Key challenges for patient registries – A report from the 1^st workshop of the EHC Think Tank Workstream on Registries

Kategoria artykułu: Systems Change

Data publikacji: 09 mar 2022

Zakres stron: 14 - 19

DOI: https://doi.org/10.2478/jhp-2022-0002

Słowa kluczowe

Bleeding disorders, Registries, Patient-reported health data, Systems change, Co-creation

© 2022 Amanda Bok et al., published by Sciendo

This work is licensed under the Creative Commons Attribution-NonCommercial-NoDerivatives 3.0 License.