Struggling to be heard: A scoping review of user participation in ADHD mental healthcare for children and adolescents
Kategoria artykułu: Review
Data publikacji: 19 lip 2025
Zakres stron: 68 - 81
DOI: https://doi.org/10.2478/sjcapp-2025-0008
Słowa kluczowe
© 2025 Elin Håkonsen Martinsen et al., published by Sciendo
This work is licensed under the Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License.
FIGURE 1.
FIGURE 2.
Studies addressing user participation among young people with attention deficit hyperactivity disorder (ADHD)
| Avisar and Lavie-Ajayi (2014) ( |
To explore experiences of stimulant medication and treatment trajectories among adolescents with ADHD |
Age: 12.5–16.5 years 14 adolescents using stimulant medication for ADHD for ≥ 6 months 8 males, 6 females |
Private psychology center |
Qualitative design using individual semistructured interviews Data analysis: Interpretative phenomenological analysis |
| Brinkman et al. (2012) ( |
To elucidate how adolescents with ADHD contribute to medication treatment decisions |
Age: 13–18 years 44 adolescents, diagnosed with ADHD 8.7 years on average prior to participation 24 males, 20 females |
Community-based pediatric practices |
Qualitative design using focus group interviews with open-ended, semistructured questions Recruitment stratified by sex and age Data analysis: Inductive coding |
| Cheung et al. (2015) ( |
To explore experiences of adolescents and young adults with ADHD in Hong Kong in accessing treatment and services and coping with ADHD-related impairment, along with their expectations of future treatment |
Age: ≥ 16 years 20 patients 16–17 years, 20 patients ≥ 18 years 27 males, 13 females |
Specialist health care services |
Mixed-methods design using qualitative semistructured interviews, field notes, Adult ADHD Self-Report Scale (ASRS) to assess severity of ADHD symptoms, and questionnaires on demographics, current medication, symptoms, and severity of impairment Data analysis of semi-structured interviews: Grounded theory |
| Mikesell et al. (2020), ( |
To explore children's real-time participation in stimulant medication decisions |
Age: 5–11 years 16 children with ADHD, who had received a first-time stimulant medication prescription, and their parents The families were English-speaking |
Two community mental health clinics | Analysis of video-recordings of three follow-up visits of medication titration with emphasis on identifying the clinician's Treatment Recommendation inspired by conversation analytic research |
| Travell and Visser (2006) ( |
To explore the experiences, perceptions, and views of young people with ADHD and their parents |
Age: 11–16 years 17 adolescents and their parents |
Local health education authority |
Qualitative semistructured interviews Data analysis: Grounded theory |