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Living, Caring, Learning – Listening to patients with bleeding disorders and not being afraid to advocate

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Witkop M, Lambing A, Kachalsky E, Divine G, Rushlow D, Dinnen J. Assessment of acute and persistent pain management in patients with haemophilia. Haemophilia 2011; 17(4): 612-9. doi: 10.1111/j.1365-2516.2010.02479.x. Witkop M Lambing A Kachalsky E Divine G Rushlow D Dinnen J . Assessment of acute and persistent pain management in patients with haemophilia . Haemophilia 2011 ; 17 ( 4 ): 612 - 9 . doi: 10.1111/j.1365-2516.2010.02479.x . Open DOISearch in Google Scholar

Santaella ME, Witkop ML, Mills K, Recht M, DiMichele D, Valentino LA. National Hemophilia Foundation enlists diverse patient voices to inform a national research blueprint for inherited bleeding disorders. Blood 2021; 138(Suppl 1): 1904. doi: 10.1182/blood-2021-147857. Santaella ME Witkop ML Mills K Recht M DiMichele D Valentino LA . National Hemophilia Foundation enlists diverse patient voices to inform a national research blueprint for inherited bleeding disorders . Blood 2021 ; 138 ( Suppl 1 ): 1904 . doi: 10.1182/blood-2021-147857 . Open DOISearch in Google Scholar

Valentino LA, Witkop ML, Santaella ME, DiMichele D, Recht M. Building the blueprint: Formulating a community-generated national plan for future research in inherited bleeding disorders. Haemophilia 2022; 28(5): 760-768. doi: 10.1111/hae.14588. Valentino LA Witkop ML Santaella ME DiMichele D Recht M . Building the blueprint: Formulating a community-generated national plan for future research in inherited bleeding disorders . Haemophilia 2022 ; 28 ( 5 ): 760 - 768 . doi: 10.1111/hae.14588 . Open DOISearch in Google Scholar

National Bleeding Disorders Foundation. Community Voices in Research. Available from: https://www.hemophilia.org/research/community-voices-in-research (accessed September 2023). National Bleeding Disorders Foundation . Community Voices in Research . Available from: https://www.hemophilia.org/research/community-voices-in-research ( accessed September 2023 ). Search in Google Scholar

eISSN:
2055-3390
Langue:
Anglais
Périodicité:
Volume Open
Sujets de la revue:
Medicine, Basic Medical Science, other, Clinical Medicine, Pharmacy, Pharmacology