(Mis)Gendering bleeding disorders care: A qualitative case study of a trans person with a bleeding disorder

1. Bauer GR, Hammond R, Travers R, Kaay M, Hohenadel KM, Boyce M. I don’t think this is theoretical’; this is our lives: How erasure impacts health care for transgender people. J Assoc of Nurses AIDS Care 2009; 20: 348–361. Doi: 10.1016/j.jana.2009.07.004. Bauer GR Hammond R Travers R Kaay M Hohenadel KM Boyce M. I don’t think this is theoretical’; this is our lives: How erasure impacts health care for transgender people . J Assoc of Nurses AIDS Care 2009 ; 20 : 348 – 361 . Doi: 10.1016/j.jana.2009.07.004 . Open DOISearch in Google Scholar

2. Bradford J, Reisner SL, Honnold JA, Xavier J. Experiences of transgender-related discrimination and implications for health: Results from the Virginia transgender health initiative study. Am J Public Health 2013; 103: 1820–1829. doi: 10.2105/AJPH.2012.300796. Bradford J Reisner SL Honnold JA Xavier J. Experiences of transgender-related discrimination and implications for health: Results from the Virginia transgender health initiative study . Am J Public Health 2013 ; 103 : 1820 – 1829 . Doi: 10.2105/AJPH.2012.300796 . Open DOISearch in Google Scholar

3. Safera JD, Colemanb E, Feldmanb J, et al. Barriers to health care for transgender individuals. Curr Opin Endocrinol Diabetes Obes 2016; 23(2): 168–171. doi: 10.1097/MED.0000000000000227. Safera JD Colemanb E Feldmanb J Barriers to health care for transgender individuals . Curr Opin Endocrinol Diabetes Obes 2016 ; 23 ( 2 ): 168 – 171 . Doi: 10.1097/MED.0000000000000227 . Open DOISearch in Google Scholar

4. Winter S, Diamond M, Green J, et al. Transgender people: health at the margins of society. Lancet 2016; 388(10042): P390–400. doi: 10.1016/S0140-6736(16)00683-8. Winter S Diamond M Green J Transgender people: health at the margins of society . Lancet 2016 ; 388 ( 10042 ): P390 – 400 . Doi: 10.1016/S0140-6736(16)00683-8 . Open DOISearch in Google Scholar

5. Goodman M, Noah A, Trevor C, Kreukels BPC, Motmans J. Size and distribution of transgender and gender non-conforming populations: A narrative review. Endocrinol Metab Clin North Am 2019; 48(2): 303–32. doi: 10.1016/j.ecl.2019.01.001. Goodman M Noah A Trevor C Kreukels BPC Motmans J. Size and distribution of transgender and gender non-conforming populations: A narrative review . Endocrinol Metab Clin North Am 2019 ; 48 ( 2 ): 303 – 32 . Doi: 10.1016/j.ecl.2019.01.001 . Open DOISearch in Google Scholar

6. Faye S. The Transgender Issue: An Argument for Justice. London: Penguin; 2022. Faye S. The Transgender Issue: An Argument for Justice . London : Penguin ; 2022 . Search in Google Scholar

7. Connelly PJ, Marie Freel E, Perry C, et al. Gender-affirming hormone therapy, vascular health and cardiovascular disease in transgender adults. Hypertension 2019; 74(6): 1266–1274. doi: 10.1161/HYPERTENSIONAHA.119.13080. Connelly PJ Marie Freel E Perry C Gender-affirming hormone therapy, vascular health and cardiovascular disease in transgender adults . Hypertension 2019 ; 74 ( 6 ): 1266 – 1274 . Doi: 10.1161/HYPERTENSIONAHA.119.13080 . Open DOISearch in Google Scholar

8. D’hoore L, T’Sjoen G. Gender-affirming hormone therapy: an updated literature review with an eye on the future. J Intern Med 2022; 291(5): 574–592. doi: 10.1111/joim.13441. D’hoore L T’Sjoen G. Gender-affirming hormone therapy: an updated literature review with an eye on the future . J Intern Med 2022 ; 291 ( 5 ): 574 – 592 . Doi: 10.1111/joim.13441 . Open DOISearch in Google Scholar

9. DeLoughery TG. Hematologic concerns in transgender patients. Clin Adv Hematol Oncol 2022; 20(8): 516–52. DeLoughery TG. Hematologic concerns in transgender patients . Clin Adv Hematol Oncol 2022 ; 20 ( 8 ): 516 – 52 . Search in Google Scholar

10. Valk C. A transgender person with haemophilia. J Haem Pract 2018; 5(1): 147–151. doi: 10.17225/jhp00128. Valk C. A transgender person with haemophilia . J Haem Pract 2018 ; 5 ( 1 ): 147 – 151 . Doi: 10.17225/jhp00128 . Open DOISearch in Google Scholar

11. Stonewall. List of LGBTQ+ Terms. 2023. Available from https://stonewall.org.uk/list-lgbtq-terms?gad_source=1&gclid=CjwKCAjw7-SvBhB6EiwAwYdCASZho5wehkGX2Q4vxkau32hRHkc5FgjEKD_If5f4UzfVzZN-xZ4B4hoCtzAQAvD_BwE (accessed March 2024). Stonewall . List of LGBTQ+ Terms . 2023 . Available from https://stonewall.org.uk/list-lgbtq-terms?gad_source=1&gclid=CjwKCAjw7-SvBhB6EiwAwYdCASZho5wehkGX2Q4vxkau32hRHkc5FgjEKD_If5f4UzfVzZN-xZ4B4hoCtzAQAvD_BwE (accessed March 2024 ). Search in Google Scholar

12. World Professional Association for Transgender Health. Standards of care for the health of transsexual, transgender, and gender nonconforming people. 7th version. 2011. Available from www.wpath.org/media/cms/Documents/Web%20Transfer/SOC/Standards%20of%20Care%20V7%20 -%202011%20WPATH.pdf (accessed March 2024). World Professional Association for Transgender Health . Standards of care for the health of transsexual, transgender, and gender nonconforming people. 7th version . 2011 . Available from www.wpath.org/media/cms/Documents/Web%20Transfer/SOC/Standards%20of%20Care%20V7%20-%202011%20WPATH.pdf (accessed March 2024 ). Search in Google Scholar

13. Archibald MM, Ambagtsheer RC, Casey MG, Lawless M. Using Zoom videoconferencing for qualitative data collection: perceptions and experiences of researchers and participants. Int J Qual Methods 2019; 18:1–8. doi: 10.1177/1609406919874596. Archibald MM Ambagtsheer RC Casey MG Lawless M. Using Zoom videoconferencing for qualitative data collection: perceptions and experiences of researchers and participants . Int J Qual Methods 2019 ; 18 : 1 – 8 . Doi: 10.1177/1609406919874596 . Open DOISearch in Google Scholar

14. Fletcher S. Seeing the bigger picture: Qualitative research in the Zoom® age. J Haem Pract 2021; 8(1): 141–144. doi: 10.2478/jhp-2021-0019. Fletcher S. Seeing the bigger picture: Qualitative research in the Zoom® age . J Haem Pract 2021 ; 8 ( 1 ): 141 – 144 . Doi: 10.2478/jhp-2021-0019 . Open DOISearch in Google Scholar

15. Fletcher S. “I didn’t know women could have haemophilia”: A qualitative case study. J Haem Pract 2022; 9(1): 85–95. doi: 10.2478/jhp-2022-0011. Fletcher S. “I didn’t know women could have haemophilia”: A qualitative case study . J Haem Pract 2022 ; 9 ( 1 ): 85 – 95 . Doi: 10.2478/jhp-2022-0011 . Open DOISearch in Google Scholar

16. Alhojailan MI. Thematic analysis: A critical review of its process and evaluation. West East Journal of Social Sciences 2012; 1(1): 39–47. Alhojailan MI. Thematic analysis: A critical review of its process and evaluation . West East Journal of Social Sciences 2012 ; 1 ( 1 ): 39 – 47 . Search in Google Scholar

17. Medical Research Counsel. Is My Study Research? Available from http://www.hra-decisiontools.org.uk/research/ (accessed January 2022). Medical Research Counsel . Is My Study Research? Available from http://www.hra-decisiontools.org.uk/research/ (accessed January 2022 ). Search in Google Scholar

18. Medical Research Counsel. Do I need REC review? Available from https://www.hra-decisiontools.org.uk/ethics/ (accessed September 2023). Medical Research Counsel . Do I need REC review? Available from https://www.hra-decisiontools.org.uk/ethics/ (accessed September 2023 ). Search in Google Scholar

19. Nissen T, Wynn R. The clinical case report: a review of its merits and limitations. BMC Res Notes 2014, 7: 264. doi: 10.1186/1756-0500-7-264. Nissen T Wynn R. The clinical case report: a review of its merits and limitations . BMC Res Notes 2014 , 7 : 264 . Doi: 10.1186/1756-0500-7-264 . Open DOISearch in Google Scholar

20. Heyam K. Before We Were Trans: A New History of Gender. London: Basic Books; 2022. Heyam K. Before We Were Trans: A New History of Gender . London : Basic Books ; 2022 . Search in Google Scholar

21. Stryker S. Transgender History: The Roots of Today’s Revolution (2nd edition). NewYork: Seal Press; 2017. Stryker S. Transgender History: The Roots of Today’s Revolution ( 2nd edition). NewYork : Seal Press ; 2017 . Search in Google Scholar

22. Lowik AJ. “Just because I don’t bleed, doesn’t mean I don’t go through it”: Expanding knowledge in transgender and nonbinary menstruators. Int J Transgend Health 2021; 22(12): 113–125. doi: 10.1080/15532739.2020.1819507. Lowik AJ. “Just because I don’t bleed, doesn’t mean I don’t go through it”: Expanding knowledge in transgender and nonbinary menstruators . Int J Transgend Health 2021 ; 22 ( 12 ): 113 – 125 . Doi: 10.1080/15532739.2020.1819507 . Open DOISearch in Google Scholar

23. Carswell JM, Roberts SA. Induction and maintenance of amenorrhea in transmasculine and non-binary adolescents. Transgend Health 2017; 2(1): 195–201. doi: 10.1089/trgh.2017.0021. Carswell JM Roberts SA. Induction and maintenance of amenorrhea in transmasculine and non-binary adolescents . Transgend Health 2017 ; 2 ( 1 ): 195 – 201 . Doi: 10.1089/trgh.2017.0021 . Open DOISearch in Google Scholar

24. Weiselberg E. Menstrual considerations for transgender male and gender diverse adolescents who were assigned female at birth. Curr Probl Pediatr Adolesc Health Care 2022; 52(8): 101239. doi: 10.1016/j.cppeds.2022.101239. Weiselberg E. Menstrual considerations for transgender male and gender diverse adolescents who were assigned female at birth . Curr Probl Pediatr Adolesc Health Care 2022 ; 52 ( 8 ): 101239 . Doi: 10.1016/j.cppeds.2022.101239 . Open DOISearch in Google Scholar

25. Nolan IT, Kuhner CJ, Dy GW. Demographic and temporal trends in transgender identities and gender confirming surgery. Transl Androl Urol 2019; 8(3): 184–190. doi: 10.21037/tau.2019.04.09. Nolan IT Kuhner CJ Dy GW. Demographic and temporal trends in transgender identities and gender confirming surgery . Transl Androl Urol 2019 ; 8 ( 3 ): 184 – 190 . Doi: 10.21037/tau.2019.04.09 . Open DOISearch in Google Scholar

26. Joseph A, Cliffe C, Hillyard M, Majeed A. Gender identity and the management of the transgender patient: a guide for non-specialists. J R Soc Med 2017; 110(4): 144–152. doi: 10.1177/0141076817696054. Joseph A Cliffe C Hillyard M Majeed A. Gender identity and the management of the transgender patient: a guide for non-specialists . J R Soc Med 2017 ; 110 ( 4 ): 144 – 152 . Doi: 10.1177/0141076817696054 . Open DOISearch in Google Scholar

27. Seamont MMH. Becoming “The Man I Want to Be”: Transgender Masculinity, Embodiment, and Sexuality (Unpublished PhD Thesis). Denver: University of Colorado; 2010. Available from https://scholar.colorado.edu/concern/graduate_thesis_or_dissertations/6m311p36k. Seamont MMH. Becoming “The Man I Want to Be”: Transgender Masculinity, Embodiment, and Sexuality (Unpublished PhD Thesis). Denver : University of Colorado ; 2010 . Available from https://scholar.colorado.edu/concern/graduate_thesis_or_dissertations/6m311p36k . Search in Google Scholar

28. Bischoff A. Passing the Test: The Transgender Self, Society and Femininity. 2011. Independent Study Project (ISP) Collection; 1155. Available from https://digitalcollections.sit.edu/isp_collection/1155. Bischoff A. Passing the Test: The Transgender Self, Society and Femininity . 2011 . Independent Study Project (ISP) Collection ; 1155 . Available from https://digitalcollections.sit.edu/isp_collection/1155 . Search in Google Scholar

29. Dembroff R. Real talk on the metaphysics of gender. Philosophical Topics 2018; 46(2): 21–50. Available from https://doi.org/10.5840/philtopics201846212. Dembroff R. Real talk on the metaphysics of gender . Philosophical Topics 2018 ; 46 ( 2 ): 21 – 50 . Available from https://doi.org/10.5840/philtopics201846212 . Search in Google Scholar

30. Saeidzadeh Z. “Are trans men the manliest of men?” Gender practices, trans masculinity and mardānegī in contemporary Iran. J Gend Stud 2020; 29(3):295–309. doi: 10.1080/09589236.2019.1635439 Saeidzadeh Z. “Are trans men the manliest of men?” Gender practices, trans masculinity and mardānegī in contemporary Iran . J Gend Stud 2020 ; 29 ( 3 ): 295 – 309 . Doi: 10.1080/09589236.2019.1635439 Open DOISearch in Google Scholar

31. Miller LR, Grollman EA. The social costs of gender nonconformity for transgender adults: implications for discrimination and health. Sociol Forum (Randolph N J) 2015; 30(3): 809–831. doi: 10.1111/socf.12193. Miller LR Grollman EA. The social costs of gender nonconformity for transgender adults: implications for discrimination and health . Sociol Forum (Randolph N J) 2015 ; 30 ( 3 ): 809 – 831 . Doi: 10.1111/socf.12193 . Open DOISearch in Google Scholar

32. Levitt HM, Ippolito MR. Being transgender: the experience of transgender identity development. J Homosex 2014; 61(12): 1727–1758. doi: 10.1080/00918369.2014.951262. Levitt HM Ippolito MR. Being transgender: the experience of transgender identity development . J Homosex 2014 ; 61 ( 12 ): 1727 – 1758 . Doi: 10.1080/00918369.2014.951262 . Open DOISearch in Google Scholar

33. Costa R, Colizzi M. The effect of cross-sex hormonal treatment on gender dysphoria individuals’ mental health: a systematic review. Neuropsychiatr Dis Treat 2016; 12: 1953–1966. doi: 10.2147/NDT.S95310. Costa R Colizzi M. The effect of cross-sex hormonal treatment on gender dysphoria individuals’ mental health: a systematic review . Neuropsychiatr Dis Treat 2016 ; 12 : 1953 – 1966 . Doi: 10.2147/NDT.S95310 . Open DOISearch in Google Scholar

34. Reisner SL, Poteat T, Keatley J, et al. Global health burden and needs of transgender populations: a review. Lancet 2016; 388(10042): 412–436. doi: 10.1016/S0140-6736(16)00684-X. Reisner SL Poteat T Keatley J Global health burden and needs of transgender populations: a review . Lancet 2016 ; 388 ( 10042 ): 412 – 436 . Doi: 10.1016/S0140-6736(16)00684-X . Open DOISearch in Google Scholar

35. Wanta JW, Niforatos JD, Durbak E, Viguera A, Altinay M. Mental health diagnoses among transgender patients in the clinical setting: an all-payer electronic health record study. Transgend Health 2019; 4(1): 313–315. doi: 10.1089/trgh.2019.0029. Wanta JW Niforatos JD Durbak E Viguera A Altinay M. Mental health diagnoses among transgender patients in the clinical setting: an all-payer electronic health record study . Transgend Health 2019 ; 4 ( 1 ): 313 – 315 . Doi: 10.1089/trgh.2019.0029 . Open DOISearch in Google Scholar

36. Kidd JD, Tettamanti NA, Kaczmarkiewicz R, et al. Prevalence of substance use and mental health problems among transgender and cisgender U.S. adults: Results from a national probability sample. Psychiatry Res 2023; 326: 115339. doi: 10.1016/j.psychres.2023.115339. Kidd JD Tettamanti NA Kaczmarkiewicz R Prevalence of substance use and mental health problems among transgender and cisgender U.S. adults: Results from a national probability sample . Psychiatry Res 2023 ; 326 : 115339 . Doi: 10.1016/j.psychres.2023.115339 . Open DOISearch in Google Scholar

37. Dolan IJ, Strauss P, Winter S, Lin A. Misgendering and experiences of stigma in healthcare settings for transgender people. Med J Aust 2020; 212(4): 150–152. doi: 10.5694/mja2.50497. Dolan IJ Strauss P Winter S Lin A. Misgendering and experiences of stigma in healthcare settings for transgender people . Med J Aust 2020 ; 212 ( 4 ): 150 – 152 . Doi: 10.5694/mja2.50497 . Open DOISearch in Google Scholar

38. Heng A, Heal C, Banks J, Preston R. Transgender peoples’ experiences and perspectives about general healthcare: A systematic review. Int J Transgend 2018; 19(4): 359–378. doi: 10.1080/15532739.2018.1502711. Heng A Heal C Banks J Preston R. Transgender peoples’ experiences and perspectives about general healthcare: A systematic review . Int J Transgend 2018 ; 19 ( 4 ): 359 – 378 . Doi: 10.1080/15532739.2018.1502711 . Open DOISearch in Google Scholar

39. Skuban-Eiseler T, Orzechowski M, Steger F. Why do transgender individuals experience discrimination in healthcare and thereby limited access to healthcare? An interview study exploring the perspective of German transgender individuals. Int J Equity Health 2023; 22: 211. doi: 10.1186/s12939-023-02023-0. Skuban-Eiseler T Orzechowski M Steger F. Why do transgender individuals experience discrimination in healthcare and thereby limited access to healthcare? An interview study exploring the perspective of German transgender individuals . Int J Equity Health 2023 ; 22 : 211 . Doi: 10.1186/s12939-023-02023-0 . Open DOISearch in Google Scholar

40. Kadir RA, Economides DL, Sabin CA, Owens D, Lee CA. Frequency of inherited bleeding disorders in women with menorrhagia. Lancet 1998; 351(9101): 485–489. doi: 10.1016/S0140-6736(97)08248-2. Kadir RA Economides DL Sabin CA Owens D Lee CA. Frequency of inherited bleeding disorders in women with menorrhagia . Lancet 1998 ; 351 ( 9101 ): 485 – 489 . Doi: 10.1016/S0140-6736(97)08248-2 . Open DOISearch in Google Scholar

41. Kirtava A, Crudder S, Dilley A, Lally C, Evatt B. Trends in clinical management of women with von Willebrand disease: A survey of 75 women enrolled in haemophilia treatment centres in the United States. Haemophilia 2004; 10: 158–161. doi: 10.1046/j.1351-8216.2003.00832.x. Kirtava A Crudder S Dilley A Lally C Evatt B. Trends in clinical management of women with von Willebrand disease: A survey of 75 women enrolled in haemophilia treatment centres in the United States . Haemophilia 2004 ; 10 : 158 – 161 . Doi: 10.1046/j.1351-8216.2003.00832.x . Open DOISearch in Google Scholar

42. Zia A, Jain S, Kouides P, et al. Bleeding disorders in adolescents with heavy menstrual bleeding in a multicenter prospective US cohort. Haematologica 2020; 105(7): 1969–1976. doi: 10.3324/haematol.2019.225656. Zia A Jain S Kouides P Bleeding disorders in adolescents with heavy menstrual bleeding in a multicenter prospective US cohort . Haematologica 2020 ; 105 ( 7 ): 1969 – 1976 . Doi: 10.3324/haematol.2019.225656 . Open DOISearch in Google Scholar

43. Újhadbor R, Chuck E, Gohlan N, et al. Recommendations for Trans*-Inclusive Healthcare. King’s College London; 2022. Available from https://www.kcl.ac.uk/csmh/assets/recommendations-for-trans-inclusive-healthcare-v6.pdf. Újhadbor R Chuck E Gohlan N Recommendations for Trans*-Inclusive Healthcare . King’s College London ; 2022 . Available from https://www.kcl.ac.uk/csmh/assets/recommendations-for-trans-inclusive-healthcare-v6.pdf . Search in Google Scholar

44. Schwandt TA, Gates EF. Case Study Methodology. In Denzin NK, and Lincoln YS (eds). The SAGE Handbook of Qualitative Research (5th edition). London: Sage Publications; 2017: 600–630. Schwandt TA Gates EF. Case Study Methodology . In Denzin NK Lincoln YS (eds). The SAGE Handbook of Qualitative Research ( 5th edition). London : Sage Publications ; 2017 : 600 – 630 . Search in Google Scholar

45. Nissen T, Wynn R. The clinical case report: a review of its merits and limitations. BMC Res Notes 2014, 7:264. doi: 10.1186/1756-0500-7-264. Nissen T Wynn R. The clinical case report: a review of its merits and limitations . BMC Res Notes 2014 , 7 : 264 . Doi: 10.1186/1756-0500-7-264 . Open DOISearch in Google Scholar

46. Stake RE. The Art of Case Study Research. London: Sage Publications; 1995. Stake RE. The Art of Case Study Research . London : Sage Publications ; 1995 . Search in Google Scholar

47. Baxter P, Jack S. Qualitative case study methodology: study design and implementation for novice researchers. Qual Rep 2008; 13(4): 544–559. doi: 10.46743/2160-3715/2008.1573. Baxter P Jack S. Qualitative case study methodology: study design and implementation for novice researchers . Qual Rep 2008 ; 13 ( 4 ): 544 – 559 . Doi: 10.46743/2160-3715/2008.1573 . Open DOISearch in Google Scholar