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Journals
The Journal of Haemophilia Practice
Volume 8 (2021): Issue 1 (January 2021)
Open Access
Personalising haemophilia management with shared decision making
Leonard A Valentino
Leonard A Valentino
Rush University, National Hemophilia Foundation
Chicago, USA
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Valentino, Leonard A
,
Victor Blanchette
Victor Blanchette
Department of Pediatrics, University of Toronto and Division of Hematology/Oncology, Hospital for Sick Children
Toronto, Canada
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Blanchette, Victor
,
Claude Negrier
Claude Negrier
Unité d’Hemostase Clinique, Hôpital, Louis Pradel, Hospices Civils de Lyon, Université Claude Bernard
Lyon, France
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Negrier, Claude
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Brian O’Mahony
Brian O’Mahony
Irish Haemophilia Society
Dublin, Ireland
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O’Mahony, Brian
,
Val Bias
Val Bias
National Hemophilia Foundation
New York, USA
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Bias, Val
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Thomas Sannié
Thomas Sannié
Association française des hémophiles
Paris, France
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Sannié, Thomas
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Mark W Skinner
Mark W Skinner
Institute for Policy Advancement Ltd, McMaster University
Washington,
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Skinner, Mark W
Jun 18, 2021
The Journal of Haemophilia Practice
Volume 8 (2021): Issue 1 (January 2021)
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Article Category:
Clinical Practice
Published Online:
Jun 18, 2021
Page range:
69 - 79
DOI:
https://doi.org/10.17225/jhp00178
Keywords
Haemophilia
,
decision making
,
physician-patient relationships
,
decision support techniques
,
patient participation
,
patient-centred care
,
gene therapy
© 2021 Leonard A Valentino et al., published by Sciendo
This work is licensed under the Creative Commons Attribution-NonCommercial-NoDerivatives 3.0 License.