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The Journal of Haemophilia Practice
Volume 10 (2023): Issue 1 (January 2023)
Open Access
Short- and longer-term goals for change – A report from the 2nd workshops of the EHC Think Tank Workstreams on Access Equity and Future Care Pathways
Zita Gacser
Zita Gacser
,
Naja Skouw-Rasmussen
Naja Skouw-Rasmussen
,
Steven Bourke
Steven Bourke
,
Renske ten Ham
Renske ten Ham
and
Dalma Hosszú
Dalma Hosszú
| Dec 29, 2023
The Journal of Haemophilia Practice
Volume 10 (2023): Issue 1 (January 2023)
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Article Category:
Systems Change
Published Online:
Dec 29, 2023
Page range:
155 - 163
DOI:
https://doi.org/10.2478/jhp-2023-0023
Keywords
Access equity
,
Care pathway
,
Patient journey
,
Behaviour change
,
Digital health
,
Health investment
© 2023 Zita Gacser et al., published by Sciendo
This work is licensed under the Creative Commons Attribution-NonCommercial-NoDerivatives 3.0 License.
EHC Think Tank members used the concept of a ‘guiding star’ and associated ‘near stars’ to identify steps to address challenges in the health care system around access equity and future care pathways for rare diseases
Figure 1.
Summary of challenges to progress to equitable access to care (Access Equity) and enabling improved care pathways (Future Care Pathways) [1,2]
Figure 2.
Guiding star and near star aims for the EHC Think Tank Workstream on Access Equity
Figure 3.
Guiding star and near star aims for the EHC Think Tank Workstream on Future Care Pathways