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EHC Think Tank members used the concept of a ‘guiding star’ and associated ‘near stars’ to identify steps to address challenges in the health care system around access equity and future care pathways for rare diseases
Figure 1.
Summary of challenges to progress to equitable access to care (Access Equity) and enabling improved care pathways (Future Care Pathways) [1,2]
Figure 2.
Guiding star and near star aims for the EHC Think Tank Workstream on Access Equity
Figure 3.
Guiding star and near star aims for the EHC Think Tank Workstream on Future Care Pathways