Designing ATHN 7: Safety, effectiveness and practice of treatment of people with haemophilia in the United States through a natural history cohort study
This work is licensed under the Creative Commons Attribution-NonCommercial-NoDerivatives 3.0 License.
The American Thrombosis and Hemostasis Network (ATHN) is building a comprehensive dataset on treatment safety, effectiveness, regimens, target joints, and patient-reported outcomes for people with haemophilia in the United States
Figure 1
ATHN 7 schedule of eventsAE: Adverse event PRO: Patient-reported outcome
Figure 2
ATNH 7 accrualActual versus projected accrual into ATHN 7. The shaded area represents the onset of the COVID-19 pandemic and the decision to pause accrual into ATHN 7 with the planned transition of participants into ATHN Transcends.
Figure 3
List of participating HTCs and accruals by site
Patient-reported outcomes data collected from participants (or parent proxies) at enrolment in ATHN 7