[1. Srivastava A, Brewer AK, MauserTBunschoten EP, et al. Guidelines for the management of hemophilia. Haemophilia 2013; 19U1V: e1T47.10.1111/j.1365-2516.2012.02909.x]Open DOISearch in Google Scholar
[2. RodriguezTMerchan EC. Prevention of the musculoskeletal complications of hemophilia. Adv Prev Med 2012; 2012: 201271.]Search in Google Scholar
[3. Gringeri A, Ewenstein B, Reininger A. The burden of bleeding in haemophilia: is one bleed too many? Haemophilia 2014; 20: 459T63.10.1111/hae.12375]Open DOISearch in Google Scholar
[4. Elander J. A review of evidence about behavioral and psychological aspects of van Genderen FR, Fischer K, Heijnen L et al. Pain and functional limitations in patients with severe haemophilia. Haemophilia 2006; 12: 147W53.10.1111/j.1365-2516.2006.01203.x]Open DOISearch in Google Scholar
[6. Forsyth A, Guelcher C, Nugent D et al. Hemophilia Impacts Quality of Life UQoLV in Adult PWH at an Early Age, with Pain a Contributing Factor: US Results From the Hemophilia Experiences, Results and Opportunities UHEROV Study. Poster presented at National Hemophilia Foundation 64th Annual Meeting; Orlando, Florida; November 8T10, 2012.]Search in Google Scholar
[7. Cassis FRMY, Querol F, Forsyth A et al. Psychosocial aspects of haemophilia: a systematic review of methodologies and findings. Haemophilia 2012; 18: e101T114.10.1111/j.1365-2516.2011.02683.x]Open DOISearch in Google Scholar
[8. Norton BTA, Thomas R, Lomax G, DudleyTBrown S. Patient perspectives on the impact of Crohns disease: results from group interviews. Patient Preference and Adherence 2012; 6: 509T20.10.2147/PPA.S32690]Search in Google Scholar
[9. Bottos AM, Zanon E, Sartorri MT, Girolami A. Psychosocial aspects and coping styles of parents with haemophiliac child undergoing a programme of counseling and psychological support. Haemophilia 2007; 13: 305T10.10.1111/j.1365-2516.2006.01428.x]Open DOISearch in Google Scholar
[10. Wiesesbusch S, Pollmann H, Siegmund B, Muthny FA. Quality of life, psychosocial strains and coping in parents of children with haemophilia. Haemophilia 2008; 14: 1014T22.10.1111/j.1365-2516.2008.01803.x]Search in Google Scholar
[11. Emiliani F, Bertocchi S, Poti S, Palaretu L. Process of normalization in families with children affected by hemophilia. Qual Health Res 2011; 12: 1667T7810.1177/1049732311417456]Search in Google Scholar
[12. Dekoven M, Karkare S, Kelley LA et al. Understanding the experience if caring for children with haemophilia: crossTsectional study of caregivers in the United States. Haemophilia 2014: 4: 541T9.10.1111/hae.12379]Open DOISearch in Google Scholar
[13. Atkin K, Ahmad W. Living a ‘normal’ life: young people coping with thalassaemia major or sickle cell disorder. Soc Sci Med 2001; 53; 615T26.10.1016/S0277-9536(00)00364-6]Search in Google Scholar
[14. Beeton K, Neal D, Lee C. An exploration of healthTrelated quality of life in adults with haemophilia. Haemophilia 2005; 11: 123T32.10.1111/j.1365-2516.2005.01077.x15810914]Open DOISearch in Google Scholar
[15. Elander J, Morris J, Robinson G. Pain coping and acceptance as longitudinal predictors of healthTrelated quality of life among people with haemophiliaTrelated joint pain. Eur J Pain 2103; 17: 929T38.10.1002/j.1532-2149.2012.00258.x23242704]Search in Google Scholar
[16. Binnema M, Schrijvers LH, Bos R et al. Coping in adult patients with severe haemophilia. Haemophilia 2014; 4: 513T8.10.1111/hae.1236624456085]Search in Google Scholar
[17. Young G, Tachdjian R, Baumann K, Panopoulos G. Comprehensive management of chronic pain in haemophilia. Haemophilia 2014; 2: e113T20.10.1111/hae.1234924372731]Search in Google Scholar
[18. Forsyth AL, Gregory M, Nugent D, et al. Haemophilia Experiences, Results and Opportunities UHEROV Study: survey methodology and population demographics. Haemophilia 2014; 20: 44T51.10.1111/hae.1223923902228]Search in Google Scholar
[19. Bos R. Haemophilia patients are aging. In: MauserTBunscotten EP De KnechtX Van Eekelen A, Smit C UedsV Aging with haemophilia, medical and psychological impact. Utrecht, The Netherlands, Van Creveldkliniek Haematology 2007: 87T93.]Search in Google Scholar
[20. Vallejo L, Pardo A, Gomis M, et al. Influence of aquatic training on the motor performance of patients with haemophilic arthropathy. Haemophilia 2010; 16;1: 155T16110.1111/j.1365-2516.2009.02098.x19804384]Open DOISearch in Google Scholar
[21. Lobet S, Detrembleur C, Lantin A, et al. Functional impact of customTmade foot orthoses in patients with haemophilic ankle arthropathy. Haemophilia 2012; 18: 227T 235.10.1111/j.1365-2516.2011.02711.x22176541]Open DOISearch in Google Scholar