Health-related quality of life in Croatian general population and multiple myeloma patients assessed by the EORTC QLQ-C30 and EORTC QLQ-MY20 questionnaires
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Croatian Institute of Public Health, Croatian National Cancer Registry. Cancer incidence in Croatia 2016. Bulletin No. 41. Zagreb: Croatian Institute of Public Health; 2019.Croatian Institute of Public Health, Croatian National Cancer RegistryZagrebCroatian Institute of Public Health2019Search in Google Scholar
King MT. The interpretation of scores from the EORTC quality of life questionnaire QLQ-C30. Qual Life Res 1996; 5: 555-67. doi: 10.1007/BF00439229KingMTThe interpretation of scores from the EORTC quality of life questionnaire QLQ-C30199655556710.1007/BF004392298993101Open DOISearch in Google Scholar
Ford ME, Havstad SL, Kart CS. Assessing the reliability of the EORTC QLQ C-30 in a sample of older African and Caucasian adults. Qual Life Res 2001; 10: 533-41. doi: 10.1023/A:1013003014340FordMEHavstadSLKartCSAssessing the reliability of the EORTC QLQ C-30 in a sample of older African and Caucasian adults2001105334110.1023/A:101300301434011789553Open DOISearch in Google Scholar
WHOQOL Group. Study protocol for the World Health Organization project to develop a quality of life assessment instrument Qual Life Res 1993; 2: 153-9. doi: 10.1007/BF00435734WHOQOL GroupStudy protocol for the World Health Organization project to develop a quality of life assessment instrument19932153910.1007/BF00435734Open DOISearch in Google Scholar
Schwarz R, Hinz A. Reference Dana for the quality of life questionnaire EORTC QLQ-C30 in the general German population. Eur J Cancer 2001; 37: 1345-51. doi: 10.1016/s0959-8049(00)00447-0SchwarzRHinzAReference Dana for the quality of life questionnaire EORTC QLQ-C30 in the general German population20013713455110.1016/s0959-8049(00)00447-011435063Open DOISearch in Google Scholar
Sherman AC, Simonton S, Latif U, Plante TG, Anaissie EJ. Changes in quality of life and psychosocial adjustment among MM patients treated with high dose malphalan and autologous stem cell transplantation. Biol Blood Marrow Transplant 2009; 15: 12-20. doi: 10.1016/j.bbmt.2008.09.023ShermanACSimontonSLatifUPlanteTGAnaissieEJChanges in quality of life and psychosocial adjustment among MM patients treated with high dose malphalan and autologous stem cell transplantation200915122010.1016/j.bbmt.2008.09.02319135938Open DOISearch in Google Scholar
Juul T, Petersen MA, Holzner B, Laurberg S, Christensen P, Gronvold M. Danish population- based reference data for the EORTC QLQ-C30: associations with gender, age and morbidity. Qual Life Res 2014; 23: 2183-93. doi: 10.1007/s11136-014-0675-yJuulTPetersenMAHolznerBLaurbergSChristensenPGronvoldMDanish population- based reference data for the EORTC QLQ-C30: associations with gender, age and morbidity20142321839310.1007/s11136-014-0675-y24676897Open DOISearch in Google Scholar
Luckett T, King MT, Butow PN, Oguchi M, Rankin N, Price MA, et al. Choosing between the EORTC QLQ-C30 and FACT-G for measuring health- related quality of life in cancer clinical research: issues, evidence and recommendations. Ann Oncol 2011; 22: 2179-90. doi: 10.1093/annonc/mdq721LuckettTKingMTButowPNOguchiMRankinNPriceMAet alChoosing between the EORTC QLQ-C30 and FACT-G for measuring health- related quality of life in cancer clinical research: issues, evidence and recommendations20112221799010.1093/annonc/mdq72121339384Open DOISearch in Google Scholar
Cocks K, King MT, Velikova G, Martyn St-James M, Fayers PM, Brown JM. Evidence-based guidelines for determination of sample size and interpretation of the European Organization for the Research and Treatment of Cancer Quality of Life Questionnaire Core 30 J Clin Oncol 2011; 29: 89-96. doi: 10.1200/JCO.2010.28.0107CocksKKingMTVelikovaGMartyn St-JamesMFayersPMBrownJMEvidence-based guidelines for determination of sample size and interpretation of the European Organization for the Research and Treatment of Cancer Quality of Life Questionnaire Core 30201129899610.1200/JCO.2010.28.010721098316Open DOISearch in Google Scholar
Aaronson NK, Ahmedzai S, Bergman B, Bullinger M, Cull A, Duez NJ, et al. The European Organization for Research and Treatment of Cancer QLQ-C30: A quality of life instrument for use in international clinical trials in oncology. J Natl Cancer Inst 1993; 85: 365-76. doi: 10.1093/jnci/85.5.365AaronsonNKAhmedzaiSBergmanBBullingerMCullADuezNJet alThe European Organization for Research and Treatment of Cancer QLQ-C30: A quality of life instrument for use in international clinical trials in oncology1993853657610.1093/jnci/85.5.3658433390Open DOISearch in Google Scholar
European Organization for Research and Treatment of Cancer. Questionnaires. [cited 2016 Jan 10]. Available at: https://qol.eortc.org/questionnaire/qlq-my20/2016Jan 10Available athttps://qol.eortc.org/questionnaire/qlq-my20/Search in Google Scholar
European Organization for Research and Treatment of Cancer. Questionnaires (10.01.2016.) Available at: https://qol.eortc.org/questionnaire/eortc-qlq-c30/https://qol.eortc.org/questionnaire/eortc-qlq-c30/Search in Google Scholar
Lonneke V, van de Poll-Franse LV, Mols F, Gundy CM, Creutzberg CL, Nout RA, et al. Normative data for the EORTC QLQ-C30 and EORTC- sexuality items in the general Dutch population. Eur J Cancer 2011; 47: 667-75. doi: 10.1016/j.ejca.2010.11.004LonnekeVvan dePoll-Franse LVMolsFGundyCMCreutzbergCLNoutRAet alNormative data for the EORTC QLQ-C30 and EORTC- sexuality items in the general Dutch population2011476677510.1016/j.ejca.2010.11.00421134739Open DOISearch in Google Scholar
Michelson H, Bolund C, Nilsson B, Brandberg Y. Health-related quality of life measured by the EORTC QLQ-C30. Reference values from a large sample of the Swedish population. Acta Oncol 2009; 39: 477-84. doi: 10.1080/028418600750013384MichelsonHBolundCNilssonBBrandbergYHealth-related quality of life measured by the EORTC QLQ-C302009394778410.1080/02841860075001338411041109Open DOISearch in Google Scholar
Velenik V, Secerov-Ermenc A, But-Hadzic J, Zadnik V. Health-related quality of life assessed by the EORTC QLQ-C30 questionnaire in the general Slovenian population. Radiol Oncol 2017; 51: 342-50. doi: 10.1515/ raon-2017-0021VelenikVSecerov-ErmencABut-HadzicJZadnikVHealth-related quality of life assessed by the EORTC QLQ-C30 questionnaire in the general Slovenian population2017513425010.1515/raon-2017-0021561199928959171Open DOISearch in Google Scholar
Slovacek L, Slovackova B, Blazek M, Jebavy L. Quality of life in patients with multiple myeloma and malignant lymphoma undergoing autologous progenitor stem cell transplantation: the effect of selected psychosocial and health aspects on quality of life: a retrospective analysis. Rep Pract Oncol Radiother 2007; 12: 101-8. doi: 10.1016/S1507-1367(10)60046-6SlovacekLSlovackovaBBlazekMJebavyLQuality of life in patients with multiple myeloma and malignant lymphoma undergoing autologous progenitor stem cell transplantation: the effect of selected psychosocial and health aspects on quality of life: a retrospective analysis200712101810.1016/S1507-1367(10)60046-6Open DOISearch in Google Scholar
SurveyMonkey. Sample Size Calculator. Calculate your sample soize. [cited 2019 Jan 15]. Available at: https://www.surveymonkey.com/mp/sample-size-calculator2019Jan 15]. Available athttps://www.surveymonkey.com/mp/sample-size-calculatorSearch in Google Scholar
Fayers P, Aaronson NK, Bjordal K, Sullivan M. EORTC QLQ-C30 scoring manual Brussels: EORTC Publications; 1997.FayersPAaronsonNKBjordalKSullivanMBrusselsEORTC Publications1997Search in Google Scholar
Tkalac Verčič A, Sinčić Ćorić D, Pološki Vokić N Research methodology manual -How to design, implement and describe scientific and professional research. Zagreb: M.E.P. d.o.o; 2012.Tkalac VerčičASinčić ĆorićDPološki VokićNZagrebM.E.P. d.o.o2012Search in Google Scholar
Petz B, Kolesarić V, Ivanec D. Petzova statistics [Croatian]. Zagreb: Naklada Slap; 2012.PetzBKolesarićVIvanecD.ZagrebNaklada Slap2012Search in Google Scholar
Šošić I. Applied statistics 2 [Croatian]. Updated edition. Zagreb: Školska knjiga; Zagreb 2006.ŠošićI.ZagrebŠkolska knjiga; Zagreb2006Search in Google Scholar
Nielsen LK, Abildgaard N, Jarden M, Wirenfeld Klausen T. Methodological aspects of health-related quality of life and analysis in patients with multiple myeloma. Br J Haematol 2019; 185: 1-14. doi: 10.1111/bjh.15759NielsenLKAbildgaardNJardenMWirenfeld KlausenTMethodological aspects of health-related quality of life and analysis in patients with multiple myeloma201918511410.1111/bjh.1575930656677Open DOISearch in Google Scholar
Giesinger JM, Kieffer JM, Fayers PM, Groenvold M, Petersen MA, Scott NW, et al. Replication and validation of higher order models demonstrated that a summary score for the EORTC QLQ-C30 is robust. J Clin Epidemiol 2016; 69: 79-88. doi: 10.1016/j.jclinepi.2015.08.007GiesingerJMKiefferJMFayersPMGroenvoldMPetersenMAScottNWet alReplication and validation of higher order models demonstrated that a summary score for the EORTC QLQ-C30 is robust201669798810.1016/j.jclinepi.2015.08.00726327487Open DOISearch in Google Scholar
Bejaković P, Kaliterna Lipovčan LJ. Quality of life in Croatia: key findings from national research. Dublin: European Foundation for the Improvement of Living and Working Conditions; 2007.BejakovićPKaliterna LipovčanLJDublinEuropean Foundation for the Improvement of Living and Working Conditions2007Search in Google Scholar
Hjermstad MJ, Fayers PM, Bjordal K, Kaasa S. Health related quality of life in the general Norwegian population assessed by the European Organization for Research and Treatment of Cancer Core Quality –of-Life Questionnaire: The QLQ=C30 (+3). J Clin Oncol 1998; 16: 1188-96. doi: 10.1200/JCO.1998.16.3.1188HjermstadMJFayersPMBjordalKKaasaSHealth related quality of life in the general Norwegian population assessed by the European Organization for Research and Treatment of Cancer Core Quality –of-Life Questionnaire: The QLQ=C30 (+3)19981611889610.1200/JCO.1998.16.3.11889508207Open DOISearch in Google Scholar
Ministry of Regional Development and European Union Funds. Development index. [cited 2018 Jun 21]. Available at: https://razvoj.gov.hr/o-ministarstvu/regionalni-razvoj/indeks-razvijenosti/1122018Jun 21]. Available athttps://razvoj.gov.hr/o-ministarstvu/regionalni-razvoj/indeks-razvijenosti/112Search in Google Scholar
Government of Republic of Croatia. Act on Regional Development of the Republic of Croatia 147/14, 123/17. NN. 132/2017. [cited 2018 Jun 21]. Available at: https://www.zakon.hr/z/239/Zakon-o-regionalnom-razvojuRepublike-Hrvatskehttps://www.zakon.hr/z/239/Zakon-o-regionalnom-razvojuRepublike-HrvatskeSearch in Google Scholar
Delforge M, Minuk L, Eisenmann JC, Arnulf B, Canepa L, Fragasso A, et al. Health-related quality of life in patients with newly diagnosed multiple myeloma in the FIRST trial: lenalidomide plus low-dose dexamethasone versus melphalan, prednisone, thalidomide. Haematologica 2015; 100: 826-33. doi: 10.3324/haematol.2014.120121DelforgeMMinukLEisenmannJCArnulfBCanepaLFragassoAet alHealth-related quality of life in patients with newly diagnosed multiple myeloma in the FIRST trial: lenalidomide plus low-dose dexamethasone versus melphalan, prednisone, thalidomide20151008263310.3324/haematol.2014.120121445062925769541Open DOISearch in Google Scholar
Despiegel N, Touboul C, Flinois A, Saba G, Suzan F, Gonzales-McQuire S. Health-related quality of life of patients with multiple myeloma treated in routine clinical practice in France. Clin Lymphoma Myeloma Leuk 2018; 19: 13-28. doi: 10.1016/j.clml.2018.08.01DespiegelNTouboulCFlinoisASabaGSuzanFGonzales-McQuireSHealth-related quality of life of patients with multiple myeloma treated in routine clinical practice in France201819132810.1016/j.clml.2018.08.01Open DOISearch in Google Scholar
Uyl-de Groot CA, Buijt I, Gloudemans IJM, Ossenkoppele GJ, Van den Berg HP, Huijgens PC. Health related quality of life in patients with multiple myeloma undergoing a double transplantation. Eur J Haematol 2005; 74: 136-43. doi: 10.1111/j.1600-0609.2004.00346.xUyl-de GrootCABuijtIGloudemansIJMOssenkoppeleGJVan den BergHPHuijgensPCHealth related quality of life in patients with multiple myeloma undergoing a double transplantation2005741364310.1111/j.1600-0609.2004.00346.x15654905Open DOISearch in Google Scholar
Osoba D, Rodrigues G, Myles J, Zee B, Pater J. Interpreting the significance of changes in health-related quality of life scores. J Clin Oncol 1998; 16: 139-44. doi: 10.1200/JCO.1998.16.1.139OsobaDRodriguesGMylesJZeeBPaterJInterpreting the significance of changes in health-related quality of life scores1998161394410.1200/JCO.1998.16.1.1399440735Open DOISearch in Google Scholar
Gjural S, Conroy T, Fleissner C, Sezer O, King PM, Avery KN, et al. Assessing quality of life in patients with colorectal cancer: An update of the EORTC quality of life questionnaire. Eur J Cancer 2007; 43: 1564-73. doi: 10.1016/j. ejca.2007.04.005GjuralSConroyTFleissnerCSezerOKingPMAveryKNet alAssessing quality of life in patients with colorectal cancer: An update of the EORTC quality of life questionnaire20074315647310.1016/j.ejca.2007.04.00517521904Open DOISearch in Google Scholar
Lange MM, Marijnen CAM, Maas CP, Putter H, Rutten HJ, Stiggelbout AM, et al. Risk factors for sexual dysfunction after rectal cancer treatment. Eur J Cancer 2009; 45: 1578-88. doi: 10.1016/j.ejca.2008.12.014LangeMMMarijnenCAMMaasCPPutterHRuttenHJStiggelboutAMet alRisk factors for sexual dysfunction after rectal cancer treatment20094515788810.1016/j.ejca.2008.12.01419147343Open DOISearch in Google Scholar
Salaffi F, Carotti M, Gasparini S, Intorcia M, Grassi W. Health and Quality of Life Outcomes. The health-related quality of life in rheumatoid arthritis, ankylosing spondylitis, and psoriatic arthritis: a comparison with a selected sample of healthy people. Health Qual Life Outcomes 2009; 18: 7-25. doi:10.1186/1477-7525-7-25SalaffiFCarottiMGaspariniSIntorciaMGrassiWHealth and Quality of Life Outcomes200918725doi10.1186/1477-7525-7-25267444519296831Open DOISearch in Google Scholar