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Patient agency: key questions and challenges – A report from the 1st workshop of the EHC Think Tank Workstream on Patient Agency

Amanda Bok

Amanda Bok

European Haemophilia ConsortiumBrussels, Belgium
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Bok, Amanda
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Declan Noone

Declan Noone

European Haemophilia ConsortiumBrussels, Belgium
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Noone, Declan
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Naja Skouw-Rasmussen

Naja Skouw-Rasmussen

European Haemophilia ConsortiumBrussels, Belgium
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Skouw-Rasmussen, Naja
  
29. März 2022
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Artikel-Kategorie: Systems Change
Online veröffentlicht: 29. März 2022
Seitenbereich: 27 - 35
DOI: https://doi.org/10.2478/jhp-2022-0004
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© 2022 Amanda Bok et al., published by Sciendo
This work is licensed under the Creative Commons Attribution-NonCommercial-NoDerivatives 3.0 License.
Uneven patient-clinician relationships, paternalism, hierarchical cultures and resistance to change are among the key challenges identified in ensuring that patients with lifelong rare diseases, such as haemophilia, are empowered to engage with and share in decision-making around their care© Shutterstock
Uneven patient-clinician relationships, paternalism, hierarchical cultures and resistance to change are among the key challenges identified in ensuring that patients with lifelong rare diseases, such as haemophilia, are empowered to engage with and share in decision-making around their care© Shutterstock

Figure 1

Iceberg Model template used to identify events, patterns, structures and mental models in challenges for patient agency. Image: Ia Brix Ohmann / Overlap (https://www.overlap.dk/english)
Iceberg Model template used to identify events, patterns, structures and mental models in challenges for patient agency. Image: Ia Brix Ohmann / Overlap (https://www.overlap.dk/english)
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Englisch
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Medizin, Vorklinische Medizin, Grundlagenmedizin, Vorklinische Medizin, Grundlagenmedizin, andere, Klinische Medizin, Klinische Medizin, andere, Pharmazie, Pharmakologie
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