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A multi-stakeholder collaborative approach to awareness, education and support needed in the haemophilia gene therapy patient journey – a report on insights from a European patient advisory board

Brian O’Mahony

Brian O’Mahony

Irish Haemophilia SocietyDublin, Ireland
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O’Mahony, Brian
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Simon Fletcher

Simon Fletcher

Haemnet LtdLondon, UK
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Fletcher, Simon
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Manuel Baarslag

Manuel Baarslag

Radboud UMCNijmegen, The Netherlands
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Baarslag, Manuel
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Kate Khair

Kate Khair

Haemnet LtdLondon, UK
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Khair, Kate
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Daan Breederveld

Daan Breederveld

Brendaan ConsultancyAmsterdam, The Netherlands
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Breederveld, Daan
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Nathalie Jansen

Nathalie Jansen

CSL BehringHattersheim am Main, Germany
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Jansen, Nathalie
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Luke Pembroke

Luke Pembroke

Haemnet LtdLondon, UK
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Pembroke, Luke
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Karen Pinachyan

Karen Pinachyan

CSL BehringHattersheim am Main, Germany
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Pinachyan, Karen
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Sujan Sivasubramaniyam

Sujan Sivasubramaniyam

CSL BehringHattersheim am Main, Germany
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Sivasubramaniyam, Sujan
  
Apr 18, 2024
A multi-stakeholder collaborative approach to awareness, education and support needed in the haemophilia gene therapy patient journey – a report on insights from a European patient advisory board's Cover Image
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Article Category: Clinical Practice
Published Online: Apr 18, 2024
Page range: 47 - 57
DOI: https://doi.org/10.2478/jhp-2024-0007
Keywords
© 2024 Brian O’Mahony et al., published by Sciendo
This work is licensed under the Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License.
O’Mahony, Brian ORCID Icon
Irish Haemophilia SocietyDublin, Ireland
Fletcher, Simon ORCID Icon
Haemnet LtdLondon, UK
Baarslag, Manuel ORCID Icon
Radboud UMCNijmegen, The Netherlands
Khair, Kate ORCID Icon
Haemnet LtdLondon, UK
Breederveld, Daan ORCID Icon
Brendaan ConsultancyAmsterdam, The Netherlands
Jansen, Nathalie ORCID Icon
CSL BehringHattersheim am Main, Germany
Pembroke, Luke ORCID Icon
Haemnet LtdLondon, UK
Pinachyan, Karen ORCID Icon
CSL BehringHattersheim am Main, Germany
Sivasubramaniyam, Sujan ORCID Icon
CSL BehringHattersheim am Main, Germany
Language:
English
Publication timeframe:
1 times per year
Journal Subjects:
Medicine, Basic Medical Science, Basic Medical Science, other, Clinical Medicine, Clinical Medicine, other, Pharmacy, Pharmacology
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