VWD | PERCENTAGE |
---|---|
Type 1 | 40% |
Type 2 | 40% |
Type 3 | 19% |
Type 1/2 | 1% |
PLATELET DISORDER | PERCENTAGE |
---|---|
Immune thrombocytopenic purpura (ITP) | 40% |
Glanzmann thrombasthenia | 8% |
Storage pool deficiency | 6% |
Thrombocytopathy | 3% |
Bernard-Soulier syndrome | 2% |
Unknown | 41% |
BLEEDING DISORDER | NUMBER | PERCENTAGE |
---|---|---|
Von Willebrand disease | 198 | 27.93% |
Carrier <40% 74% Haemophilia A; 26% Haemophilia B | 193 | 27.22% |
Carrier >40% 74% Haemophilia A; 26% Haemophilia B | 169 | 23.84% |
Platelet disorders | 63 | 8.89% |
Other factor deficiencies | 37 | 5.22% |
Combined deficiencies | 31 | 4.37% |
Unknown | 18 | 2.54% |
• | “Needed blood transfusion of two units - as a result missed out on a new career” |
• | “Have to plan bathroom times between appointments. Up to 40 changes a day” |
• | Had “a bandage and tampon at the same time” and “had a change of clothes at work” |
• | Severe bleeding for “over ten years resulting hysterectomy at 38” |
• | “I would regularly change sanitary protection and 20 minutes later have blood flowing down my legs“ |
• | “I would have to stay in bed for three to four days a month because I was so exhausted” |