Zacytuj

1. Srivastava A, Brewer AK, MauserTBunschoten EP, et al. Guidelines for the management of hemophilia. Haemophilia 2013; 19U1V: e1T47.10.1111/j.1365-2516.2012.02909.xOpen DOISearch in Google Scholar

2. RodriguezTMerchan EC. Prevention of the musculoskeletal complications of hemophilia. Adv Prev Med 2012; 2012: 201271.Search in Google Scholar

3. Gringeri A, Ewenstein B, Reininger A. The burden of bleeding in haemophilia: is one bleed too many? Haemophilia 2014; 20: 459T63.10.1111/hae.12375Open DOISearch in Google Scholar

4. Elander J. A review of evidence about behavioral and psychological aspects of van Genderen FR, Fischer K, Heijnen L et al. Pain and functional limitations in patients with severe haemophilia. Haemophilia 2006; 12: 147W53.10.1111/j.1365-2516.2006.01203.xOpen DOISearch in Google Scholar

6. Forsyth A, Guelcher C, Nugent D et al. Hemophilia Impacts Quality of Life UQoLV in Adult PWH at an Early Age, with Pain a Contributing Factor: US Results From the Hemophilia Experiences, Results and Opportunities UHEROV Study. Poster presented at National Hemophilia Foundation 64th Annual Meeting; Orlando, Florida; November 8T10, 2012.Search in Google Scholar

7. Cassis FRMY, Querol F, Forsyth A et al. Psychosocial aspects of haemophilia: a systematic review of methodologies and findings. Haemophilia 2012; 18: e101T114.10.1111/j.1365-2516.2011.02683.xOpen DOISearch in Google Scholar

8. Norton BTA, Thomas R, Lomax G, DudleyTBrown S. Patient perspectives on the impact of Crohns disease: results from group interviews. Patient Preference and Adherence 2012; 6: 509T20.10.2147/PPA.S32690Search in Google Scholar

9. Bottos AM, Zanon E, Sartorri MT, Girolami A. Psychosocial aspects and coping styles of parents with haemophiliac child undergoing a programme of counseling and psychological support. Haemophilia 2007; 13: 305T10.10.1111/j.1365-2516.2006.01428.xOpen DOISearch in Google Scholar

10. Wiesesbusch S, Pollmann H, Siegmund B, Muthny FA. Quality of life, psychosocial strains and coping in parents of children with haemophilia. Haemophilia 2008; 14: 1014T22.10.1111/j.1365-2516.2008.01803.xSearch in Google Scholar

11. Emiliani F, Bertocchi S, Poti S, Palaretu L. Process of normalization in families with children affected by hemophilia. Qual Health Res 2011; 12: 1667T7810.1177/1049732311417456Search in Google Scholar

12. Dekoven M, Karkare S, Kelley LA et al. Understanding the experience if caring for children with haemophilia: crossTsectional study of caregivers in the United States. Haemophilia 2014: 4: 541T9.10.1111/hae.12379Open DOISearch in Google Scholar

13. Atkin K, Ahmad W. Living a ‘normal’ life: young people coping with thalassaemia major or sickle cell disorder. Soc Sci Med 2001; 53; 615T26.10.1016/S0277-9536(00)00364-6Search in Google Scholar

14. Beeton K, Neal D, Lee C. An exploration of healthTrelated quality of life in adults with haemophilia. Haemophilia 2005; 11: 123T32.10.1111/j.1365-2516.2005.01077.x15810914Open DOISearch in Google Scholar

15. Elander J, Morris J, Robinson G. Pain coping and acceptance as longitudinal predictors of healthTrelated quality of life among people with haemophiliaTrelated joint pain. Eur J Pain 2103; 17: 929T38.10.1002/j.1532-2149.2012.00258.x23242704Search in Google Scholar

16. Binnema M, Schrijvers LH, Bos R et al. Coping in adult patients with severe haemophilia. Haemophilia 2014; 4: 513T8.10.1111/hae.1236624456085Search in Google Scholar

17. Young G, Tachdjian R, Baumann K, Panopoulos G. Comprehensive management of chronic pain in haemophilia. Haemophilia 2014; 2: e113T20.10.1111/hae.1234924372731Search in Google Scholar

18. Forsyth AL, Gregory M, Nugent D, et al. Haemophilia Experiences, Results and Opportunities UHEROV Study: survey methodology and population demographics. Haemophilia 2014; 20: 44T51.10.1111/hae.1223923902228Search in Google Scholar

19. Bos R. Haemophilia patients are aging. In: MauserTBunscotten EP De KnechtX Van Eekelen A, Smit C UedsV Aging with haemophilia, medical and psychological impact. Utrecht, The Netherlands, Van Creveldkliniek Haematology 2007: 87T93.Search in Google Scholar

20. Vallejo L, Pardo A, Gomis M, et al. Influence of aquatic training on the motor performance of patients with haemophilic arthropathy. Haemophilia 2010; 16;1: 155T16110.1111/j.1365-2516.2009.02098.x19804384Open DOISearch in Google Scholar

21. Lobet S, Detrembleur C, Lantin A, et al. Functional impact of customTmade foot orthoses in patients with haemophilic ankle arthropathy. Haemophilia 2012; 18: 227T 235.10.1111/j.1365-2516.2011.02711.x22176541Open DOISearch in Google Scholar

eISSN:
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Volume Open
Dziedziny czasopisma:
Medicine, Basic Medical Science, other, Clinical Medicine, Pharmacy, Pharmacology