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Patient agency: key questions and challenges – A report from the 1st workshop of the EHC Think Tank Workstream on Patient Agency

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et

Naja Skouw-Rasmussen

Skouw-Rasmussen, Naja

29 mars 2022

Patient agency: key questions and challenges – A report from the 1st workshop of the EHC Think Tank Workstream on Patient Agency's Cover Image

The Journal of Haemophilia Practice

Édition 9 (2022): Edition 1 (Janvier 2022)

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Catégorie d'article: Systems Change

Publié en ligne: 29 mars 2022

Pages: 27 - 35

DOI: https://doi.org/10.2478/jhp-2022-0004

Mots clés
Patient agency, Empowerment, Engagement, Cultural change, Health literacy

© 2022 Amanda Bok et al., published by Sciendo

This work is licensed under the Creative Commons Attribution-NonCommercial-NoDerivatives 3.0 License.

Uneven patient-clinician relationships, paternalism, hierarchical cultures and resistance to change are among the key challenges identified in ensuring that patients with lifelong rare diseases, such as haemophilia, are empowered to engage with and share in decision-making around their care© Shutterstock

Iceberg Model template used to identify events, patterns, structures and mental models in challenges for patient agency. Image: Ia Brix Ohmann / Overlap (https://www.overlap.dk/english)

Langue:: Anglais

Périodicité:: 1 fois par an
Sujets de la revue:: Médecine, Sciences médicales de base, Sciences médicales de base, autres, Médecine clinique, Médecine clinique, autres, Pharmacie, Pharmacologie

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