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The patient gene therapy journey: Findings from qualitative interviews with trial participants at one UK haemophilia centre

Elsa Aradom

Elsa Aradom

Katharine Dormandy Haemophilia and Thrombosis Centre, Royal Free London NHS Foundation TrustLondon, UK
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Aradom, Elsa
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Keith Gomez

Keith Gomez

Katharine Dormandy Haemophilia and Thrombosis Centre, Royal Free London NHS Foundation TrustLondon, UK
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02 mai 2021
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Catégorie d'article: Clinical Research
Publié en ligne: 02 mai 2021
Pages: 32 - 44
DOI: https://doi.org/10.17225/jhp00174
Mots clés
© 2021 Elsa Aradom et al., published by Sciendo
This work is licensed under the Creative Commons Attribution-NonCommercial-NoDerivatives 3.0 License.
A qualitative exploration of the experiences of people with haemophilia receiving gene therapy as part of clinical trials highlights the role of health care professionals as a key trusted source of information, and points to the pivotal role of the haemophilia nurse.
A qualitative exploration of the experiences of people with haemophilia receiving gene therapy as part of clinical trials highlights the role of health care professionals as a key trusted source of information, and points to the pivotal role of the haemophilia nurse.

Figure 1

Interview questions
Interview questions

Figure 2

Participant demographics
Participant demographics

Figure 3

Concerns pre-infusion, and motivating factors to take part in the gene therapy trial
Concerns pre-infusion, and motivating factors to take part in the gene therapy trial
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Anglais
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Sujets de la revue:
Médecine, Sciences médicales de base, Sciences médicales de base, autres, Médecine clinique, Médecine clinique, autres, Pharmacie, Pharmacologie
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