Development of a patient-reported outcomes tool to monitor changes in joint health and wellbeing for young people with haemophilia B
Melanie Bladen
Great Ormond Street Hospital for Children NHS Foundation TrustLondon, UK
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, Janet McDonagh
Manchester Academic Health Science Centre, University of Manchester, National Institute for Health Research Biomedical Research Centre, Manchester University Hospital NHS TrustManchester,
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, Paul McLaughlin
Katharine Dornandy Haemophilia Centre and Thrombosis Unit, Royal Free London NHS Foundation TrustLondon, UK
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, , , , Brittany Klooster
Adelphi Values Patient-Centered OutcomesBoston, US
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, , Diane M. Turner-Bowker
Adelphi Values Patient-Centered OutcomesBoston, US
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, , , , , et 20 sept. 2024
À propos de cet article
Catégorie d'article: Clinical Research
Publié en ligne: 20 sept. 2024
Pages: 108 - 122
DOI: https://doi.org/10.2478/jhp-2024-0014
Mots clés
© 2024 Melanie Bladen et al., published by Sciendo
This work is licensed under the Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License.
Bladen, Melanie
Great Ormond Street Hospital for Children NHS Foundation TrustLondon, UK
McDonagh, Janet
Manchester Academic Health Science Centre, University of Manchester, National Institute for Health Research Biomedical Research Centre, Manchester University Hospital NHS TrustManchester
McLaughlin, Paul
Katharine Dornandy Haemophilia Centre and Thrombosis Unit, Royal Free London NHS Foundation TrustLondon, UK
Gooding, Richard
Haemophilia Comprehensive Care Centre, Belfast Health and Social Care Trust, Belfast City HospitalBelfast, UK
Holder, Kerry-Ann
Child Health Psychology, Inherited Bleeding Disorders and Hereditary Anaemias, Noah’s Ark Children’s Hospital for WalesCardiff, UK
Thind, Sharon
Haemophilia Comprehensive Care Centre, Alder Hey Children's HospitalLiverpool, UK
Klooster, Brittany
Adelphi Values Patient-Centered OutcomesBoston, US
Shields, Alan
Adelphi Values Patient-Centered OutcomesBoston, US
Turner-Bowker, Diane M.
Adelphi Values Patient-Centered OutcomesBoston, US
Chatterton, Kaitlin
Ultragenyx PharmaceuticalNovato, US
Leso, Allison
Adelphi Values Patient-Centered OutcomesBoston, US
Volpi, Connor
Adelphi Values Patient-Centered OutcomesBoston, US
Sivasubramaniyam, Sujan
CSL BehringLondon, UK
Abulizi, Jiawula
CSL BehringLondon, UK
Khan, Nisa
CSL BehringLondon, UK