Otwarty dostęp

Factors associated with delays in seeking treatment for acute bleeding among persons living with haemophilia in Uganda: a cross-sectional mixed methods study


Zacytuj

Fijnvandraat K, Cnossen MH, Leebeek FWG, Peters M. Diagnosis and management of haemophilia. BMJ 2012; 344: e2707. doi: 10.1136/bmj.e2707. Fijnvandraat K Cnossen MH Leebeek FWG Peters M . Diagnosis and management of haemophilia . BMJ 2012 ; 344 : e2707 . doi: 10.1136/bmj.e2707 . Open DOISearch in Google Scholar

Shoukat HMH, Ghulam Ghous G, Tarar ZI, Shoukat MM, Ajma N. Skewed inactivation of X chromosome: a cause of hemophilia manifestation in carrier females. Cureus 2020; 12(10):e11216. doi: 10.7759/cureus.11216. Shoukat HMH Ghulam Ghous G Tarar ZI Shoukat MM Ajma N . Skewed inactivation of X chromosome: a cause of hemophilia manifestation in carrier females . Cureus 2020 ; 12 ( 10 ):e11216 . doi: 10.7759/cureus.11216 . Open DOISearch in Google Scholar

van Galen K, Lavin M, Skouw-Rasmussen N, et al.; European Haemophilia Consortium (EHC), European Association for Haemophilia and Allied Disorders (EAHAD). European principles of care for women and girls with inherited bleeding disorders. Haemophilia 2021; 27(5): 837-847. doi: 10.1111/hae.14379. van Galen K Lavin M Skouw-Rasmussen N .; European Haemophilia Consortium (EHC), European Association for Haemophilia and Allied Disorders (EAHAD). European principles of care for women and girls with inherited bleeding disorders . Haemophilia 2021 ; 27 ( 5 ): 837 - 847 . doi: 10.1111/hae.14379 . Open DOISearch in Google Scholar

Iorio A, Stonebraker JS, Chambost H, et al. Establishing the prevalence and prevalence at birth of hemophilia in males: A meta-analystic approach using national registries. Ann Intern Med 2019; 171(8): 540-546. doi: 10.7326/M19-1208. Iorio A Stonebraker JS Chambost H . Establishing the prevalence and prevalence at birth of hemophilia in males: A meta-analystic approach using national registries . Ann Intern Med 2019 ; 171 ( 8 ): 540 - 546 . doi: 10.7326/M19-1208 . Open DOISearch in Google Scholar

Mbanya DN, Diop S, Ndoumba Mintya AN, El Kiaby M. Hemophilia care in Africa: Status and challenges. Transfus Clin Biol 2021; 28, 158-162. doi: 10.1016/j.tracli.2021.01.008. Mbanya DN Diop S Ndoumba Mintya AN El Kiaby M . Hemophilia care in Africa: Status and challenges . Transfus Clin Biol 2021 ; 28 , 158 - 162 . doi: 10.1016/j.tracli.2021.01.008 . Open DOISearch in Google Scholar

Stonebraker JS, Bolton-Maggs PHB, Brooker M, et al. The World Federation of Hemophilia Annual Global Survey 1999-2018. Haemophilia 2020; 26, 591-600. doi: 10.1111/hae.14012. Stonebraker JS Bolton-Maggs PHB Brooker M . The World Federation of Hemophilia Annual Global Survey 1999-2018 . Haemophilia 2020 ; 26 , 591 - 600 . doi: 10.1111/hae.14012 . Open DOISearch in Google Scholar

Srivastava A, Santagostino E, Dougall A, et al. 2020. WFH Guidelines for the Management of Hemophilia, 3rd edition. Haemophilia 2020; 26 (Suppl 6): 1-158. doi: 10.1111/hae.14046. Srivastava A Santagostino E Dougall A . 2020 . WFH Guidelines for the Management of Hemophilia , 3rd edition . Haemophilia 2020 ; 26 ( Suppl 6 ): 1 - 158 . doi: 10.1111/hae.14046 . Open DOISearch in Google Scholar

Camelo R. Ageing and increasing doses are factors related to delays for adults with haemophilia to seek prophylactic clotting factors. Am J Biomed Sci & Res 2021; 12: 451-457. doi: 10.34297/AJBSR.2021.12.001789. Camelo R . Ageing and increasing doses are factors related to delays for adults with haemophilia to seek prophylactic clotting factors . Am J Biomed Sci & Res 2021 ; 12 : 451 - 457 . doi: 10.34297/AJBSR.2021.12.001789 . Open DOISearch in Google Scholar

Kasirye P. Kisakye A, Nakalyango A, Barnabas A. Processes and experiences of satellite haemophilia clinic set-ups in Uganda – a short report. J Haem Pract 2022; 9(1): 76-78. doi: 10.2478/jhp-2022-0009. Kasirye P. Kisakye A Nakalyango A Barnabas A . Processes and experiences of satellite haemophilia clinic set-ups in Uganda – a short report . J Haem Pract 2022 ; 9 ( 1 ): 76 - 78 . doi: 10.2478/jhp-2022-0009 . Open DOISearch in Google Scholar

Skinner MW, Nugent D, Wilton P et al. Achieving the unimaginable: Health equity in haemophilia. Haemophilia 2020; 26: 17-24. doi: 10.1111/hae.13862. Skinner MW Nugent D Wilton P . Achieving the unimaginable: Health equity in haemophilia . Haemophilia 2020 ; 26 : 17 - 24 . doi: 10.1111/hae.13862 . Open DOISearch in Google Scholar

Kish L. Sampling organizations and groups of unequal sizes. American Sociological Review 1965; 30(4): 564-572. doi: 10.2307/2091346. Kish L . Sampling organizations and groups of unequal sizes . American Sociological Review 1965 ; 30 ( 4 ): 564 - 572 . doi: 10.2307/2091346 . Open DOISearch in Google Scholar

Saxena K. Barriers and perceived limitations to early treatment of hemophilia. J Blood Med 2013; 4: 49-56. Doi: 10.2147/JBM.S43734. Saxena K . Barriers and perceived limitations to early treatment of hemophilia . J Blood Med 2013 ; 4 : 49 - 56 . Doi: 10.2147/JBM.S43734 . Open DOISearch in Google Scholar

Lusher JM. Early treatment with recombinant factor VIIa results in greater efficacy with less product. Eur J Haematol Suppl 1998; 63: 7-10. doi: 10.1111/j.1600-0609.1998.tb01103.x. Lusher JM . Early treatment with recombinant factor VIIa results in greater efficacy with less product . Eur J Haematol Suppl 1998 ; 63 : 7 - 10 . doi: 10.1111/j.1600-0609.1998.tb01103.x . Open DOISearch in Google Scholar

Srivastava A. Delivery of haemophilia care in the developing world. Haemophilia 1998; 4(s2): 33-40. doi: 10.1046/j.1365-2516.1998.0040s2033.x. Srivastava A . Delivery of haemophilia care in the developing world . Haemophilia 1998 ; 4 ( s2 ): 33 - 40 . doi: 10.1046/j.1365-2516.1998.0040s2033.x . Open DOISearch in Google Scholar

Adewuyi JO, Coutts AM, Levy L, Lloyd SE. Haemophilia care in Zimbabwe. Cent Afr J Med 1996; 42(5): 153-6. Adewuyi JO Coutts AM Levy L Lloyd SE . Haemophilia care in Zimbabwe . Cent Afr J Med 1996 ; 42 ( 5 ): 153 - 6 . Search in Google Scholar

Ghosh K, Ghosh K. Management of haemophilia in developing countries: challenges and options. Indian J Hematol Blood Transfus 2016; 32(3): 347-355. doi: 10.1007/s12288-015-0562-x. Ghosh K Ghosh K . Management of haemophilia in developing countries: challenges and options . Indian J Hematol Blood Transfus 2016 ; 32 ( 3 ): 347 - 355 . doi: 10.1007/s12288-015-0562-x . Open DOISearch in Google Scholar

Verma SP. Dutta TK, Mahadevan S, et al. A randomized study of very low dose factor VIII prophylaxis in severe haemophilia — a success story from a resource limited country. Haemophilia 2016; 22(3): 342-348. doi: 10.1111/hae.12838. Verma SP. Dutta TK Mahadevan S . A randomized study of very low dose factor VIII prophylaxis in severe haemophilia — a success story from a resource limited country . Haemophilia 2016 ; 22 ( 3 ): 342 - 348 . doi: 10.1111/hae.12838 . Open DOISearch in Google Scholar

Zhou Z-Y, Riske B, Forsberg AD, et al. Self-reported barriers to hemophilia care in people with factor VIII deficiency. Am J Prev Med 2011; 41(6 Suppl 4): S346-53. doi: 10.1016/j.amepre.2011.09.003. Zhou Z-Y Riske B Forsberg AD . Self-reported barriers to hemophilia care in people with factor VIII deficiency . Am J Prev Med 2011 ; 41 ( 6 Suppl 4 ): S346-53 . doi: 10.1016/j.amepre.2011.09.003 . Open DOISearch in Google Scholar

Blanchette VS, Key NS, Ljung LR, et al. Definitions in hemophilia: communication from the SSC of the ISTH. J Thromb Haemost 2014; 12(11); 1935-1939. doi: 10.1111/ jth.12672. Blanchette VS Key NS Ljung LR . Definitions in hemophilia: communication from the SSC of the ISTH . J Thromb Haemost 2014 ; 12 ( 11 ); 1935 - 1939 . doi: 10.1111/jth.12672 . Open DOISearch in Google Scholar

Babington-Ashaye A, Diop S, Geissbuhler A, de Moerloose P. Unravelling the knowledge, beliefs, behaviours and concerns of persons with haemophilia and their carriers in Senegal. Haemophilia 2020; 26(5): 840-846. doi: 10.1111/hae.14040. Babington-Ashaye A Diop S Geissbuhler A de Moerloose P . Unravelling the knowledge, beliefs, behaviours and concerns of persons with haemophilia and their carriers in Senegal . Haemophilia 2020 ; 26 ( 5 ): 840 - 846 . doi: 10.1111/hae.14040 . Open DOISearch in Google Scholar

de Moerloose P. Davis JA, El Fegoun SB, Habis R, Klamroth R. Barriers and challenges for the fast treatment of bleeds in the non-haemophilia treatment centre hospital setting. Haemophilia 2020; 26(3): 422-430. doi: 10.1111/hae.13956. de Moerloose P. Davis JA El Fegoun SB Habis R Klamroth R . Barriers and challenges for the fast treatment of bleeds in the non-haemophilia treatment centre hospital setting . Haemophilia 2020 ; 26 ( 3 ): 422 - 430 . doi: 10.1111/hae.13956 . Open DOISearch in Google Scholar

eISSN:
2055-3390
Język:
Angielski
Częstotliwość wydawania:
Volume Open
Dziedziny czasopisma:
Medicine, Basic Medical Science, other, Clinical Medicine, Pharmacy, Pharmacology