The Situation of Parents of Children with Autism in the Context of Refugeeism and War Trauma

Al-Oran, H.M., & Khuan, L. (2021). Predictors of parenting stress in parents of children diagnosed with autism spectrum disorder: a scoping review. The Egyptian Journal of Neurology, Psychiatry and Neurosurgery, 57, 103. https://doi.org/10.1186/s41983-021-00345-w Search in Google Scholar

Benson, P.R., & Karlof, K.L. (2009). Anger, stress proliferation, and depressed mood among parents of children with ASD: a longitudinal replication. Journal of Autism and Developmental Disorders, 39, 350–362. https://doi.org/10.1007/s10803-008-0632-0 Search in Google Scholar

Bristor, M. (1984). The birth of a handicapped child: A wholistic model for grieving. Family Relations. National Council on Family Relations, 33, 25–32. Search in Google Scholar

Brysor, S.E., Clarc, B.S., & Smith, T.M. (1988). First report of Canadian epidemiological study of autistic syndromes. Journal of Child Psychology and Psychiatry, 29, 433–445. Search in Google Scholar

Camm-Crosbie, L., Bradley, L., Shaw, R, Baron-Cohen, S., & Cassidy, S. (2019). ‘People like me don’t get support’: Autistic adults’ experiences of support and treatment for mental health difficulties, self-injury and suicidality. Autism, 23(6), 1431–1441. https://doi.org/10.1177/1362361318816053 Search in Google Scholar

Cerimowić, E. (2023). At risk and overlooked: Children with disabilities and armed conflict. International Rewiew of the Red Cross, 105(922), 192–216: Persons with disabilities in armed conflict. https://doi.org/10.1017/S181638312200087X Search in Google Scholar

Charlson, F., Ommeren van, M., Flaxman, A., Cornett, J., Whiteford, H, & Saxena S. (2019). New WHO prevalence estimates of mental disorders in conflict settings: A systematic review and meta-analysis. Lancet, 394(10194), 240–248. Search in Google Scholar

Cohen, S. (1988). Psychosocial models of the role of social support in the etiology of physical disease. Health Psychology, 7(3), 269–297. https://doi.org/10.1037/0278-6133.7.3.269 Search in Google Scholar

Cohen, S., Gottlieb, B., & Underwood, L. (2000). Social Relationships and Health: Challenges for Measurement and Intervention. Oxford University Press Search in Google Scholar

Cunningham, A.B., & Schreibman, L. (2008). Stereotypy in Autism?: The Importance of Function. Research of Autism Spectrum Disorder, 2(3), 1–10. Search in Google Scholar

Davydenko, H. (2022). War makes everything worse in the life of a child with autism. http://www.niepelnosprawni.pl/ledge/x/2007346 Search in Google Scholar

Deschamps, T.D., Ibañez, L.V, Edmunds, S.R., Dick, C.C., & Stone, W.L. (2020). Parenting Stress in Caregivers of Young Children With ASD Concerns Prior to a Formal Diagnosis. Autism Research, (October 2019), 82–92. Search in Google Scholar

Do Rzeczy. (2022). Uchodźcy z Ukrainy w Polsce. Nowe dane Straży Granicznej. https://dorzeczy.pl/kraj/278167/straz-graniczna-nowe-dane-dot-uchodzcow-z-ukrainy-wpolsce.html, access date 30.12.2023 Search in Google Scholar

Eisenhower, A.S., Bruce, L.B., & Blacher, J. (2005). Preschool Children with Intellectual Disability: Syndrome Specifity, Behaviour Problems, and Maternal Well-Being. Intellect Disabilities Resources, 49(September), 657–671. Search in Google Scholar

Eltanamly, H., Leijten, P., Jak, S., & Overbeek, G. (2021). Parenting in Times of War: A Meta-Analysis and Qualitative Synthesis of War Exposure, Parenting, and Child Adjustment. Trauma, Violence, & Abuse, 22, 1, 147–160. https://doi.org/10.1177/1524838019833001 Search in Google Scholar

Everly, G.S. Jr, & Lating, J.A. (2002). Personality-guided approach to the treatment of post-traumatic stress disorder. American Psychological Association. Search in Google Scholar

Freeman, P., & Rees, T. (2010). Perceived social support from team-mates: direct and stress-buffering effects on self-confidence. European Journal of Sport Science, 10, 59–67. https://doi.org/10.1080/17461390903049998 Search in Google Scholar

Gentles, S.J., Nicholas, D.B., Jack, S.M., Mckibbon, K.A., & Szatmari, P. (2020). Coming to understand the child has autism: A process illustrating parents’ evolving readiness for engaging in care. Autism, 24(2), 470–483. Search in Google Scholar

Grandin, T. (2019). That’s how I see it. A Personal Look at Autism and Asperger’s Syndrome. Harmonia Publishing Group. Search in Google Scholar

Gray, D.E. (2006). Coping over time: the parents of children with autism. Journal of intellectual disability research, 50, 970–976. https://doi.org/10.1111/j.1365-2788.2006.00933.x Search in Google Scholar

Hollocks, M.J., Lerh, J.W., Magiati, J., Meiser- Stedman, R., & Brugha, T.S. (2018). Anxiety and depression in adults with autism spectrum disorder: a systematic review and meta- analysis. Psychological Medicine, 49(4), 559–572. https://doi.org/10.1017/S0033291718002283 Search in Google Scholar

Isański, J., Nowak M., Sereda, V., & Vakhitova, H. (2022): Public perception and integration of refugees from Ukraine. UKREF Research Report, 1(2022). https://doi.org/10.13140/RG.2.2.28450.91845 Search in Google Scholar

Jain, N., Prasad, S., Bordeniuc, A., Tanasov, A., Shirinskaya, A.V., Béla, B., Pong Cheuk, Ch., Nicu Banica, C., Singh Panag, D., Świątek, D., Savchenko, E., Platos, E., Betka, M.M., Phiri, M., Patel, S., Czárth, Z.C., Krygowska, A.M., Jain, S., & Reinis, A. (2022). European countries step-up humanitarian and medical assistance to Ukraine as the conflict continues. Journal of Primary Care & Community Health, 13. https://doi.org/10.1177/21501319221095358 Search in Google Scholar

Kanner, L. (1943). Autistic disturbances of affective contact. Nervous Child, 2, 217–250. Search in Google Scholar

Lane, S.J., Leão, M.A., & Spielmann, V. (2022). Sleep, Sensory Integration/Processing, and Autism: A Scoping Review. Frontiers in psychology, 13, https://doi.org/10.3389/fpsyg.2022.877527 Search in Google Scholar

Liebermann, L., Leske, D.A., Hatt, S.R., Wernimont, S.M., Cheng-Patel, C.S., Birch, E.E., & Holmes, J.M. (2018). Bilateral childhood visual impairment: child and parent concerns. JAAPOS, 21(3), 1–11. Search in Google Scholar

Lim, N., O’Reilly, M., Sigafoos J., Lancioni, G.E., & Sanchez, N.J. (2021). A Review of Barriers Experienced by Immigrant Parents of Children with Autism when Accessing Services. Review Journal of Autism and Developmental Disorders, 8, 366–372. https://doi.org/10.1007/s40489-020-00216-9 Search in Google Scholar

Maenner, M.J., Warren, Z., Williams, A.R., Amoakohene, E., Bakian, A.V., Bilder, D.A., Durkin, M.S., Fitzgerald, R.T., Furnier, S.M, Hughes, M.M., Ladd-Acosta, Ch., M., McArthur, D. M., Pas, E.T., Alinas, A., Vehorn, A., Williams, S., Esler, A., Grzybowski, A., Hall-Lande, J., Nguyen, R.H.N., Pierce, K., Zahorodny, W., Hudson, A., Hallas, L., Mancilla, K.C., Patrick, M., Shenouda, J., Sidwell, K., DiRienzo, M., Gutierrez, J., Spivey, M.H., Lopez, M., Pettygrove, S., Schwenk, Y., Washington, A., & Shaw, K.A. (2023). Prevalence and Characteristics of Autism Spectrum Disorder Among Children Aged 8 Years—Autism and Developmental Disabilities Monitoring Network, 11 Sites, United States, 2020. Surveill Summary, 72(2), 1–14. http://dx.doi.org/10.15585/mmwr.ss7202a1 Search in Google Scholar

McStay, R.L., Trembath, D., & Dissanayake, C. (2014). Stress and Family Quality of Life in Parents of Children with Autism Spectrum Disorder: Parent Gender and the Double ABCX Model. Journal of Autism and Developmental Disorders, 44(12), 3101–3118. Search in Google Scholar

Pisula, E. (2012a). Autyzm Od badań mózgu do praktyki psychologicznej [Autism. From brain research to psychological practice]. Gdańskie Wydawnictwo Psychologiczne. Search in Google Scholar

Pisula, E. (2012b). Rodzice i dzieci z autyzmem [Parents of children with autism]. Wydawnictwo Naukowe PWN. Search in Google Scholar

Pisula, E., Winczura, B., & Banasiak, A. (2023). Wsparcie dzieci i młodzieży w spektrum autyzmu – uchodźców z Ukrainy i ich rodzin. Raport z badań [Support for children and youth on the autism spectrum – refugees from Ukraine and their families. Research report]. Publisher unknown. Search in Google Scholar

Pozo, P., & Sarriá, E. (2014). Prediction of stress in mothers of children with autism spectrum disorders. The Spanish Journal of Psychology, 17, E6. https://doi.org/10.1017/sjp.2014.6 Search in Google Scholar

Pracownia Testów Psychologicznych Polskiego Towarzystwa Psychologicznego. (2024). Formularze do badania online osób przybyłych z Ukrainy. https://www.practest.com.pl/testy-online-obcojezyczne Search in Google Scholar

Reed, P., & Osborne, L.A. (2019). Reaction to diagnosis and subsequent health in mothers of children with autismspectrum disorder. Autism, 23(6), 1442–1448. https://doi.org/10.1177/1362361318815641 Search in Google Scholar

Robertson, C.E., & Baron-Cohen, S. (2017). Sensory perception in autism. Nature Reviews, 18, 671–684. Search in Google Scholar

Robinson, S., & Weiss, J.A. (2020). Examining the relationship between social support and stress for parents of individuals with autism. Research in Autism Spectrum Disorders, 74, 101557. https://doi.org/10.1016/j.rasd.2020.101557 Search in Google Scholar

Robinson, S., Weiss, J.A., Lunsky, Y., & Ouellette-Kuntz, H. (2016). Informal support and burden among parents of adults with intellectual and/or developmental disabilities. Journal of Applied Research in Intellectual Disabilities, 29, 356–365. https://doi.org/10.1111/jar.12184 Search in Google Scholar

Rozporządzenie Ministra Edukacji i Nauki z dnia 21 marca 2022 r. w sprawie organizacji kształcenia, wychowania i opieki dzieci i młodzieży będących obywatelami Ukrainy. (2022) Dz.U. 2022 poz. 645. https://isap.sejm.gov.pl/isap.nsf/DocDetails.xsp?id=WDU20220000645 Search in Google Scholar

Rueger, S.Y., Malecki, C.K., Pyun, Y., Aycock, C., & Coyle, S. (2016). A meta-analytic review of the association between perceived social support and depression in childhood and adolescence. Psychological Bulletin, 142(10), 1017–1067. https://doi.org/10.1037/bul0000058 Search in Google Scholar

Schoen, S.A., Lane, S.J., Mailloux, Z., May-Benson, T., Parham, L.D., Roley, S.S., & Schaaf, R.C. (2019). A Systematic Review of Ayres Sensory Integration Intervention for Children with Autism. Autism Research, 12(1), 6–19. Search in Google Scholar

Shacknove, A.E. (1985). Who Is a Refugee? Ethics, 95(2), 274–284. Search in Google Scholar

Slone, M., & Shoshani, A. (2017). Children Affected by War and Armed Conflict: Parental Protective Factors and Resistance to Mental Health. Frontiers in Psychology, 8, 1397. https://doi.org/10.3389/fpsyg.2017.01397 Search in Google Scholar

Swaab, L., Goodwin, J., Wroel, J., Woolard, A., McCormack, L., & Campbell, L. (2021). Stigma Associated with Parenting an Autistic Child with Aggressive Behaviour: a Systematic Review. Review Journal of Autism and Developmental Disorders, 10(4), 281–294. https://doi.org/10.1007/s40489-021-00292-5 Search in Google Scholar

Shevchenko, W.M. (2022). Main aspects of corrective work and psychological support for disabled children in Ukraine during the war. Disability—issues, problem, solutions, 1–2(42–43), 228–236. Search in Google Scholar

Szmania, L. (2014). Doświadczenia emocjonalne rodziców dzieci z autyzmem. Inter-dyscyplinarne Konteksty Pedagogiki Specjalnej, 5, 69–91. https://doi.org/10.14746/ikps.2014.5.05 Search in Google Scholar

Tak, Y.R., & McCubbin, M. (2002). Family stress, perceived social support and coping following the diagnosis of a child’s congenital heart disease. Journal of Advanced Nursing, 39, 190–198. https://doi.org/10.1046/j.1365-2648.2002.02259.x Search in Google Scholar

Thoits, P.A. (1982). Conceptual, methodological, and theoretical problems in studying social support as a buffer against life stress. Journal of Health and Social Behavior, 23, 145–59. https://doi.org/10.2307/2136511 Search in Google Scholar

Turaleva, I. (2023). Dzisiejsza sytuacja na polskiej granicy: ilu Ukraińców przekroczyło granicę z Polską w 2023 r. Ukrainian in Poland. https://www.ukrainianinpoland.pl/how-many-ukrainians-have-crossed-the-ukrainian-polish-border-since-the-beginning-of-the-war-current-data-pl/ Search in Google Scholar

Watson, S., Hayes, S., Radford-Paz, E., & Coons, K. (2013). “I’m hoping, I’m hoping…”: Thoughts About the Future from Families of Children with Autism or Fetal Alcohol Spectrum Disorder in Ontario. Journal on Developmental Disabilities, 19(3), 76–93. Search in Google Scholar

Wciórka, J. (2024). W Polsce jest zaledwie 4 tys. psychiatrów, a potrzeba ich kilkukrotnie więcej. Brakuje przede wszystkim psychiatrów dziecięcych. Newseria. Biznes. https://biznes.newseria.pl/news/w-polsce-jest-zaledwie-4,p1352532508 Search in Google Scholar

Williams, D. (2005). Nikt nigdzie [Nobody Nowhere]. Fraszka Edukacyjna. Search in Google Scholar

Wingate, M., Kirby, R.S., & Pettygrove, S. (2014). Prevalence of autism spectrum disorder among children aged 8 years-autism and developmental disabilities monitoring network, 11 sites, United States. MMWR. Surveillance Summaries, 63(2), 1–21. https://pubmed.ncbi.nlm.nih.gov/24670961/ Search in Google Scholar

Yanes, T., Humphreys, L., Mcinerney-Leo, A., & Biesecker, B. (2016). Factors Associated with Parental Adaptation to Children with an Undiagnosed Medical Condition. National Society of Genetic Counselors, 26(4), 829–840. https://doi.org/10.1007/s10897-016-0060-9 Search in Google Scholar

Zabłocka-Żytka, L., & Lavdas, M. (2023). Stres wojny. Zalecenia dotyczące ochrony zdrowia psychicznego i dobrostanu zarówno uchodźców ukraińskich, jak i Polaków zaangażowanych w ich wsparcie [The stress of war. Recommendations for the protection of mental health and well-being for both Ukrainian refugees as well as Poles supporting them]. Psychiatria Polska, 57(4), 729–746. https://doi.org/10.12740/PP/156157 Search in Google Scholar

Zalewski, G. (Ed.). (2012). Inne, ale nie gorsze. O dzieciach z autyzmem opowiadają rodzice [Different, but not worse. Parents talk about children with autism]. Wydawnictwo Linia (seria Biała Plama). Search in Google Scholar