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Development of a patient-reported outcomes tool to monitor changes in joint health and wellbeing for young people with haemophilia B

Melanie Bladen

Melanie Bladen

Great Ormond Street Hospital for Children NHS Foundation TrustLondon, UK
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Bladen, Melanie
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Janet McDonagh

Janet McDonagh

Manchester Academic Health Science Centre, University of Manchester, National Institute for Health Research Biomedical Research Centre, Manchester University Hospital NHS TrustManchester,
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McDonagh, Janet
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Paul McLaughlin

Paul McLaughlin

Katharine Dornandy Haemophilia Centre and Thrombosis Unit, Royal Free London NHS Foundation TrustLondon, UK
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McLaughlin, Paul
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Richard Gooding

Richard Gooding

Haemophilia Comprehensive Care Centre, Belfast Health and Social Care Trust, Belfast City HospitalBelfast, UK
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Gooding, Richard
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Kerry-Ann Holder

Kerry-Ann Holder

Child Health Psychology, Inherited Bleeding Disorders and Hereditary Anaemias, Noah’s Ark Children’s Hospital for WalesCardiff, UK
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Holder, Kerry-Ann
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Sharon Thind

Sharon Thind

Haemophilia Comprehensive Care Centre, Alder Hey Children's HospitalLiverpool, UK
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Thind, Sharon
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Brittany Klooster

Brittany Klooster

Adelphi Values Patient-Centered OutcomesBoston, US
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Klooster, Brittany
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Alan Shields

Alan Shields

Adelphi Values Patient-Centered OutcomesBoston, US
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Shields, Alan
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Diane M. Turner-Bowker

Diane M. Turner-Bowker

Adelphi Values Patient-Centered OutcomesBoston, US
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Turner-Bowker, Diane M.
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Kaitlin Chatterton

Kaitlin Chatterton

Ultragenyx PharmaceuticalNovato, US
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Chatterton, Kaitlin
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Allison Leso

Allison Leso

Adelphi Values Patient-Centered OutcomesBoston, US
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Leso, Allison
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Connor Volpi

Connor Volpi

Adelphi Values Patient-Centered OutcomesBoston, US
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Volpi, Connor
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Sujan Sivasubramaniyam

Sujan Sivasubramaniyam

CSL BehringLondon, UK
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Sivasubramaniyam, Sujan
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Jiawula Abulizi

Jiawula Abulizi

CSL BehringLondon, UK
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Abulizi, Jiawula
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Nisa Khan

Nisa Khan

CSL BehringLondon, UK
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Khan, Nisa
  
Sep 20, 2024
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Article Category: Clinical Research
Published Online: Sep 20, 2024
Page range: 108 - 122
DOI: https://doi.org/10.2478/jhp-2024-0014
Keywords
© 2024 Melanie Bladen et al., published by Sciendo
This work is licensed under the Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License.
Language:
English
Publication timeframe:
1 times per year
Journal Subjects:
Medicine, Basic Medical Science, Basic Medical Science, other, Clinical Medicine, Clinical Medicine, other, Pharmacy, Pharmacology
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