PwH who described their lives as normal | 24 of 501 | 48% |
PwH who reported regular bleeds and/or joint pain, despite self-reported adherence to treatment | 22 of 452 | 49% |
PwH who had experienced at least one bleed within the last year | 32 of 51 | 63% |
PwH who reported disease-related limitations in activity levels | 40 of 51 | 78% |
PwH who reported disease-related challenges with travel | 17 of 51 | 33% |
PwH who stated that they tended to entrust their HCP with key decisions | 39 of 501 | 78% |
PwH who described difficulty translating their HCP's concept of protection and activities based on factor levels into everyday life | 26 of 501 | 52% |
PwH who described trying to ignore their condition, who were on prophylaxis, and were often or sometimes non-adherent | 8 of 93 | 89% |
PwH who pointed to family members, patient organisations and summer camps as sources of information they use | 20 of 501 | 40% |
PwH who reported that they obtain information from five or more different sources | 15 of 501 | 30% |