Open Access

Bereaved parents’ experiences of being informed about autopsy findings after the sudden and unexpected loss of an infant or small child


Cite

[1] Rognum, T.O., Bøylestad, L., Dødstedsundersøkelse – helsehjelp ved plutselig og uventet barnedød, 2015Search in Google Scholar

[2] Kristensen, P., Undersøkelse av dødsstedet ved plutselig og uventet barnedød. En evalueringsstudie, Nasjonalt Kunnskapssenter om Vold og Traumatisk Stress, 2018Search in Google Scholar

[3] Helse- og omsorgsdepartementet, Forskrift om leges melding til politiet om unaturlig dødsfall o.l. (FOR-2000-12-21-1378), 2001, https://lovdata.no/dokument/SF/forskrift/2000-12-21-1378?q=FOR-2000-12-21-1378Search in Google Scholar

[4] Justis- og beredskapsdepartementet, Forskrift om ordningen av påtalemyndigheten (FOR-1985-06-28-1679), 1986, https://lovdata.no/dokument/SF/forskrift/1985-06-281679?q=FOR-1985-06-28Search in Google Scholar

[5] Goldstein, R.D., Parental grief, In: Duncan J.R., Byard, R.W. (Eds.), SIDS Sudden infant and early childhood death: The past, the present and the future, University of Adelaide Press, Adelaide, 2018Search in Google Scholar

[6] Dyregrov, A., Dyregrov, K., Long-term impact of sudden infant death: a 12- to 15-year follow-up. Death Studies, 1999, 23(7), 635-661, doi:10.1080/07481189920081210.1080/074811899200812Search in Google Scholar

[7] Stroebe, M., Schut, H., Stroebe, W., Health outcomes of bereavement, Lancet, 2007, 370, 1960-1973, doi:10.1016/S0140-6736(07)61816-910.1016/S0140-6736(07)61816-9Search in Google Scholar

[8] Kristensen, P., Dyregrov, K., Dyregrov, A., Hva skiller forlenget sorg-forstyrrelse fra depresjon?, 2017, 7-8, 137, 539-910.4045/tidsskr.16.062928383227Search in Google Scholar

[9] Morris, S., Fletcher, K., Goldstein, R., The grief of parents after death of a young child, Journal of Clinical Psychology in Medical Settings, 2018, 26(3), 321-338, doi: 10.1007/s10880-018-9590-710.1007/s10880-018-9590-730488260Search in Google Scholar

[10] Wilcox, H.C., Mittendorfer-Rutz, E., Kjeldgård, L., Alexanderson, K., Runeson, B., Functional impairment due to bereavement after the death of adolescent or young adult offspring in national population study of 1,051,515 parents, Soc Psychiatry Psychiatri Epidemiol, 2015, 50(8), 1249-56, doi: 1007/s00127-014-0997-710.1007/s00127-014-0997-725552253Search in Google Scholar

[11] Garstang, J., Griffiths, F., Sidebotham, P., Parental understanding and self-blame following sudden infant death: a mixed-methods study of bereaved parents’ and professionals’ experiences, BMJ Open, 2016, 6, e011323, doi: 10.1136/bmjopen-2016-01132310.1136/bmjopen-2016-011323488545827198994Search in Google Scholar

[12] Gold, K.J., Sen, A., Leon, I., Whose fault is it anyway? Guilt, blame and death attribution by mothers after stillbirth or infant death, Illness, Crisis & Loss, 2018, 26(1), 40-5710.1177/1054137317740800Search in Google Scholar

[13] Sullivan, J., Monagle, P., Bereaved parents’ perceptions of the autopsy examination of their child, Pediatrics, 2011, 127(4), doi: 10.1542/peds.2009-202710.1542/peds.2009-202721402641Search in Google Scholar

[14] Heltne, U., Dyregrov, A., Dyregrov, K., Death scene investigation: parents’ experiences, Scandinavian journal of Forensic Science, 2016, 22(2), 57-63, doi: 10.1515/sjfs-2016-000910.1515/sjfs-2016-0009Search in Google Scholar

[15] Helsedirektoratet, Veileder for informasjon til pårørende i forbindelse med obduksjon og forskning ved dødsfall hos barn, IS-2237, Oslo, 2016Search in Google Scholar

[16] Smith, J.A., Qualitative psychology: A practical guide to research methods, 3rd ed., SAGE Publications, London, 2015Search in Google Scholar

[17] Creswell, J.W., Zhang, W., The application of mixed methods designs to trauma research, Journal of Traumatic Stress, 2009, 22(6), 612-621, doi: 10.1002/jts.2047910.1002/jts.2047919960518Search in Google Scholar

[18] Braun, V., Clarke, V., Using thematic analysis in psychology, Qualitative research in psychology, 2006, 3(2), 77-101, doi: 10.1191/1478088706qp063oa10.1191/1478088706qp063oaSearch in Google Scholar

[19] NVivo qualitative data analysis software; QSR International Pty Ltd. Version 12, 2018Search in Google Scholar

[20] Dyregrov, A., Regel, S., 2012, Early interventions following exposure to traumatic events: Implications for practice from recent research, Journal of Loss and Trauma, 2012, 17, 271-291, doi: https://doi.org/10.1080/15325024.2011.61683210.1080/15325024.2011.616832Search in Google Scholar

[21] Dyregrov, A., Kristensen, P., Information to bereaved families following catastrophic losses. Why is it important?, 2020, Journal of Loss and Trauma, doi: https://doi.org/10.1080/15325024.2019.171095410.1080/15325024.2019.1710954Search in Google Scholar

[22] Fleming, P., Blair, P.S., Sidebotham, P.D., Hayler, T., Investigating sudden unexpected deaths in infancy and childhood and caring for bereaved families: an integrated multiagency approach, BMJ, 2004, 328-331.doi: https://doi.org/10.1136/bmj.328.7435.33110.1136/bmj.328.7435.33133810514764498Search in Google Scholar

[23] Howatson, A.G., The autopsy for sudden unexpected death in infancy, Current Diagnostic Pathology, 2006, 12(3), 173-183, doi: https://doi.org/10.1016/j.cdip.2006.03.00810.1016/j.cdip.2006.03.008Search in Google Scholar

[24] Garstang, J., Griffiths, F., Sidebotham, P., Rigour and rapport: a qualitative study of parents’ and professionals’ experiences of joint agency infant death investigation, BMC Pediatrics, 2017, 17(48), doi: 10.1186/s12887-017-0803-210.1186/s12887-017-0803-2529720828173849Search in Google Scholar

[25] Garstang, J., Griffiths, F., Sidebotham, P., What do bereaved parents want from professionals after sudden death of their child: a systematic review of the literature, BMC Pediatrics, 2014, 14(269), 1471-2431, doi: https://doi.org/10.1186/1471-2431-14-26910.1186/1471-2431-14-269428743225319926Search in Google Scholar

eISSN:
2353-0707
Language:
English
Publication timeframe:
2 times per year
Journal Subjects:
Medicine, Clinical Medicine, other