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Elander J, Barry T: Analgesic use and pain copings among patients with hemophilia. Haemophilia 2003, 9:202-1. doi: 10.1046/j.1365-2516.2003.00723.x Elander J Barry T : Analgesic use and pain copings among patients with hemophilia . Haemophilia 2003 , 9 : 202 - 1 . doi: 10.1046/j.1365-2516.2003.00723.x Open DOISearch in Google Scholar

Santavirta N, Bjorvell H, Solovieva S, Alaranta H, Hurskainen K, Konttinen Y. Coping strategies, pain, and disability in patients with hemophilia and related disorders. Arthritis Rheum 2001; 45:48-55. doi: 10.1002/1529-0131(200102)45:1<48::AID-ANR83>3.0.CO;2-1. Santavirta N Bjorvell H Solovieva S Alaranta H Hurskainen K Konttinen Y . Coping strategies, pain, and disability in patients with hemophilia and related disorders . Arthritis Rheum 2001 ; 45 : 48 - 55 . doi: 10.1002/1529-0131(200102)45:1<48::AID-ANR83>3.0.CO;2-1 . Open DOISearch in Google Scholar

Srivastava A, Santagostino E, Dougall A, et al. WFH Guidelines for the Management of Haemophilia, 3rd edition. Haemophilia 2020; 26(Suppl 6): 1-158. doi: 10.1111/hae.14046. Srivastava A Santagostino E Dougall A . WFH Guidelines for the Management of Haemophilia, 3rd edition . Haemophilia 2020 ; 26 ( Suppl 6 ): 1 - 158 . doi: 10.1111/hae.14046 . Open DOISearch in Google Scholar

Paredes AC, Teixeira P, Almeida A, Pinto PR. Prevalence and interference of chronic pain among people withhaemophilia: a systematic review and meta-analysis. J Pain 2021; 22(10): 1134-1145. doi:10.1016/j.pain.2021.03.157. Paredes AC Teixeira P Almeida A Pinto PR . Prevalence and interference of chronic pain among people withhaemophilia: a systematic review and meta-analysis . J Pain 2021 ; 22 ( 10 ): 1134 - 1145 . doi: 10.1016/j.pain.2021.03.157 . Open DOISearch in Google Scholar

Humphries TJ, Kessler C. Managing chronic pain in adults with haemophilia: current status and call to action. Haemophilia 2015; 21(1): 41-51. doi: 10.1111/hae.12526. Humphries TJ Kessler C . Managing chronic pain in adults with haemophilia: current status and call to action . Haemophilia 2015 ; 21 ( 1 ): 41 - 51 . doi: 10.1111/hae.12526 . Open DOISearch in Google Scholar

Turk DC, Dworkin RH, Burke LB, et al. Developing patient-reported outcome measures for pain clinical trials: IMMPACT recommendations. Pain 2006; 125(3): 208-15. doi: 10.1016/j. pain.2006.09.028. Turk DC Dworkin RH Burke LB . Developing patient-reported outcome measures for pain clinical trials: IMMPACT recommendations . Pain 2006 ; 125 ( 3 ): 208 - 15 . doi: 10.1016/j. pain.2006.09.028 . Open DOISearch in Google Scholar

Khairoun C, Khorassani M, Kili A, Hssissen L, Kababri M, Khattab M. Pharmaco-economic study and cost of care for chronic diseases: Case of Haemophilia in Morocco. J Adv Pediatr Child Health 2020; 3: 024-026. doi: 10.29328/journal.japch.1001013. Khairoun C Khorassani M Kili A Hssissen L Kababri M Khattab M . Pharmaco-economic study and cost of care for chronic diseases: Case of Haemophilia in Morocco . J Adv Pediatr Child Health 2020 ; 3 : 024 - 026 . doi: 10.29328/journal.japch.1001013 . Open DOISearch in Google Scholar

World Federation of Hemophilia. Report on the Annual Global Survey 2021. October 2022. Available from https://www1.wfh.org/publications/files/pdf-2324.pdf (accessed 8 June 2023). World Federation of Hemophilia . Report on the Annual Global Survey 2021 . October 2022 . Available from https://www1.wfh.org/publications/files/pdf-2324.pdf ( accessed 8 June 2023 ). Search in Google Scholar

Khoubila N. Situation de la prise en charge des patients hémophiles au Maroc. Oral presentation, Congrès Magrébin d’hématologie, Algeria, 24-26 October 2019. Khoubila N . Situation de la prise en charge des patients hémophiles au Maroc . Oral presentation, Congrès Magrébin d’hématologie , Algeria , 24-26 October 2019 . Search in Google Scholar

Pocoski J, Benjamin K, Michaels LA, Flood E, Sasane R. An overview of current trends and gaps in patient-reported outcome measures used in haemophilia. Eur J Haematol 2014; 93 (Suppl 75): 1-8. doi: 10.1111/ejh.12323. Pocoski J Benjamin K Michaels LA Flood E Sasane R . An overview of current trends and gaps in patient-reported outcome measures used in haemophilia . Eur J Haematol 2014 ; 93 ( Suppl 75 ): 1 - 8 . doi: 10.1111/ejh.12323 . Open DOISearch in Google Scholar

Paredes AC, Costa P, Almeida A, Pinto PR. A new measure to assess pain in people with haemophilia: The Multidimensional Haemophilia Pain Questionnaire (MHPQ). PLoS ONE 2018; 13(11): e0207939. doi: 10.1371/journal.pone.0207939. Paredes AC Costa P Almeida A Pinto PR . A new measure to assess pain in people with haemophilia: The Multidimensional Haemophilia Pain Questionnaire (MHPQ) . PLoS ONE 2018 ; 13 ( 11 ): e0207939 . doi: 10.1371/journal.pone.0207939 . Open DOISearch in Google Scholar

Dworkin RH, Turk DC, Farrar JT, et al. Core outcome measures for chronic pain clinical trials: IMMPACT recommendations. Pain 2005; 113(1-2): 9-19. doi: 10.1016/j.pain.2004.09.012. Dworkin RH Turk DC Farrar JT . Core outcome measures for chronic pain clinical trials: IMMPACT recommendations . Pain 2005 ; 113 ( 1-2 ): 9 - 19 . doi: 10.1016/j.pain.2004.09.012 . Open DOISearch in Google Scholar

Ribeiro Pinto P, Paredes AC, Almeida A. Pain prevalence, characteristics, and impact among people with hemophilia: findings from the first Portuguese survey and implications for pain management. Pain Med 2020; 21(3): 458-471. doi: 10.1093/pm/pny309. Ribeiro Pinto P Paredes AC Almeida A . Pain prevalence, characteristics, and impact among people with hemophilia: findings from the first Portuguese survey and implications for pain management . Pain Med 2020 ; 21 ( 3 ): 458 - 471 . doi: 10.1093/pm/pny309 . Open DOISearch in Google Scholar

Kalnins W, Schelle G, Jost K, et al.: Pain therapy in haemophilia in Germany, patient survey (BESTHstudy). Hamostaseologie 2015, 2:167-73. doi: 10.5482/HAMO-14-03-0021. Kalnins W Schelle G Jost K .: Pain therapy in haemophilia in Germany, patient survey (BESTHstudy) . Hamostaseologie 2015 , 2 : 167 - 73 . doi: 10.5482/HAMO-14-03-0021 . Open DOISearch in Google Scholar

Stephensen D, Tait RC, Brodie N, et al. Changing patterns of bleeding in patients with severe haemophilia A. Haemophilia 2009; 15(6): 1210-1214. doi: 10.1111/j.1365-2516.2008.01876.x. Stephensen D Tait RC Brodie N . Changing patterns of bleeding in patients with severe haemophilia A . Haemophilia 2009 ; 15 ( 6 ): 1210 - 1214 . doi: 10.1111/j.1365-2516.2008.01876.x . Open DOISearch in Google Scholar

Hmida J, Hilberg T, Ransmann P, et al. Most subjectively affected joints in patients with haemophilia – what has changed after 20 years in Germany? Haemophilia 2022; (4): 663-670. doi: 10.1111/hae.14564. Hmida J Hilberg T Ransmann P . Most subjectively affected joints in patients with haemophilia – what has changed after 20 years in Germany? Haemophilia 2022 ; ( 4 ): 663 - 670 . doi: 10.1111/hae.14564 . Open DOISearch in Google Scholar

Payal V, Sharma P, Chhangani NP, Janu Y, Singh Y, Sharma A. Joint health status of hemophilia patients in Jodhpur region. Indian J Hematol Blood Transfus 2015; 31(3): 362-366. doi: 10.1007/s12288-014-0465-2. Payal V Sharma P Chhangani NP Janu Y Singh Y Sharma A . Joint health status of hemophilia patients in Jodhpur region . Indian J Hematol Blood Transfus 2015 ; 31 ( 3 ): 362 - 366 . doi: 10.1007/s12288-014-0465-2 . Open DOISearch in Google Scholar

Lambert C, Meité N, Sanogo I, et al. Haemophilia in Côte d’Ivoire (the Ivory Coast) in 2017: extensive data collection as part of the World Federation of Hemophilia’s twinning programme. Haemophilia 2019; 25(2): 236-243. doi: 10.1111/hae.13682. Lambert C Meité N Sanogo I . Haemophilia in Côte d’Ivoire (the Ivory Coast) in 2017: extensive data collection as part of the World Federation of Hemophilia’s twinning programme . Haemophilia 2019 ; 25 ( 2 ): 236 - 243 . doi: 10.1111/hae.13682 . Open DOISearch in Google Scholar

Auerswald G, Dolan G, Duffy A, et al. Pain and pain management in haemophilia. Blood Coagul Fibrinolysis 2016, 27: 845-54. doi: 10.1097/MBC.0000000000000571. Auerswald G Dolan G Duffy A . Pain and pain management in haemophilia . Blood Coagul Fibrinolysis 2016 , 27 : 845 - 54 . doi: 10.1097/MBC.0000000000000571 . Open DOISearch in Google Scholar

Witkop M, Lambing A, Kachalsky E, et al. Assessment of acute and persistent pain management in patients with haemophilia. Haemophilia 2011; 17(4): 1-8. doi: 10.1111/j1365-2516.2010.02479.x. Witkop M Lambing A Kachalsky E . Assessment of acute and persistent pain management in patients with haemophilia . Haemophilia 2011 ; 17 ( 4 ): 1 - 8 . doi: 10.1111/j1365-2516.2010.02479.x . Open DOISearch in Google Scholar

Holstein K, Klamroth R, Richards M, et al. Pain management in patients with haemophilia: A European survey. Haemophilia 2012;18(5):743–52. Holstein K Klamroth R Richards M . Pain management in patients with haemophilia: A European survey . Haemophilia 2012 ; 18 ( 5 ): 743 52 . Search in Google Scholar

McLaughlin P, Hurley M, Chowdary P, et al. The experiences and beliefs of people with severe haemophilia and healthcare professionals on pain management, and their views of using exercise as an intervention : a qualitative study. Disabil Rehabil 2022 ; 44(26) : 8420-9428. doi :10.1080/09638288.2021.2018054. McLaughlin P Hurley M Chowdary P . The experiences and beliefs of people with severe haemophilia and healthcare professionals on pain management, and their views of using exercise as an intervention : a qualitative study . Disabil Rehabil 2022 ; 44 ( 26 ) : 8420 - 9428 . doi : 10.1080/09638288.2021.2018054 . Open DOISearch in Google Scholar

Stromer W, Pabinger I, Ay C, et al. Pain management in hemophilia: expert recommendations. Wien Klin Wochenschr 2021; 133:1042-1056. doi: 10.1007/s00508-020-01798-4. Stromer W Pabinger I Ay C . Pain management in hemophilia: expert recommendations . Wien Klin Wochenschr 2021 ; 133 : 1042 - 1056 . doi: 10.1007/s00508-020-01798-4 . Open DOISearch in Google Scholar

González EL, Patrignani P, Tacconelli S, Rodríguez LA. Variability of risk of upper gastrointestinal bleeding among non-steroidal anti-inflammatory drugs. Arthritis Rheum 2010, 62: 1592-1601. doi: 10.1002/art.27412. González EL Patrignani P Tacconelli S Rodríguez LA . Variability of risk of upper gastrointestinal bleeding among non-steroidal anti-inflammatory drugs . Arthritis Rheum 2010 , 62 : 1592 - 1601 . doi: 10.1002/art.27412 . Open DOISearch in Google Scholar

Rattray B, Nugent DJ, Young G. Celecoxib in the treatment of haemophilic synovitis, targetjoints, and pain in adults and children with haemophilia. Haemophilia 2006, 12: 514-7. doi: 10.1111/j.1365-2516.2006.01311.x Rattray B Nugent DJ Young G . Celecoxib in the treatment of haemophilic synovitis, targetjoints, and pain in adults and children with haemophilia . Haemophilia 2006 , 12 : 514 - 7 . doi: 10.1111/j.1365-2516.2006.01311.x Open DOISearch in Google Scholar

Van Genderen FR, Fischer K, Heijnen L, et al. Pain and functional limitations in patients with severe haemophilia. Haemophilia 2006; 12: 147-53. doi: 10.1111/j.1365-2516.2006.01203.x Van Genderen FR Fischer K Heijnen L . Pain and functional limitations in patients with severe haemophilia . Haemophilia 2006 ; 12 : 147 - 53 . doi: 10.1111/j.1365-2516.2006.01203.x Open DOISearch in Google Scholar

Khair K, Kriukov J, Holland M. “It’s a way of life”: results from the Perceptions of Pain in Haemophilia study. J Haem Pract 2021; 8(1): 145-154. doi: 10.2478/jhp-2021-0020. Khair K Kriukov J Holland M . “It’s a way of life”: results from the Perceptions of Pain in Haemophilia study . J Haem Pract 2021 ; 8 ( 1 ): 145 - 154 . doi: 10.2478/jhp-2021-0020 . Open DOISearch in Google Scholar

Santavirta N, Solovieva S, Helkama O, et al. Musculoskeletal pain and functional ability. Rheumatol Int 2001; 21: 15-9. doi: 10.1007/s002960100117. Santavirta N Solovieva S Helkama O . Musculoskeletal pain and functional ability . Rheumatol Int 2001 ; 21 : 15 - 9 . doi: 10.1007/s002960100117 . Open DOISearch in Google Scholar

Young G, Tachdjian R, Baumann K, Panopoulos G. Comprehensive management of chronic pain in haemophilia. Haemophilia 2014;20(2):e113–20. Young G Tachdjian R Baumann K Panopoulos G . Comprehensive management of chronic pain in haemophilia . Haemophilia 2014 ; 20 ( 2 ): e113 20 . Search in Google Scholar

Blamey G, Forsyth A, Zourikian N, et al. Comprehensive elements of a physiotherapy exercise programme in haemophilia—a global perspective. Haemophilia 2010; 16 Suppl 5: 136-145. doi: 10.1111/j.1365-2516.2010.02312.x. Blamey G Forsyth A Zourikian N . Comprehensive elements of a physiotherapy exercise programme in haemophilia—a global perspective . Haemophilia 2010 ; 16 Suppl 5 : 136 - 145 . doi: 10.1111/j.1365-2516.2010.02312.x . Open DOISearch in Google Scholar

Rodriguez-Merchan EC: Prevention of the musculoskeletal complications of hemophilia. Adv Prev Med 2012, 2012: 201271. doi: 10.1155/2012/201271. Rodriguez-Merchan EC : Prevention of the musculoskeletal complications of hemophilia . Adv Prev Med 2012 , 2012 : 201271 . doi: 10.1155/2012/201271 . Open DOISearch in Google Scholar

Witkop M, Neff A, Buckner TW, et al. Self-reported prevalence, description and management of pain in adults with haemophilia: Methods, demographics and results from the Pain, Functional Impairment, and Quality of life (P-FiQ) study. Haemophilia 2017; 23(4): 556-65. doi: 10.1111/hae.13214. Witkop M Neff A Buckner TW . Self-reported prevalence, description and management of pain in adults with haemophilia: Methods, demographics and results from the Pain, Functional Impairment, and Quality of life (P-FiQ) study . Haemophilia 2017 ; 23 ( 4 ): 556 - 65 . doi: 10.1111/hae.13214 . Open DOISearch in Google Scholar

McLaughlin JM, Munn JE, Anderson TL, et al. Predictors of quality of life among adolescents and young adults with a bleeding disorder. Health Qual Life Outcomes 2017; 15(1): 15-67. doi: 10.1186/s12955-017-0643-7. McLaughlin JM Munn JE Anderson TL . Predictors of quality of life among adolescents and young adults with a bleeding disorder . Health Qual Life Outcomes 2017 ; 15 ( 1 ): 15 - 67 . doi: 10.1186/s12955-017-0643-7 . Open DOISearch in Google Scholar

van Genderen FR, van Meeteren NL, Heijnen L, van den Berg HM, Helders PJ. The use of a disability model in haemophilia research. Haemophilia 2005; 11(5): 472-80. doi: 10.1111/j.1365-2516.2005.01135.x. van Genderen FR van Meeteren NL Heijnen L van den Berg HM Helders PJ . The use of a disability model in haemophilia research . Haemophilia 2005 ; 11 ( 5 ): 472 - 80 . doi: 10.1111/j.1365-2516.2005.01135.x . Open DOISearch in Google Scholar

Angelis A, Tordrup D, Kanavos P. Socio-economic burden of rare diseases: A systematic review of cost of illness evidence. Health Policy 2015; 119(7): 964-979. doi: 10.1016/j.healthpol.2014.12.016. Angelis A Tordrup D Kanavos P . Socio-economic burden of rare diseases: A systematic review of cost of illness evidence . Health Policy 2015 ; 119 ( 7 ): 964 - 979 . doi: 10.1016/j.healthpol.2014.12.016 . Open DOISearch in Google Scholar

Naous E, de Moerloose P, Sleilaty G, et al. The impact of haemophilia on the social status and the health-related quality of life in adult Lebanese persons with haemophilia. Haemophilia 2019; 25(2): 264-269. doi: 10.1111/hae.13694. Naous E de Moerloose P Sleilaty G . The impact of haemophilia on the social status and the health-related quality of life in adult Lebanese persons with haemophilia . Haemophilia 2019 ; 25 ( 2 ): 264 - 269 . doi: 10.1111/hae.13694 . Open DOISearch in Google Scholar

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