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Journals
The Journal of Haemophilia Practice
Volume 11 (2024): Issue 1 (January 2024)
Open Access
Community Voices in Research
(CVR): A lived experience expert-centred approach to advance the future of inheritable bleeding disorders
Maria E Santaella
Maria E Santaella
National Bleeding Disorders Foundation (NBDF) – Research Department
New York, United States
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Santaella, Maria E
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Cynthia D Nichols
Cynthia D Nichols
Munson Medical Center
Traverse City, United States
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Nichols, Cynthia D
and
Michelle Witkop
Michelle Witkop
Bleeding Disorders Consultant, Contributed to CVR development while employed at NBDF
Michigan, United States
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Witkop, Michelle
Feb 11, 2025
The Journal of Haemophilia Practice
Volume 11 (2024): Issue 1 (January 2024)
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Article Category:
Clinical Research
Published Online:
Feb 11, 2025
Page range:
136 - 146
DOI:
https://doi.org/10.2478/jhp-2024-0020
Keywords
© 2024 Maria E Santaella et al., published by Sciendo
This work is licensed under the Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License.
Santaella, Maria E
National Bleeding Disorders Foundation (NBDF) – Research Department
New York, United States
Nichols, Cynthia D
Munson Medical Center
Traverse City, United States
Witkop, Michelle
Bleeding Disorders Consultant, Contributed to CVR development while employed at NBDF
Michigan, United States