4.7) | 7 (8.2) | 11 (12.9) | 41 (48.2) | 22 (25.9) |
Therapy recommended by friend/family | 4 (4.8) | 10 (11.9) | 13 (15.5) | 45 (53.6) | 12 (14.3) |
Therapy recommended by pharmaceutical representative | 9 (10.6) | 19 (22.4) | 21 (24.7) | 28 (32.9) | 8 (9.4) |
Poor response to current therapy (breakthrough bleeds) | 0 (0) | 3 (3.5) | 9 (10.6) | 27 (31.8) | 46 (54.1) |
Factor characteristics (volume to be infused, mixing device, vial sizes) | 1 (1.2) | 3 (3.5) | 7 (8.2) | 46 (54.1) | 28 (32.9) |
Patient/family's relationship with a pharmaceutical representative | 11 (12.9) | 12 (14.1) | 14 (16.5) | 29 (34.1) | 19 (22.4) |
Recommendation by specialty pharmacy | 17 (20.0) | 13 (15.3) | 16 (18.8) | 30 (35.5) | 9 (10.6) |
Attendance to an industry sponsored dinner | 17 (20.0) | 9 (10.6) | 24 (28.2) | 23 (27.1) | 12 (14.1) |
Other | 1 (25.0) | 0 (0.0) | 1 (25.0) | 1 (25.0) | 1 (25.0) |
Less frequent dosing option | 0 (0) | 6 (7.1) | 4 (4.8) | 41 (48.8) | 33 (39.3) |
Lower out-of-pocked cost | 5 (5.9) | 8 (9.4) | 14 (16.5) | 34 (40.0) | 24 (28.2) |
Insurance preferred drug list | 10 (11.9) | 11 (13.1) | 19 (22.6) | 30 (35.7) | 14 (16.7) |
Concerns about inhibitor development | 3 (3.5) | 6 (10.6) | 11 (23.5) | 27 (55.3) | 38 (44.7) |
Strong commitment of manufacturer to haemophilia community | 34 (40.5) | 14 (57.1) | 26 (88.1) | 6 (7.1) | 4 (4.8) |
Patient/caregiver brand loyalty | 15 (17.9) | 15 (17.9) | 29 (34.5) | 18 (21.4) | 7 (8.3) |
Patient/caregiver requested a switch in product | 0 (0) | 5 (6.0) | 8 (9.6) | 38 (45.8) | 32 (38.6) |
Therapy recommended by friend/family/acquaintance | 30 (35.7) | 18 (21.4) | 25 (29.8) | 11 (13.1) | 0 (0) |
Poor response to current therapy (breakthrough bleeds) | 0 (0) | 0 (0) | 1 (1.2) | 12 (14.1) | 72 (84.7) |
Inadequate PK studies | 0 (0) | 4 (4.8) | 12 (14.3) | 27 (32.1) | 41 (48.8) |
Non-adherent to current therapy | 1 (1.2) | 0 (0) | 4 (47.1) | 40 (47.1) | 40 (47.1) |
Other | 1 (12.5) | 0 (0) | 0 (0) | 2 (25.0) | 5 (62.5) |